Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Great: So How Do I Continue To Stay gluten-free?


Molecular Dude

Recommended Posts

Molecular Dude Apprentice

Hello All,

I haven't posted recently because I've been essentially symptom-free for about 2 months now, which is absolutely amazing and I wish that everyone could feel as well!

The problem is that I'm starting to get this feeling of invincibility. For more than 5 years the slightest hint of gluten would make me ill. Now, I'm still very careful and haven't changed my diet in any way, and I'm finally OK. I guess that my system has healed adequately to allow me to be asymptomatic. Strangely though, this lack of symptoms in a way makes things boring and mundane, and I'm feeling temptation to stray from the diet. It's odd that having problems enables one to maintain the gluten free diet far more easily than feeling well does. (I suppose that recovering drug and alcohol abusers face similar situations, but I have no personal experience with that). From a purely intellectual perspective, I know that I have to stay gluten free, but I certainly long for those days when I didn't even know what gluten was!

Any suggestions for how to keep convincing oneself to stay gluten-free when feeling well?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenGalAZ Enthusiast

I've had similar thoughts -- thinking I have been feeling REALLY good for such a long time now and then I see on TV pizza or go to say Sam's Club and see the pretzels and hot dogs that I remember being really good. When you feel good for a while you start to wonder sometimes if it just all went away and you would be okay eating a gluten containing food --- BUT NOPE....just stay away.

I have almost slipped couple times past couple of months but then I remember how I felt and I also read posts on here about what people are going through and it reminds me about my past and how terrible things were.

I am at a point in my life where I know what I can eat and how great I have been feeling. I have finally started to get my life back and can go on day trips with my husband. My anxity has gone down A LOT compared to what it got to. I can go in stores now without the anxity taking over and wanting to go home.

Just remember how you felt. If you miss a certain type of food then think of a gluten free way to make it or try some different box mixes -- that is what I have been doing with pizza trying to figure out a great gluten free crust. There are so many foods that don't contain gluten in them that you can buy at the grocery store -- in a way the diet makes you eat healthier.

GOOD LUCK :)

aikiducky Apprentice

Don't worry. It's almost inevitable that somewhere along the way you'll get glutened from somewhere, and then you'll remember why you're doing it again. :P;)B)

Seriously though, I remember feeling like that around the same time, two months into the diet. It's like the previous poster said, try to think back to how sick you were, and remind yourself that that's how you would feel again if you slip up.

Pauliina

gfpaperdoll Rookie

I have the opposite problem - I see gluten anything & I just think how awful the stuff is & killing many people everyday & they have no clue. I see a donut & it almost makes me nauceous. I feel almost physical pain when I watch my grandchildren eating wheaty bread & pizza - when they should be gluten-free.

I think this would be a more peaceful, happier, healthier planet if all the gluten grains were just loaded up & shipped to the moon. B):DB):D

No thanks to anything wheaty for me ever. I feel blessed to be gluten-free.

Ursa Major Collaborator

Dude, just remember that you will likely die a horrible death if you go back to eating gluten. Cancer somewhere of the gastrointestinal tract is almost guaranteed for people with celiac disease who keep eating gluten. You would likely cut at least 20 years off your lifespan.

Personally, I'd prefer to be healthy and just keel over or die in my sleep without being sick first when my time is up.

I've had the opposite problem. I am very ill and fatigued still, nearly three years of being gluten-free. I feel rotten anyway, so why not cheat?

Well, I gave in a couple of times. Big mistake. I feel rotten now, but boy, do I ever feel worse the next day after eating gluten! The stomach and bowel cramps, terrible D and awful bloating, as well as the brain fog and angry outbursts, depression....... (the list goes on), take feeling bad to an entirely new level.

It is totally not worth it, no matter how you look at it. You feel fabulous, congratulations! Please do yourself a favour and keep it that way, by staying gluten-free.

Phyllis28 Apprentice

I remember how sick I was and still get with an accidental glutening. I think of it as form of aversion therapy. I have no desire, at all, to stray from a gluten free diet.

Fiddle-Faddle Community Regular

Am I weird or something? I have absolutely no urge to cheat--and I don't have severe reactions to gluten.

Just hearing how bad it could get, though, in terms of other autoimmune disorders, such as RA, MS, lupus, fibromyalgia, etc. is more than enough to keep me from cheating.

If I want pizza, I can make it in 10 minutes using corn tortillas for the crust. Or if I'm desperate for "real" crust, I can make it from scratch in less than an hour.

What's the big deal?

I LIKE feeling good.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MissLu Newbie

For anyone tempted to cheat on their diet, it may be a little extreme but think of this analogy: people with mental illnesses on effective medication begin to feel better, and occasionally people think that because they feel better they can go off their meds. Guess what happens? Celiac disease is the same way. The fact that you're feeling better is the reason you should be sticking to your diet.

Molecular Dude Apprentice

Thank you all so much for your responses. Yes, the correct and rational path is to ALWAYS remain gluten free, and recalling/realizing the terrible effects of gluten on your body and mind is the best way to overcome the temptation of savoring and devouring your old favorite foods.

Besides, I'm certain that I will suffer through cross-contamination somewhere along the way and that will set me straight.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    3. - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,768
    • Most Online (within 30 mins)
      7,748

    Cora Pifer
    Newest Member
    Cora Pifer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      I take both Benfotiamine and TTFD.   You might want to start with the Benfotiamine for a few days and then add in the TTFD.   You can look for NeuroMag (Magnesium Threonate).  A magnesium glycinate is fine, too.  Doctor's Best is a good brand.  Don't take more than 300mg total per day of magnesium or it may have a laxative effect.   Be sure to take the B Complex.  The Benfotiamine and TTFD will need the other B vitamins.  
    • xxnonamexx
      Life Extension Benfotiamine with Thiamine has 100MG of Ben and 25 of Thia..... Do you think this is the one I should take or Objective Nutrients Thiamax (TTFD) which has 100MG Thiamine. How much magnesium should I look for? I take the womens 50+ multivitamin since consumerlabs stated and tested that it has the right amount of vitamins and not too much for men and doesn't have BHT which has shown to cause liver cancer in animals. I was never big with multivitamins as well as doctors I just read when I was first going gluten free to take a multi but I think I will stop them and work on trying the super B Thia and Ben, Mag.  
    • Oliverg
      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.