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Gluten Sensitivity And Older Children

slmprofesseur

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slmprofesseur Apprentice
slmprofesseur
Posted

Hello! First off, I would like to say that you all are wonderful. I wish I had come here when my baby was diagnosed with his wheat allergy. Now I am convinced gluten is causing slight ADHD problems and neurological ones in my older son. I doubt if any doctor here will ever listen to me. But... he has a checkup scheduled for next week. I was wondering how do I approach the gluten testing with the P.A. (who is very understanding-and encouraging!)

I am fine with not having a diagnosis. There's too much heart disease, cancer, thyroid, lupus etc. in my family for me to wait for a diagnosis. I like feeling energized, and want the same for my children. However, since my son goes to a public school I would like to have an official diagnosis on file for his protection.

We went gluten free for a week and I noticed a dramatic improvement. He was able to listen and comprehend the first time you tell him something. he wasn't tired and he was easy to get along with. Now the problem comes in with my husband. he won't go gluten free and has pizza, doughnuts, etc. My son couldn't resist these items and we're back to poor motor skills, brain fog, lethargic. Another improvement on the Gluten-free diet- he wasn't hungry all the time.

Will they be unlikely to do the blood test on him because I don't have an official diagnosis? Or would I be better off with the allergist?

Thanks!

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gdobson Explorer
gdobson
Posted

I got my son's doctor to really listen when I kept a food diary complete with how he acted every day. It showed the difference between being gluten free and what happened when he had a small amount or accidental gluten. He gave me a "clinical" diagnosis that day for the sake of school, and then referred us to a specialist.

Not sure what to say as to how to avoid gluten-licious treats at home. Our house is gluten free, and my son knows how bad he feels when he eats something he shouldn't, so he never cheats.

Good luck!

Gina

slmprofesseur Apprentice
slmprofesseur
Posted
  • Author
I got my son's doctor to really listen when I kept a food diary complete with how he acted every day. It showed the difference between being gluten free and what happened when he had a small amount or accidental gluten. He gave me a "clinical" diagnosis that day for the sake of school, and then referred us to a specialist.

Not sure what to say as to how to avoid gluten-licious treats at home. Our house is gluten free, and my son knows how bad he feels when he eats something he shouldn't, so he never cheats.

Good luck!

Gina

Thanks! I will try the food diary.

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
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      celiac, chocolate and alcohol

      By barb simkin · Posted

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

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    • barb simkin
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      By barb simkin · Posted

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      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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