Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Sensitivity And Older Children


slmprofesseur

Recommended Posts

slmprofesseur Apprentice

Hello! First off, I would like to say that you all are wonderful. I wish I had come here when my baby was diagnosed with his wheat allergy. Now I am convinced gluten is causing slight ADHD problems and neurological ones in my older son. I doubt if any doctor here will ever listen to me. But... he has a checkup scheduled for next week. I was wondering how do I approach the gluten testing with the P.A. (who is very understanding-and encouraging!)

I am fine with not having a diagnosis. There's too much heart disease, cancer, thyroid, lupus etc. in my family for me to wait for a diagnosis. I like feeling energized, and want the same for my children. However, since my son goes to a public school I would like to have an official diagnosis on file for his protection.

We went gluten free for a week and I noticed a dramatic improvement. He was able to listen and comprehend the first time you tell him something. he wasn't tired and he was easy to get along with. Now the problem comes in with my husband. he won't go gluten free and has pizza, doughnuts, etc. My son couldn't resist these items and we're back to poor motor skills, brain fog, lethargic. Another improvement on the Gluten-free diet- he wasn't hungry all the time.

Will they be unlikely to do the blood test on him because I don't have an official diagnosis? Or would I be better off with the allergist?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gdobson Explorer

I got my son's doctor to really listen when I kept a food diary complete with how he acted every day. It showed the difference between being gluten free and what happened when he had a small amount or accidental gluten. He gave me a "clinical" diagnosis that day for the sake of school, and then referred us to a specialist.

Not sure what to say as to how to avoid gluten-licious treats at home. Our house is gluten free, and my son knows how bad he feels when he eats something he shouldn't, so he never cheats.

Good luck!

Gina

slmprofesseur Apprentice
I got my son's doctor to really listen when I kept a food diary complete with how he acted every day. It showed the difference between being gluten free and what happened when he had a small amount or accidental gluten. He gave me a "clinical" diagnosis that day for the sake of school, and then referred us to a specialist.

Not sure what to say as to how to avoid gluten-licious treats at home. Our house is gluten free, and my son knows how bad he feels when he eats something he shouldn't, so he never cheats.

Good luck!

Gina

Thanks! I will try the food diary.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Second chance

    2. - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
      13

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    3. - Scott Adams replied to JamieAnn's topic in Gluten-Free Restaurants
      2

      Jersey Mike’s option: Gluten-free bread

    4. - cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants
      13

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,521
    • Most Online (within 30 mins)
      7,748

    CA1
    Newest Member
    CA1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Hello, I'm I crazy, nieve, or atomistic? I reached out to my former pcp of 25 years on the medical app today.Reading on the National Library of Medicine 75.6  physicians don't know celiac disease.To be fair he is primary and with the lack of knowledge, I did reach out because he was my Dr for 25 years.I do prefer his app than the one I currently have that was ignite of the disability celiac circus name chaser thanks to the one that  I currently have Since May 31, 2025 to present.
    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.