Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For A Celiac Friend For My 7yrs Old Daughter

celiac dad

Recommended Posts

celiac dad Newbie
celiac dad
Posted

My daughter is finding it very hard dealing with her celiac, I am looking for someone around her age with celiac that he or she can talk to her so she doesn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyberprof Enthusiast
cyberprof
Posted

I forwarded your message to a friend of mine who has a daughter about 10. We are in Seattle.

Good luck!

~Laura

gfpaperdoll Rookie
gfpaperdoll
Posted

Have you contacted your local celiac support group or the ROCK group? There are also children's books that are good...

If the above is not an option how about contacting the local doc that dx her & also an allergist to see if they can make some contacts - wheat is one of the top ten allergies.

You might also ask at her school - surely she is not the only one that has celiac - ask about kids with allergies also - because they all go thru the same things... maybe they can eat wheat but are allergic to chocolate, eggs, strawberries, milk, nuts, etc... Chocolate cake would be out of the question for that child.

yes, all kids need a gluten-free friend...

fedora Enthusiast
fedora
Posted

my daughter is 7 also!!!!

We live in northern california(around Eureka).

she has not been diagnosed celiac but is now on a gluten free diet. We are seeing if it helps with her issues(not growing, mouth sores, moodiness)

She loves to write and would probably be interested in a penpal. We know lots of people who don't eat gluten, but they are all adults are younger kids. There is one boy here who is six.

Rondar2001 Apprentice
Rondar2001
Posted

My daughter is seven and was diagnosed last month. She has actually been adjusting alot better than I thought she would. She checks the ingredients of items she might like and if she sees something she can't have she puts it back and we try to figure out how to make it gluten free. I take her shopping with me to the health food store and she sees some of the good stuff that she can try that we never would have bought before. There are of course the hard times when she wants something but I can usually distract her before she gets too down about it.

On a side note, she was having huge mood swings that have seemed to have settled down a bit since we went gluten free.

We are in Calgary and I'm sure she would love to have a pen pal in the same boat as she's in.

olena Newbie
olena
Posted
Have you contacted your local celiac support group or the ROCK group? There are also children's books that are good...

If the above is not an option how about contacting the local doc that dx her & also an allergist to see if they can make some contacts - wheat is one of the top ten allergies.

You might also ask at her school - surely she is not the only one that has celiac - ask about kids with allergies also - because they all go thru the same things... maybe they can eat wheat but are allergic to chocolate, eggs, strawberries, milk, nuts, etc... Chocolate cake would be out of the question for that child.

yes, all kids need a gluten-free friend...

We have tried everything, support group, doctors, school, no luck localy...

olena Newbie
olena
Posted
my daughter is 7 also!!!!

We live in northern california(around Eureka).

she has not been diagnosed celiac but is now on a gluten free diet. We are seeing if it helps with her issues(not growing, mouth sores, moodiness)

She loves to write and would probably be interested in a penpal. We know lots of people who don't eat gluten, but they are all adults are younger kids. There is one boy here who is six.

Thank you! please do write to sasharockstar@shaw.ca. She has already found two new gluten-free friens in Florida.

She will be so happy!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


olena Newbie
olena
Posted
My daughter is seven and was diagnosed last month. She has actually been adjusting alot better than I thought she would. She checks the ingredients of items she might like and if she sees something she can't have she puts it back and we try to figure out how to make it gluten free. I take her shopping with me to the health food store and she sees some of the good stuff that she can try that we never would have bought before. There are of course the hard times when she wants something but I can usually distract her before she gets too down about it.

On a side note, she was having huge mood swings that have seemed to have settled down a bit since we went gluten free.

We are in Calgary and I'm sure she would love to have a pen pal in the same boat as she's in.

When our daughter was diagnosed last year, she was good with it in a beginning. It made her feel better, everything was Ok. She is having a hard time since recently. The reality is sinking in- it's not going away... her friends at school are all eating gluten... lanch is a torcher! She started withdrawing herself from the group, thinking she is diferent and dosen't belong. Then she started cheatting, trying other kids foods and now it gets to the point were she doesn't want to eat at all. Don't know what to do!

We had a response from a family in Florida with two girls, and my daughter loves corresponding with them.

If your daughter is interested in making a friend, please write

sasharockstar@shaw.ca. We are in Vancouver. Thank you!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

There are so many kids with peanut or dairy allergies--would your daughter feel better hanging out with someone else with a food allergy which isn't the same as hers? You could contact the teacher at school, explain the situation, and ask him/her to put you in touch with other parents dealing with food allergies.

My kids have friends who are allergic to dairy, peanuts, and one who is a vegetarian. All the parents are really good about stocking "safe" food for the affected kids to eat when they are over, since they know what it's like. And, interestingly, the toughest one is the vegetarian! (He is unusually picky, and hates trying anything new, even different brands of ranch dressing and different kinds of cheese! He turned up his nose at cheddar, asking if I didn't have "regular" cheese. Turned out, he meant American, which I turn my nose up at! :P ) We give him cottage chees, salad, rice, and carrot sticks when he's at our house for dinner.

fedora Enthusiast
fedora
Posted

hi,

I told my daughter. I think she would like to write, but needed time to think about what to say. She just went on the gluten free diet(we did a short test run before). It has not been easy this week, she cheated with a cookie on Friday at a play(I will be way more prepared next time). We are not sure if it is going to be the answer, but she has a lot of suggestive symptoms. We have 4 more days of school left. Glad your daughter has made a couple new penpals.

Take care

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    2. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    3. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    4. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748
    Travis25
    Newest Member
    Travis25
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      Heat intolerant... Yikes

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.