Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Always Cold


Krystens mummy

Recommended Posts

Krystens mummy Enthusiast

I heard people talk about night sweats but does anyone get so cold that they go to bed fully clothed with a winter weight quilt on? My hubby thinks Im weird


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



katebuggie28 Apprentice

I feel you. I used to always have night sweats, morning sweats, afternoon sweats, and everything in between sweats. :) Now I am cold all of the time. Everyone I know has made commentts about it, but i chalked it up to getting older. (hormones) I am in Flroida right now and it must be 80 degrees or so. I turned off the air and opened 1 door, and I am freezing. My family are all complaning that they are hot and sweating. (it's 3:30 am here) They are sweating enough to wake up and complain lol.

curlyfries Contributor

I wear a sweater almost all the time. Everyone at work is turning on fans. When I feel under the weather and think I'm running a temperature, I'm normal. So I took my temp a few times when I was feeling fine. it maintains at an average of 1 degree below normal.

RiceGuy Collaborator

Feeling cold all the time is often a sign of nutrient deficiency. A Google search turned up multiple references to B12, and I've read similar things about numerous other supplements, such as magnesium and zinc. So I'd recommend Googling up feeling cold/chills and some of the other symptoms you may have and see what relates to you. Also consider any food cravings you might have, as that can be a sign of deficiency as well.

  • 2 weeks later...
FoxersArtist Contributor

I was always cold before going gluten free. I couldn't stand air conditioning. My joints would hurt so badly and become so stiff from the 70 degree "cold" air that I would have to take hot bathes every night before bed or I couldn't sleep. Even when I sat in front of a heater to warm up or sat in a warm car, my knees and limbs still felt like ice. I tried countless times to explain to hubby that I felt like I had been sitting out in the snow on a cold winter day for hours. My Drs. diagnosed me with Raynauds Phenom. but now that I know about the celiac and am gluten free, I'm wearing t-shirts again without shivering. I haven't felt cold like that in weeks. I'm completely rejoicing in my newly found warmth because being cold is absolutely miserable. My core bod temp is still on the lower end - 96-97 degrees. But I feel much better. I wonder what causes this in untreated celiacs...?

-Anna

I heard people talk about night sweats but does anyone get so cold that they go to bed fully clothed with a winter weight quilt on? My hubby thinks Im weird
flourgirl Apprentice

I was always cold, too. I still struggle with that, though am fairly new to "the diet". Because od Celiac Disease, my iron, ferritin levels, along with everything else were very low. Pretty strange....I was hyperthyroid, but still cold all of the time. My blood pressure was dangerously low, my body temp. ran normal at about 96. People think its funny to see me "bundled up" in anything less than 80 degrees, but its not at all funny. When I catch a chill it is actually painful...joints, skin hurt, muscles tense up. I do find, as I'm healing, that it's not as acute. For the first time in a very long time I'm actually barefoot in the house sometimes. Maybe I can even do some swimming this summer....havent in years because I can't bear the "cold water".

I do believe all of these symptoms come from deficiencies and malabsorbtion. I'm feeling so much better and look forward to actually feeling good (make that great), like I don't remember ever feeling. By the way...my thyroid is now in the normal range, no longer hyper. My blood pressure is higher than it has ever been, but low normal. Heart rate is steadier....used to have arrythmias...weight has stabilized.....it just keeps getting better and better (yay!)

  • 3 weeks later...
wlerman Newbie

I am brank spanking new to this site and to living gluten free. This topic caught my eye!!!!

I've been suffering from cold sensitivty and had no idea that gluten may play a role. Pieces are really starting to come together now which amazes me!

I have a long medical history and I won't bore you with it. Let's just sum it up to say I'm in remission from 2 different types of cancer. Pretty sure chemo is to blame for a few of my problems but at least I'm alive.

My chiropractor is the one who figured out that I cannot tolerate gluten. And as far as cold sensitivity, well I have every symptom of hypo thryroid but my bloodwork is always within normal limits. That was until they tested my TPO antibodies. I was so far above the limit! That means that while my body prduces thyroid hormone in normal amounts the anitbodies attack it and "my normal" needs to be as close to zero as possible without going hyper-throid. BUT...now that I see a correlation between gluten and cold it's making more sense!!! It must all be related! I can't stress how much I dreaded the fall...never mind winter in Boston no less. Suffered from cold like it was nobody's business.

I've only been gluten free for almost a week but already am starting to feel better.

I cannot wait to dig into this site. You all seem amazing and helpful and I hope to contribute too!

Love and light,

Wendy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
ericajones80 Newbie

I'm actually the exact opposite...I'm always hot no matter what. I wish we could switch places a few days a week!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,315
    • Most Online (within 30 mins)
      7,748

    RickT
    Newest Member
    RickT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.