Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

City Of Pittsburgh

kimetime

Recommended Posts

kimetime Newbie
kimetime
Posted

Would anyone in the Pittsburgh area like to get together? I'm a female in my 20's. I work in healthcare and go to the University of Pittsburgh. I have some great friends who are Celiac supportive, but I think it would be nice to have dinner with a fellow gluten-free friend. Or get coffee and sneak in with something yummy from Gluuteny.

I had an extra part-time job in a pharmacy earlier this year, and 4 ( ! ) of my co-workers were gluten-free. . . so I know you're out there!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Hi

I want to invite you to our gluten free group that meets in Butler Pa monthly. We have all age groups that attend. Many come from hours away to attend & many are from the Pgh area. Everyone has a great time & learn the latest info available, the cream of the crop in gluten-free & gluten-free items for sale at each meeting. Every other month we try to have a guest speaker. For Sept we will have Roben Ryberg, cookbook author.

If you would like more info please send me a pm for details.

blessings

mamaw

Laura12 Newbie
Laura12
Posted
Hi

I want to invite you to our gluten free group that meets in Butler Pa monthly. We have all age groups that attend. Many come from hours away to attend & many are from the Pgh area. Everyone has a great time & learn the latest info available, the cream of the crop in gluten-free & gluten-free items for sale at each meeting. Every other month we try to have a guest speaker. For Sept we will have Roben Ryberg, cookbook author.

If you would like more info please send me a pm for details.

blessings

mamaw

I recently saw your post and would like to know when and where you meet. I am 27, I was diagnosed 3 years ago and I am from the south hills in Pgh.

  • 3 weeks later...
wrachelle Newbie
wrachelle
Posted

im 17 and i was diagnosed with celiac at the end of june. ive been looking for a support group. is yours for teens? or just adults?

  • 2 months later...
yeeeeeeha Newbie
yeeeeeeha
Posted

I work in downtown. Are you ever there to possibly have lunch?

mamaw Community Regular
mamaw
Posted

Hello

The group in Butler Pa is meeting Nov. 6, 08 at 7:00 pm sharp. North Street Christian Church,220 w. North st, Butler, Pa 16002.

The meeting is open to anyone who follows the gluten-free lifestyle or who is seeking info on a gluten-free lifestyle. All ages attend. Not everyone has celiacs, some have autism in the family , some gluten intolerant, some for other reasons....

We are available to help newbies learn to navigate through the gluten-free world.

If you would like to attend & want directions & such please send me a pm with your question.........

All is welcomed.

mamaw

rmmadden Contributor
rmmadden
Posted

I don't live in Pittsburgh but, I travel to the area every 2-weeks to check on the progress of the Benedum Hall project on the Univ. of Pitt campus. I am wondering what celiac friendly restaurants (if any) might be in the area? A little local insight would be most welcome. As it stands now I have been traveling with a home-packed lunch and I eat while on-the-road. If a place exists close by Benedum I would welcome the chance to sit down and have lunch with you to share some celiac war-stories.

Cleveland Bob B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Hi Bob

I was hoping someone could give you some input on where to eat. I'm 35 miles north of Pittsburgh & I'm not in that area very often so I can't help. I know of places in Cranberry Twp .

There is a Whole Foods & a Trader Joe's not to far away. Wf is on Centre & TJ'S is on Penn.

Sorry !

mamaw

Oh, have you eaten at Tommy's in Strongsville? I heard it was good. I go over to Cleveland about twice a year. Anything else good besides PF Chang's ? thanks

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I work downtown, at Heinz Hall (1 block from the Benedum)! There is a Qdoba around the corner where the manager is VERY celiac-savvy--his wife has celiac! Practically everything there is safe, as long as you avoid the tortillas and a couple of other things, and he knows to change gloves, use a clean work surface, etc.

Their "Naked Burritos" are AMAZING.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Soergel's in Wexford (on Brandt School Road off 910) will be opening up a completely gluten-free store on their farm. They've expanded their gluten-free section of the store, and they carry lots of good things!

  • 2 weeks later...
ashylu929 Newbie
ashylu929
Posted
Would anyone in the Pittsburgh area like to get together? I'm a female in my 20's. I work in healthcare and go to the University of Pittsburgh. I have some great friends who are Celiac supportive, but I think it would be nice to have dinner with a fellow gluten-free friend. Or get coffee and sneak in with something yummy from Gluuteny.

I had an extra part-time job in a pharmacy earlier this year, and 4 ( ! ) of my co-workers were gluten-free. . . so I know you're out there!

Hi!! I am a PITT graduate & IUP grad student...live in the South Hills area. Get in touch if you'd like :)

ashylu929 Newbie
ashylu929
Posted
I recently saw your post and would like to know when and where you meet. I am 27, I was diagnosed 3 years ago and I am from the south hills in Pgh.

Hi Laura I am newly diagnosed, 25, and from the South Hills also B)

kimetime Newbie
kimetime
Posted
  • Author
I work downtown, at Heinz Hall (1 block from the Benedum)! There is a Qdoba around the corner where the manager is VERY celiac-savvy--his wife has celiac! Practically everything there is safe, as long as you avoid the tortillas and a couple of other things, and he knows to change gloves, use a clean work surface, etc.

