Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did Your Kids Do This?

B'sgirl

Recommended Posts

B'sgirl Explorer
B'sgirl
Posted

My 18 month old has been on a gluten free diet for about 7 weeks now. He still has had gluten on occasion by stealing a snack off the church nursery floor or some relative slipping him a cookie at a gathering without realizing he can't have them. He has also been off dairy for about a week. He still has the sticky, sandy bowel movements at least every few days. But the most frustrating thing is that he has been waking up at night and no matter how many times I put him back to bed he gets back up and either whines for hours, or plays with his toys. I don't know if he is just hungry because he's not getting enough calories in his new diet, or if he is having stomach cramps, or something else. Do you think this is related to Celiac or his diet, or do I need to look elsewhere for a solution? Have any of you experienced this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Cinnamon Apprentice
Cinnamon
Posted

Yes, we've had this and I'm sure it's from gluten. I can always tell if my son cheats because he will sleep poorly, and when he does sleep, he wets the bed, and he will be 12 years old next week! When he's gluten free, he sleeps well. I'll bet your son is getting glutened, or hasn't healed thoroughly yet. I can't imagine how hard it must be to keep an 18-month-old gluten free!

gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

My daughter was up all night complaining of being hungry before she was diagnosed. She was fed all night too because she was so sick. So it was a bad cycle. After a few weeks of being gluten-free/CF she slept well and we only have problems when she gets gluten-free or dairy. Her behavior and wetting the bed are the first indicators that something has gone wrong.

I think after just a week or so the baby is still healing. Stomach cramps would probably be right. Just figure the baby has been used to diarrhea constantly and now all of a sudden the bowels are working right. I know mine had her first formed poop after a week or two on the diet. She was so happy.

BTW: if family and church aren't "getting it" about gluten-free food, think about a medic alert bracelet. That made a HUGE difference for us.

JennyC Enthusiast
JennyC
Posted

My son was diagnosed at 3.5 years old and he had horrible sleep patterns as well. From the bm's and sleep patterns you are describing it sounds like he might still be getting gluten. If he is in an environment where he can pick gluten up off the floor, then it is likely everywhere and there is an enormous cross contamination risk. I know it's hard but you may have to make more adjustments to avoid cross contamination.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.