Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Life Of A Yorkie....


TheMinsterman

Recommended Posts

TheMinsterman Newbie

Hello everyone!

I have been suffering since February 10th this year with a wide range of horrible symptoms. I may also have a vestibular problem and constantly finding fluid in my left ear, maybe due to Perilymph Fistula!

It all begun with an episode of spinning vertigo, slowly but surely it developed into something for more overwhelming and sinister.

My symptoms are -

Loose bowel movements (has improved slightly, was very mucousy and horrible at first)

Weight loss (16 stone towards 14 stone in 3 monthes)

Light headed

Breathing difficulties (I can't feel my own breathe in my windpipe or chest usually, only on lips, rarely in nose)

Loss of sense of where I am in space (Sometimes feels like my arm for example isn't there, yet I know it is)

Cold body parts (Feet usually always cold, fingers and other areas just go cold)

Nausea

Depression

Anxiety

Panic Attacks

Brain Fog (Oh how I loathe this, can be a symptom from my inner ear problems too!)

Odd sleeping patterns (Sometimes I sleep for hours, sometimes I can't sleep, sometimes I can't stay asleep)

Joints always clicking (I'm like a walking musical instrument!)

Sharp pain in lower left abdomen and back (Never long , seconds)

Diminished vision (Though it fluctuates and returns)

Lots of fluid in sinuses (Could be a CSF leak related to PLF)

Mood instability (Always switching between self pity, to anger to emotionless)

Dry mouth

Dry eyes

Genital Issues (My penis is quite paniful at times and dry too, left testicle aches and has for over a year)

Ears popping, leaking, crackling etc

Tinnitus

Weakness (My muscles feel so odd, sometimes its as if I can't control them in same way)

Intermittant "Numbness" (Say I flex my bicep, its as tho I never did it, yet I know I did)

Sore throat

All of this hit in around March and has continued to this date. Before then I had the occassional spells of bad bowels movements and annoying pain in my abdomen, usually on the left. I got terrified when I found lumps in my abdomen, but the Drs (two of them) are confident this is scar tissues as I had alot of pain there following badly done sit ups.

I am at times getting better, at others feeling horrible and as though I'm wasting away and dying. I have a fear of death, this illness has intensified that ten fold.

I was wondering if anybody else had similar symptoms? I have had a weak positive result for my blood tests and am awaiting a endoscopy (have been doing for some time! Ruddy NHS!), but I just get this sneaking suspision it may well be Celiacs.

Hope to get to know you all!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      18

      Blood results

    2. - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      18

      Blood results

    3. - NoGlutensToday posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Is Purito's Oat In Calming Gel Cream safe for celiacs?

    4. - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      18

      Blood results

    5. - trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      18

      Blood results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,059
    • Most Online (within 30 mins)
      7,748

    Paul 777
    Newest Member
    Paul 777
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      When you say the endoscopy showed potential flattening and atrophic villi, Is that the visual result and you’re still waiting for the pathology report on the biopsies? It is quite possible to have the endoscopy look ok and the biopsies show celiac damage. That happened at my last endoscopy. It is also quite possible to only have damage in some areas. Hopefully her doctor took biopsies from the areas with potential flattening and atrophy. 
    • Heatherisle
      So even though she was initially diagnosed with IBS, could that have been wrong and she has had coeliac all along even though the endoscopy only showed potential flattening and atrophy inD1. Plus one positive and one negative blood result.It’s so confusing for my old brain!!!!
    • NoGlutensToday
      I'm trying to figure out if Oat In Calming Gel Cream from Purito is safe to use as a moisturizer on my face.  In particular, I'm not sure what to think about the oat seed water. Not sure if that should be considered safe or not. The full list of ingredients on their website are: Avena Sativa (Oat) Seed Water (77%), Butylene Glycol, Glycerin, 2,3-Butanediol, 1,2-Hexanediol, Aqua/Water, Ammonium Acryloyldimethyltaurate/VP Copolymer, Squalane, Hydroxyacetophenone, Carbomer, Dipotassium Glycyrrhizate, Panthenol, Tromethamine, Ethylhexylglycerin, Inulin Lauryl Carbamate, Sodium Surfactin, Beta-Glucan
    • Heatherisle
      Aw thank you so much for replying so quickly. Just wish the endoscopy had been clearer but as you say she might be in the early stages although she’s had gastric intestinal symptoms for a few years now but was told it was IBS. She won’t get the results for about 12 weeks which is frustrating, so hopefully if she trials a gluten free diet things will hopefully improve even if only slightly. I know improvements aren’t likely to happen immediately
    • trents
      Well, you've done both stages of testing now, the blood testing and the scope/biopsy so there is no reason to postpone trialing a gluten-free diet. And, yes, we get many reports on this forum from people with similar diagnostic experiences that leave them without desired clarity. My take would be your daughter is in the early stages of developing active celiac disease, perhaps transitioning from NCGS (Non Celiac Gluten Sensitivity) to celiac.
×
×
  • Create New...