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Sensitive To "gluten-free Foods"

jvalentine89

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jvalentine89 Rookie
jvalentine89
Posted

After I eat any processed food (glutino breakfast bars, puffed corn cereal, rice/corn tortillas, etc.) I get either a bad headache or a terrible stomach ache and diarrhea similar to what I used to have when I ate gluten (pre-diagnosis). Does anyone else get these symptoms? Do you eat a diet of just whole foods? I'm guessing i should probably avoid the processed foods, as it is healthier, but I do miss foods with gluten in it and the replacements are pretty tasty. Thanks in advance.

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Ursa Major Collaborator
Ursa Major
Posted

Those gluten-free replacement foods are very hard to digest. For the first six months it is advisable to stay away from them, to allow your intestines to heal. And it is also a good idea to stay away from all dairy and soy for the first few months as well, as they can hinder healing.

Yes, naturally gluten-free foods are best at the beginning. I couldn't even handle raw vegetables and fruits for the first six months and had to cook everything until nearly mushy, or I would get diarrhea and terrible stomach cramps!

jvalentine89 Rookie
jvalentine89
Posted
  • Author

thanks for the quick reply! I think i'm going to use the gluten-free rice cereal i bought and make my friends some rice cripsie treats so i don't have the temptation in my house.

LuvMoosic4life Collaborator
LuvMoosic4life
Posted

what ursa said is true. when I first started gluten-free I went out and bought processed foods and was still reacting to them. I did elimination experiments and found I cannot have large amounts of soy or dairy ( I try to stay away altogether). I stay away from potatos as much as possible and take it easy on corn. potato flour which is used in many gluten-free products bothers me, same with soy flour.

I've been on whole foods for quite a while. I did feel a bit deprived at first and kept craving something more, but its normal. gradually, I started to introduce new things, and every now and then I will buy something gluten-free and processed as a treat, but I only buy one thing b/c I know I will binge if I buy multiple things... <_< If I have a small amount I am o.k....in the begining, even a small amount bothered me, now I'm fine (dependng on the product. "enjoy life" products work well for me!)- it just takes time. I just keep thinking how good I feel compared to how I was and that it's not worth eating things that bother me, no matter how good they taste. This is what stops me, I will think this : The taste only lasts for the small time it's in my mouth, the symptoms after last much much longer, is it worth it?

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
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