Their "Naked Burritos" are AMAZING.

Qdoba is a lifesaver. I think I end up there at least once a week when I'm out of the house for 13 hours and am too disorganized to bring any food with me. If only I could remember to keep gluten-free soy sauce with me, I could mix it up with some sushi!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

You could keep a bottle of gluten-free soy sauce at work, if you work downtown--soy sauce doesn't need refrigeration. :)

There is also a company (Kari-out) who makes little individual packets of gluten-free soy sauce, marketed as "Panda brand." Their website is www.kariout.com, and you can also order them from www.allergygrocer.com

Andy's Sushi, located just inside Wholey's fish market in the Strip, is the BEST sushi in the city. It's about a 15-minute walk from Qdoba.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,567
    • Most Online (within 30 mins)
      7,748
    Trish-e
    Newest Member
    Trish-e
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Cat M
      Weakly positive DGP IgA

      By Cat M · Posted

      Ah ok, I just saw didn’t even post the DGP IgA at all. 😫 I started with itching and hives Jan 2024, been taking a ton of meds and on Xolair and even that is not providing total relief. The other primary symptoms: intermittent but worsening abdominal pain, diarrhea and bloating. This summer I am just exhausted. I uploaded my 23andMe data to genetic lifehacks and discovered quite a few variations, including DQ2, MTHFR, VDR and I have always had very low ferritin, vitamin D and B12. I still think that mast cell disease makes the most sense, but latest labs show I am barely in range for thiamine, zinc and vitamin A, so the GI stuff feels more important to figure out than the hives right now. I did SIBO testing this morning. TTG IGA <2   0-3 is negative TTG IGG  3   0-5 is neg DGP IGA 21    20-30 is weak positive DGP IGG 4    0-19 is negative Although total IGA is not resulted, there is a footnote stating it was low and the reason they ran IGG.  
    • Scott Adams
      Positive TTG antibody and negative EMA antibody

      By Scott Adams · Posted

      This is an interesting case. A positive tissue transglutaminase (tTG) antibody with a negative endomysial antibody (EMA) and normal duodenal histology can present a diagnostic challenge, especially in an asymptomatic patient. While the absence of villous atrophy and negative EMA suggest that the likelihood of active celiac disease is low at this time, such serological discordance may still warrant monitoring. Some individuals may be in the early stages of celiac disease, often referred to as potential celiac disease, particularly if they carry the HLA-DQ2 or DQ8 haplotypes. HLA typing can be quite helpful in this situation; a negative result would virtually rule out celiac disease, whereas a positive result may justify periodic follow-up to monitor for evolving disease. The risk of progression to overt celiac disease is not well defined but appears to be higher in children, those with a family history, or those with autoimmune conditions. In this case, routine follow-up including repeat serology and consideration of symptoms or new risk factors over time would be a reasonable and cautious approach. For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
    • Scott Adams
      Old to diagnosis

      By Scott Adams · Posted

      Have you tried to start a gluten-free diet since your diagnosis in 2019?
    • trents
      Positive TTG antibody and negative EMA antibody

      By trents · Posted

      Welcome to celiac.com, @Wamedh Taj-Aldeen! Just curious, what is your relationship to the patient? Are you the attending physician? A medical student? A consulted physician? Was a total IGA test ordered? Some physicians are under the dated and mistaken impression that such is only necessary in young children. If total IGA is low, other IGA antibody numbers will be artificially depressed. By the way, it is not unusual to have a positive TTG-IGA and a negative EMA. Are the TTG-IGA numbers borderline high or unequivocally high? There are other diseases and medical conditions that can cause elevated TTG-IGA numbers besides celiac disease but when this is the case, the numbers are usually not dramatically elevated. It can also be the case that villous damage was patchy and affected areas were missed during the biopsy. Or, onset of celiac disease was very recent and villous atrophy has not yet progressed to the point of detectability.  We also have occasional anecdotal reports in this online community of positive antibody testing with negative histology, as you report. But we also know that gluten intolerance can manifest itself apart from enteropathy. It can damage other organ systems. Many celiacs are of the "silent" type, meaning there is an absence or a relative absence of symptoms until the disease has become advanced and there is significant damage to the villous lining or other organ systems. But to answer your questions: 1. I would definitely pursue a routine follow-up and recheck of the antibodies. And, I would order a complete celiac panel including total IGA and IGG stuff in say, six months. Sooner if symptoms manifest. 2. It is impossible to say what is the risk of the future development of over celiac disease. I refer you back to my #1 above concerning rechecking.  3. I would definitely pursue HLA DQ2/DQ8 typing as it can be used as a rule out for celiac disease, though not quite with 100% dependability. I hope my thoughts prove helpful to you.
    • trents
      Old to diagnosis

      By trents · Posted

      Welcome to the forum, @dominiqueccms! Unfortunately, your story is all too common. Some older physicians are dismissive when it comes to gluten intolerance disorders and have this attitude like, "It's the latest fad disease." My advice to you is to get another doctor who has more current knowledge in this area and will take this seriously. In the meantime, this might be helpful: In six months to a year you would do well to get your antibody numbers rechecked to see if you are succeeding in your efforts to eat gluten free. Do you have the numbers from the original testing?
×
×
  • Create New...