Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Sensitivity And Older Children


slmprofesseur

Recommended Posts

slmprofesseur Apprentice

Hello! First off, I would like to say that you all are wonderful. I wish I had come here when my baby was diagnosed with his wheat allergy. Now I am convinced gluten is causing slight ADHD problems and neurological ones in my older son. I doubt if any doctor here will ever listen to me. But... he has a checkup scheduled for next week. I was wondering how do I approach the gluten testing with the P.A. (who is very understanding-and encouraging!)

I am fine with not having a diagnosis. There's too much heart disease, cancer, thyroid, lupus etc. in my family for me to wait for a diagnosis. I like feeling energized, and want the same for my children. However, since my son goes to a public school I would like to have an official diagnosis on file for his protection.

We went gluten free for a week and I noticed a dramatic improvement. He was able to listen and comprehend the first time you tell him something. he wasn't tired and he was easy to get along with. Now the problem comes in with my husband. he won't go gluten free and has pizza, doughnuts, etc. My son couldn't resist these items and we're back to poor motor skills, brain fog, lethargic. Another improvement on the Gluten-free diet- he wasn't hungry all the time.

Will they be unlikely to do the blood test on him because I don't have an official diagnosis? Or would I be better off with the allergist?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gdobson Explorer

I got my son's doctor to really listen when I kept a food diary complete with how he acted every day. It showed the difference between being gluten free and what happened when he had a small amount or accidental gluten. He gave me a "clinical" diagnosis that day for the sake of school, and then referred us to a specialist.

Not sure what to say as to how to avoid gluten-licious treats at home. Our house is gluten free, and my son knows how bad he feels when he eats something he shouldn't, so he never cheats.

Good luck!

Gina

slmprofesseur Apprentice
I got my son's doctor to really listen when I kept a food diary complete with how he acted every day. It showed the difference between being gluten free and what happened when he had a small amount or accidental gluten. He gave me a "clinical" diagnosis that day for the sake of school, and then referred us to a specialist.

Not sure what to say as to how to avoid gluten-licious treats at home. Our house is gluten free, and my son knows how bad he feels when he eats something he shouldn't, so he never cheats.

Good luck!

Gina

Thanks! I will try the food diary.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,097
    • Most Online (within 30 mins)
      7,748

    Ann Den
    Newest Member
    Ann Den
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
    • trents
      Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease.
    • rei.b
      Hello, I am feeling frustrated. I have hEDS and lifelong digestive issues but my GI PA is very focused on my celiac panel and I just want to make sure that she should be focused on that because completely changing my diet seems to have worsened my symptoms.  Symptoms are constipation, diarrhea, and acid reflux with spicy foods and certain foods like tomatoes, bell peppers, and onions. I also don't have a gallbaldder as it was removed almost a year ago. This also exacerbated my symptoms. I did have joint pain from hEDS but that was already treated with low dose naltrexone about 4 months prior to going completely gluten free. Endoscopy was abnormal but inconclusive; basically showed some inflammation - which common with hEDS. I don't have any vitamin deficiency.   Celiac Panel Results: TTG-A <0.5 U/ML Reference Range: 0.5-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-A 72.0 U/ML Reference Range: 0.2-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 TTG-G <0.8 U/ML Reference Range: 0.8-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-G 24.0 U/ML Reference Range: 0.4-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 IgG-A-M Results: IMMUNOGLOBULIN A, QN, SERUM 165 MG/DL Reference Range: 87-352 MG/DL IMMUNOGLOBULIN M, QN, SERUM 164 MG/DL Reference Range: 26-217 MG/DL   What are your thoughts, internet? Are there any questions I should be asking the PA? Thanks!
    • Roses8721
      Help. I’m spiraling. Years of extensive symptoms:  What could this be? Years of: Mildly elevated alk and alt Fatty liver Random days of feeling like I’m coming down w flu but no fever and nobody else in house sick Intermittent diarrhea Severe abdominal distension Long history of cavities and enamel deficiency Sound sensitivity Anxiety and depression Low libido Sun skin allergy Frequent fatigue ended up seeing PCP because I looked 8 mo preg. Started gluten-free diet then celiac serology negative. SW GI Dr dx me w celiac as I had been in bed for 3 days after eating gluten after cutting. GI said not to do biopsy because it was clear what was going on and added to chart. My spiral is not seeing anywhere this is done and want to see if anyone else has dealt w this. If not celiac idk what else I will do. Family history or celiac as well as a death related to this. 
    • miguel54b
      I get canker sores one hour after eating Oats, and pimples in my butt. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.