Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Inside Of My Mouth Shedding


rubylou

Recommended Posts

rubylou Newbie
Would you mind PM'ing me or posting what you eat in a day? I think I'm still consuming something with gluten...which is why the mouth thing won't go away! OR...maybe something I'm eating I'm also intolerant to? Suggestions? I want it gone for good! I also think that when I make a "mistake" it ruins my mouth for AT LEAST 2 weeks. Could that be?

It would be easier for you to tell me what your eating. I have a very simple basic diet...no processed foods. Mainly potato's and meat. I never did eat bread, so I don't bother with that tapioca or rice stuff they try to pass off as bread. If I use any condiments...it's only heinz ketchup, or hellmans light mayo. I don't do bottled salad dressings, as something in them upsets my stomach, I'm assuming it's the distilled vinegar (even though they say it's safe) I make my own salad dressing with red wine vinegar. I usually just take a hamburg or 2 hotdogs for lunch at work ( I work 2nd shift) I still have problems with milk products, they upset my stomach, but sometimes ya gotta have that bowl of ice cream...breyers french vanilla. I have become a creature of habit, only eating the same things. If we go out for dinner, we travel the 40 miles to hit outback....they have a gluten free menu. And as for alcohol....I drink redbridge beer, my local distributor stocks it for me (GOD BLESS THEM) For some reason, some things I eat still upset my stomach (not my mouth though) but I don't believe it's from gluten....I think it's just gonna take awhile for my stomach to heal totally. If you are totally positive that your gluten free....maybe you have some other allergy that is causing the mouth shedding and soreness. Another hidden thing I avoid is anything that says modified food starch.....It may be gluten....so I absolutely avoid it all. Hope this helps some


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rubylou Newbie
Hi again;

I did reply earlier to you and now I remember that for many years I had something also wierd, That the tissue under my tongue would shed. There would be string like strands shedding, eventually they fell off. I always had sores in my mouth I thought it was the Crohn's. Now that I am gluten-free I only have minor sores , I did have the Doc look at it , he said: Celiac, but that was after they determined Celiac. I worry that I might be sensitive to any food that can cause this. It returned again recently and I am trying to find a toothpaste that does not have anything in it. Toms strawberry is good but I hate the Carageenan because I heard some bad things about it : like it can cause Miscarages and who knows what it does to the intestines, I thought I would like to find a toothpaste that is just the basics. Honestly at this point who cares what it tastes like.

Wow...it sounds like you and Jewi008 have the same thing going on......maybe it is your toothepaste. Maybe you should try just plain old arm and hammer baking soda (it's gluten free) make a paste of it with a little water...it tastes horrible, but I've always heard of people using it. I think we are all becoming private investigators.....there are always mysteries that we are trying to solve. We have to investigate every morsel we pop in our mouths..... :angry:

I'm really sorry about your chrohn's disease, I have a friend who was diagnosed. I haven't seen her in years, but the last time I did see her, she said she was doing well. Good luck, and I hope your mouth gets feeling better.

Janessa Rookie

yes, I had this too before going gluten free. My mouth and lips would peel and kind of have a burning tingling feeling. Completely went away after going gluten free, now it'll happen for a few days after getting accidentally glutened.

jewi0008 Contributor
It would be easier for you to tell me what your eating. I have a very simple basic diet...no processed foods. Mainly potato's and meat. I never did eat bread, so I don't bother with that tapioca or rice stuff they try to pass off as bread. If I use any condiments...it's only heinz ketchup, or hellmans light mayo. I don't do bottled salad dressings, as something in them upsets my stomach, I'm assuming it's the distilled vinegar (even though they say it's safe) I make my own salad dressing with red wine vinegar. I usually just take a hamburg or 2 hotdogs for lunch at work ( I work 2nd shift) I still have problems with milk products, they upset my stomach, but sometimes ya gotta have that bowl of ice cream...breyers french vanilla. I have become a creature of habit, only eating the same things. If we go out for dinner, we travel the 40 miles to hit outback....they have a gluten free menu. And as for alcohol....I drink redbridge beer, my local distributor stocks it for me (GOD BLESS THEM) For some reason, some things I eat still upset my stomach (not my mouth though) but I don't believe it's from gluten....I think it's just gonna take awhile for my stomach to heal totally. If you are totally positive that your gluten free....maybe you have some other allergy that is causing the mouth shedding and soreness. Another hidden thing I avoid is anything that says modified food starch.....It may be gluten....so I absolutely avoid it all. Hope this helps some

Here's a common day for me (everything made at home by me): Grilled chicken, tofu, shrimp, all natural greek yogurt, applies, grapes, almonds, olive oil, natural chunky peanut butter, rice cakes, rice milk, chocolate rice milk, soy milk - unflavored, starbucks coffee, sugarfree hazelnut syrup, walnuts, rice and shine, quinoa, lettuce, veggies. The end. Do you see any culprits?!?! I thought it was all gluten-free? My mouth has been burning and raw...no peeling in awhile.

rubylou Newbie
Here's a common day for me (everything made at home by me): Grilled chicken, tofu, shrimp, all natural greek yogurt, applies, grapes, almonds, olive oil, natural chunky peanut butter, rice cakes, rice milk, chocolate rice milk, soy milk - unflavored, starbucks coffee, sugarfree hazelnut syrup, walnuts, rice and shine, quinoa, lettuce, veggies. The end. Do you see any culprits?!?! I thought it was all gluten-free? My mouth has been burning and raw...no peeling in awhile.

Gosh ....you eat way healthier than I do! I'm almost jealous. Nothing there sticks out....you just have to read the labels, and watch out for modified food starch (that ones the stinker for me anyway) I'm wondering if you may have some other food allergies. In my case....my stomach always tells me, if I get gluten....I always have horrible stomach problems Before the mouth situation happens....BUT....sometimes when I eat things that are hard and crispy, it kinda irritates my gums. Like for instance tostitos.....they are hard and crunchy...and salty....something like that may make your mouth sore. Or.....a new toothbrush....I opt for a soft toothbrush so I don't take the hide off. Sometimes when you have allergies, your mouth gets achy too......in the spring and fall, I feel like I have a toothache. So anyhoo...keep eating healthy ( I'm still jealous).

FoxersArtist Contributor

AHAHAHA! No Joke?! How funny to hear that I am not the only one with this problem. My skin sloughed off on the insides of my cheeks every time I brushed my teeth. It didn't hurt and to be brutally honest, I came to kind of enjoy it after a while. I felt more...uhh...clean, I guess. I figured it was a reaction to my toothpaste (crest) but this is very interesting to read. Come to think of it, I have only noticed this happening one or twice since going gluten free whereas it happened every day before. How interesting. I wonder if the sloughing has any relation to those with geographic tongue, which seemed to be a common thing with some celiacs here in another thread I read a while back. Hmmmm.

-Anna

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lmemsm replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      10

      gluten free cookie recipes

    2. - Sheila G. replied to Sheila G.'s topic in Related Issues & Disorders
      7

      No red meat

    3. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    4. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    5. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,906
    • Most Online (within 30 mins)
      7,748

    LisaH71
    Newest Member
    LisaH71
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lmemsm
      I know it's after the holidays, but it would still be fun to do a cookie recipe exchange on this forum.
    • Sheila G.
      I did talk to the nurse and she asked who told me no red meat.  I explained the person who called with the results of my blood work.  That was last week.  She told me the doctor was on vacation and would be back this week and she would talk to him and have someone call me this week.  I have not received a call yet.  I will call them back Monday as a reminder.
    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.