Colonoscopy/endoscopy/ultrasound/bloodtest Results

[holdthegluten]

I just had a bunch of testing done (as you can see in my topic) and the results were very good. The endoscopy showed that my villi were completely healed (biopsies) and my lymphocyte count was very low (guages inflammation). The colonoscopy revealed a benign polyp that was taken off and everything else was perfect. (no inflammation or anything). The blood test was great and showed a very low ttg count and ema was normal. Everything celiac related was completely normal showing the diet has worked extremely well. The ultrasound showed nothing abnormal (looking at my liver mainly). So far the only findings were a slightly elevated ALT liver enzymes which she will do a liver biopsy if they are still elevated after a year, and i had mild non-specific gastritis (no h. pylori). She did various biopsies and everything looks normal now. My question: Even though everything looks back to normal, why dont i feel as good as i used to?

Why am i more sensitive to certain foods if everything is working properly. Why dont i still have the energy and why do i get bloated and have mild stomach pain sometimes? I still get the stiff neck and head pressure at times when i eat. On an empty stomach I feel a little better usually. What could be causing the gastritis? I eat really clean and healthy. Any thoughts or suggestions please? God Bless!

[ravenwoodglass]

I don't know if my experience is anything like yours but I will relate it just in case. I still had some issues even after having a great recovery with the diet. It turned out to be a sensitivily to soy and casien. I never realized how much soy I was consuming, I virtually replaced the gluten with soy. It is in an awful lot of gluten-free stuff. Once I eliminated the soy I got a great deal of relief from the type of thing that you are experiencing. Something that also helped a great deal was adding a digestive enzyme to my diet. I take on whenever I eat meat or real fatty foods now but when I started I took them with every meal. They helped a great deal.

[glutenfreestephie]

i have had recurring gastritis for the last 12 years or so. it flares when i have ton of stress and then i get heartburn and then lots of pain if i don't do something about it sooner than later. i am supposed to be taking prilosec every day, but it is over the counter now and expensive... i cut corners where i can. i have had 2 egd's, alway negative helicobacter. it sure sounds like something else may be going on with you, but i know which myself i am having a hard time getting back to where i consider i should be. i have been feeling bad for the last 12 years, and i think i sort of thought once i finally got diagnosed that i would wake up one day and have energy. hasn't happened yet, but i am holding out hope. good luck.

stephanie