Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

City Of Pittsburgh


kimetime

Recommended Posts

kimetime Newbie

Would anyone in the Pittsburgh area like to get together? I'm a female in my 20's. I work in healthcare and go to the University of Pittsburgh. I have some great friends who are Celiac supportive, but I think it would be nice to have dinner with a fellow gluten-free friend. Or get coffee and sneak in with something yummy from Gluuteny.

I had an extra part-time job in a pharmacy earlier this year, and 4 ( ! ) of my co-workers were gluten-free. . . so I know you're out there!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Hi

I want to invite you to our gluten free group that meets in Butler Pa monthly. We have all age groups that attend. Many come from hours away to attend & many are from the Pgh area. Everyone has a great time & learn the latest info available, the cream of the crop in gluten-free & gluten-free items for sale at each meeting. Every other month we try to have a guest speaker. For Sept we will have Roben Ryberg, cookbook author.

If you would like more info please send me a pm for details.

blessings

mamaw

Laura12 Newbie
Hi

I want to invite you to our gluten free group that meets in Butler Pa monthly. We have all age groups that attend. Many come from hours away to attend & many are from the Pgh area. Everyone has a great time & learn the latest info available, the cream of the crop in gluten-free & gluten-free items for sale at each meeting. Every other month we try to have a guest speaker. For Sept we will have Roben Ryberg, cookbook author.

If you would like more info please send me a pm for details.

blessings

mamaw

I recently saw your post and would like to know when and where you meet. I am 27, I was diagnosed 3 years ago and I am from the south hills in Pgh.

  • 3 weeks later...
wrachelle Newbie

im 17 and i was diagnosed with celiac at the end of june. ive been looking for a support group. is yours for teens? or just adults?

  • 2 months later...
yeeeeeeha Newbie

I work in downtown. Are you ever there to possibly have lunch?

mamaw Community Regular

Hello

The group in Butler Pa is meeting Nov. 6, 08 at 7:00 pm sharp. North Street Christian Church,220 w. North st, Butler, Pa 16002.

The meeting is open to anyone who follows the gluten-free lifestyle or who is seeking info on a gluten-free lifestyle. All ages attend. Not everyone has celiacs, some have autism in the family , some gluten intolerant, some for other reasons....

We are available to help newbies learn to navigate through the gluten-free world.

If you would like to attend & want directions & such please send me a pm with your question.........

All is welcomed.

mamaw

rmmadden Contributor

I don't live in Pittsburgh but, I travel to the area every 2-weeks to check on the progress of the Benedum Hall project on the Univ. of Pitt campus. I am wondering what celiac friendly restaurants (if any) might be in the area? A little local insight would be most welcome. As it stands now I have been traveling with a home-packed lunch and I eat while on-the-road. If a place exists close by Benedum I would welcome the chance to sit down and have lunch with you to share some celiac war-stories.

Cleveland Bob B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Hi Bob

I was hoping someone could give you some input on where to eat. I'm 35 miles north of Pittsburgh & I'm not in that area very often so I can't help. I know of places in Cranberry Twp .

There is a Whole Foods & a Trader Joe's not to far away. Wf is on Centre & TJ'S is on Penn.

Sorry !

mamaw

Oh, have you eaten at Tommy's in Strongsville? I heard it was good. I go over to Cleveland about twice a year. Anything else good besides PF Chang's ? thanks

Fiddle-Faddle Community Regular

I work downtown, at Heinz Hall (1 block from the Benedum)! There is a Qdoba around the corner where the manager is VERY celiac-savvy--his wife has celiac! Practically everything there is safe, as long as you avoid the tortillas and a couple of other things, and he knows to change gloves, use a clean work surface, etc.

Their "Naked Burritos" are AMAZING.

Fiddle-Faddle Community Regular

Soergel's in Wexford (on Brandt School Road off 910) will be opening up a completely gluten-free store on their farm. They've expanded their gluten-free section of the store, and they carry lots of good things!

  • 2 weeks later...
ashylu929 Newbie
Would anyone in the Pittsburgh area like to get together? I'm a female in my 20's. I work in healthcare and go to the University of Pittsburgh. I have some great friends who are Celiac supportive, but I think it would be nice to have dinner with a fellow gluten-free friend. Or get coffee and sneak in with something yummy from Gluuteny.

I had an extra part-time job in a pharmacy earlier this year, and 4 ( ! ) of my co-workers were gluten-free. . . so I know you're out there!

Hi!! I am a PITT graduate & IUP grad student...live in the South Hills area. Get in touch if you'd like :)

ashylu929 Newbie
I recently saw your post and would like to know when and where you meet. I am 27, I was diagnosed 3 years ago and I am from the south hills in Pgh.

Hi Laura I am newly diagnosed, 25, and from the South Hills also B)

kimetime Newbie
I work downtown, at Heinz Hall (1 block from the Benedum)! There is a Qdoba around the corner where the manager is VERY celiac-savvy--his wife has celiac! Practically everything there is safe, as long as you avoid the tortillas and a couple of other things, and he knows to change gloves, use a clean work surface, etc.

Their "Naked Burritos" are AMAZING.

Qdoba is a lifesaver. I think I end up there at least once a week when I'm out of the house for 13 hours and am too disorganized to bring any food with me. If only I could remember to keep gluten-free soy sauce with me, I could mix it up with some sushi!

Fiddle-Faddle Community Regular

You could keep a bottle of gluten-free soy sauce at work, if you work downtown--soy sauce doesn't need refrigeration. :)

There is also a company (Kari-out) who makes little individual packets of gluten-free soy sauce, marketed as "Panda brand." Their website is www.kariout.com, and you can also order them from www.allergygrocer.com

Andy's Sushi, located just inside Wholey's fish market in the Strip, is the BEST sushi in the city. It's about a 15-minute walk from Qdoba.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

    2. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Have I got coeliac disease

    3. - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

    4. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

    5. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,151
    • Most Online (within 30 mins)
      7,748

    Nici
    Newest Member
    Nici
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
    • JudyLou
      Oops! @Staticgypsy, I’ll get the book! Thank you! 
    • JudyLou
      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.