Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enzymaid


AliB

Recommended Posts

AliB Enthusiast

Just wondered if anyone has tried this product. Although it can help in gluten digestion for non-Celiacs I am particularly interested in its Casein and Lactose digesting properties.

Anyone know anything about it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

I have used Gluten-zyme by country life which I think has similar properties to good effect after being exposed to gluten. It really helped a lot. I took a double dose as well as more bromelain/papain and pancreatic enzymes too. Hitting it right away really made a difference in my response. No D! and really nothing dramatic unlike previously. Just a little joint pain and twitching at night. The next day I took extra pro-biotics. the Gluten Ayme has pro biotics too as well as glutenase powder, strong acid protease, amylase, glucoamylase, and a variety of Peptidase activity items.

Bea

Rachel--24 Collaborator
Just wondered if anyone has tried this product. Although it can help in gluten digestion for non-Celiacs I am particularly interested in its Casein and Lactose digesting properties.

Anyone know anything about it?

I dont know about Enzymaid. Peptizyde by Houston Nutraceuticals is great for breaking down the proteins....particularly gluten, casein and soy. In addition, HN-Zyme Prime is good for breaking down fats, starches and carbohydrates, lactose intolerance, gas, bloating and general digestion of all foods.

These two enzymes have had good results with the autistic population. Many are able to go off the gluten-free/cf giet with the use of these enzymes.

For Celiacs Peptizyde *may* worsen the reaction to gluten. So its not recommended for Celiac's to use in case of accidental gluten exposure. For everyone else it works well.

AliB Enthusiast

Thanks for that. I just still keep getting the 'pounding'. Not a fast heartbeat but just feeling it right through my whole body which suggests that I am just not digesting something properly or something is exacerbating an infection in there somewhere. I've been having a little soy cream in my hot choc (dairy free) but I don't think I am coping with that very well. I can't cope with tea, I can't cope with coffee and now I'm not sure I can have my hot choc either and I am fed up.

I'm avoiding all gluten and all dairy but am still getting this and it is annoying as it often keeps me awake at night. Occasionally it is a little better but I don't know why! The thing is, it could be carbs and it could be sugar but having already cut out a huge part of my diet, if i drop those too there won't be anything left! I'm not having very much of them as it is.

Because my diet is so restricted I get so hungry and that is when I tend to eat more carbs and/or sugar than I should. I thought maybe, with the help of enzymes I might be able to cope with some dairy and carbs. I know I can't go on like this - it's driving me mad and I am getting pretty fed up with food all round.

Although my ticker has been checked out, I do wonder what damage might be going on in the long-term if I don't get this sorted. I know it's not my blood pressure as that came right down to normal since gluten-free. I just can't figure this one out.

Rachel--24 Collaborator

This is my guess as far as the pounding goes. I think its the chocolate. Not because of sugar and not because of carbs.....but because chocolate has a very high phenol content.

Its very rich in histamine.

Open Original Shared Link

For people who are sensitive to phenols chocolate is a definate trigger for reactions.

Its also high in oxalates...another compound which can cause alot of health issues for someone having problems with oxalates.

With the "pounding" I'd suspect a phenol reaction. This is pretty easy to determine. Eliminate the chocolate and see if the pounding goes away. Then you can try the chocolate again and see if the pounding returns.

With phenol sensitivity reactions are dose related....so it might not happen until you've had chocolate for several days.

Anyways, I'm sensitive to phenols and cholcoate does that to me...and it can keep me awake at night. In the beginning I thought it was the caffeine.

AliB Enthusiast

Thanks Rachel, I'll try that. I'd cut down to just plain very bitter choc with no dairy - just a few squares a day and one or two cups of hot choc. I figured, what the heck, I've cut out everything else - let me have just ONE indulgence! Seems I might end up being denied that, too! Sigh.

Gluten-Free Guy Newbie

You may want to do some research into the independent (not the manufacturer's) scientific and medical validations to confirm the safety and effectiveness of any enzyme product claiming to assist celiacs in the digestion of gluten. At the national conference of the Celiac Sprue Association in October 2007, an expert expressed his opinion that one of these enzyme products is "deceiving and potentially dangerous." It's likely that the same caution applies to the other similar products.

Currently, scientists at Stanford University and at the University of Leiden in the Netherlands are conducting research to find a pill that will assist celiacs in the digestion of gluten, primarily when consumed by accident. It appears, however, that it may be a few years before a safe and effective product (based on their research) will reach the marketplace.

I have not seen any endorsements for the current products by national celiac organizations. It seems that, if the products were safe and effective, the organizations would be communicating it to their members. Furthermore, if you read the product labels, you will probably see a sentence to the effect that "These statements have not been evaluated by the Food and Drug Administration."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
I have not seen any endorsements for the current products by national celiac organizations. It seems that, if the products were safe and effective, the organizations would be communicating it to their members. Furthermore, if you read the product labels, you will probably see a sentence to the effect that "These statements have not been evaluated by the Food and Drug Administration."

To my knowledge noone here is interested in these products as a "treatment" for Celiac. The enzymes aid in digestion of other proteins....including casein and soy.

Noone is making claims that these enzymes can be used to assist Celiac's in consuming gluten...although some people do use them prior to eating meals where there may be possibility of cross contamination.

Nobody is saying that its safe for a Celiac to consume gluten intentionally while using these enzymes. The manufacturers clearly state on their websites that the enzymes are not to be used as a replacement for the gluten-free diet for those who have Celiac.

Keep in mind that some people who are gluten intolerant do not have Celiac (such as myself) and for some of these people the enzymes can be very helpful. The enzymes have proven to be effective for many non-celiacs....including a large percentage of autistic children.

YoloGx Rookie

Hi Ali and all,

I have read that there are studies at Stanford that indicate taking pro-biotics is helpful against inflammation for those suffering from celiac after ingesting something glutenous that usually creates an immune reaction. I have also read scientific reference to the fact that bromelain is good against inflammation. Certainly these two items have helped me. Even just eating live yogurt and fresh pineapple in a pinch seems to help if its done right away. Fresh Papaya or papain helps too.

I also wanted to add (as I have said before) that by taking the co-enzyme b vitamins (the ones without sorbitol) my heart stopped its pounding upon easy stress and late at night in bed plus now I can use a sauna or jacuzzi without fainting. For me I was having a problem absorbing/making/utilizing vitamin B-1 which is essential for carbohydrate and protein metabolization which is essential for a healthy nervous system including the heart and brain. If I stop taking the co-enzyme B's I notice it right away with jumpy pains in my feet and calves. Soon I am certain my heart would start pounding too. I noticed a difference in less than two weeks with my heart improving amazingly once I started taking the co-enzyme B's. the cool thing about the co-enzyme b's is that they go directly into the blood stream. I have also ready that many people with celiac have difficulty creating or making use of B vitamins in their damaged intestines...

I too can't tolerate much chocolate. It keeps me awake at night and is hard on my kidneys. I sneak a little sometimes but am better off if I don't. I suggest using carob powder instead of chocolate. It really is a close cousin in taste. I make some mean carob brownies that you would swear were chocolate (also using stevia rather than sugar--plus a small amount of applesauce which seems to cancel out the bitter stevia taste). If interested I will list my art/poetry/commentary (including some gluten-free recipes) blog where I have the recipe listed.

Bea

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,415
    • Most Online (within 30 mins)
      7,748

    KittyKatJill
    Newest Member
    KittyKatJill
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.