Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

1 Week With Gluten And No Symptoms?

betsyabailey

Recommended Posts

betsyabailey Rookie
betsyabailey
Posted

Hi everyone! I posted last week about lab work and gluten and got some great advice, thanks! My DH decided that he wanted to go ahead and do the labs now AND find a different preschool. So Aidan, my son has been having a pretty significant amount of gluten for about a week now with absolutely no symptoms that we can see. Is it normal for the gastro problems to take awhile when adding gluten back to diet? I figured it would be at least close to immediate, like before. Thanks!

Betsy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

It can take a while for gluten to build up in his system, before he will have symptoms. Or he might not get any obvious symptoms now, like diarrhea, but rather stop growing. In fact, failure to thrive is the most common symptom in babies and toddlers with celiac disease.

Also, since he didn't have gluten since he was a tiny infant, it will likely take years to destroy his villi and make him sick enough to test positive. By then he will probably have stunted growth and be nutritionally deficient.

It is obviously your choice to go ahead with this gluten challenge. But it will likely result in negative tests, even if you keep feeding him gluten for several months. Still, the tests will mean nothing if negative. They are notoriously unreliable in children under six to begin with, and in a child who didn't have gluten for as long as your son they will probably be completely useless.

But the doctor will look at those tests and declare your son 'healed' of celiac disease or gluten intolerance, and will tell you that he can eat gluten now.

Too many people on this forum had that happen to them. Only to get seriously ill in their adult years, and ending up having other autoimmune diseases triggered by the gluten they consumed.

You don't outgrow a gluten intolerance. Your son had severe reactions to gluten as a baby. When removing the offending food, often the symptoms will be different when reintroduced and many times are not recognized as symptoms at all.

ShayFL Enthusiast
ShayFL
Posted

I just met a woman at my Celiac support group a few weeks back that was Dx as an infant, but "cured" when she was about 8 or so. Fast forward to 35 and she now has complete numbness in her hands and feet that have not responded to 2 years gluten free, B12, thyroid meds, etc. And she now has auto-immune disease (thyroid) and lost 10 years of her life with severe symptoms (D, pain, bloating,etc.) that doctors couldnt figure out......She is Celiac and has been since a baby. She didnt outgrow it......

purple Community Regular
purple
Posted
I just met a woman at my Celiac support group a few weeks back that was Dx as an infant, but "cured" when she was about 8 or so. Fast forward to 35 and she now has complete numbness in her hands and feet that have not responded to 2 years gluten free, B12, thyroid meds, etc. And she now has auto-immune disease (thyroid) and lost 10 years of her life with severe symptoms (D, pain, bloating,etc.) that doctors couldnt figure out......She is Celiac and has been since a baby. She didnt outgrow it......

I am glad you posted this. My friend has many of the symptoms of celiac but has never been tested. Endometriosis, hysterectomy, other stomache troubles, surgeries....lots more...for at least 15 years. Her last surgery was on her thyroid. I can't remember if they removed some of it or what exactly. I keep telling her to get checked. I have been studying it on this forum for only 4 months to learn all the symptoms. About 12 years ago she had multiple surgeries on her gut but they couldn't figure it out. She had to fly to another town to see a specialist. Then they removed something else and now she can eat again. She still has celiac symptoms though. Not one doc has said to check her for celiac..hmmm. Her latest problem is a shooting pain down her leg.

She is only 38. What a terrible thing to go through that doesn't have to happen if only the docs could figure it out. I took my 19 year old to an osteopath and he knew on the first visit.

This forum is such a blessing to everyone!!! Thanks to all for all your input!!!

gfp Enthusiast
gfp
Posted

What Ursa said ....

and like Shay said ... you can 'lose' lots of good years and get complications ... which is a big risk.

all this vs just not eating gluten ....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Oliverg
      - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar. 2 hours later I was throwing up violently on my hands and knees over the loo. .horrendous stomach pains, My hair was wet fro...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

      Yes, do take your B Complex with Benfotiamine or Thiamax. Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day. Taking them too close to bedtime can keep you too energetic to go to sleep. The Life Extension Benfotiamine with Thiamine is Benfotiamine and...
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state...
    4. olivia11
      - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    5. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent. People of Mediterranean descent have HLA DQ 7. People of Asian descent have HLA DQ 9. There's other Indigenous populations that have other HLA genes that code for Celiac disease. Are you still having symptoms? What do...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,763
    • Most Online (within 30 mins)
      7,748
    Dwestervelt
    Newest Member
    Dwestervelt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Oliverg
      Glutened

      By Oliverg · Posted

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      suggest gluten free food

      By olivia11 · Posted

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.