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Gluten Sensitivity And Older Children

slmprofesseur

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slmprofesseur Apprentice
slmprofesseur
Posted

Hello! First off, I would like to say that you all are wonderful. I wish I had come here when my baby was diagnosed with his wheat allergy. Now I am convinced gluten is causing slight ADHD problems and neurological ones in my older son. I doubt if any doctor here will ever listen to me. But... he has a checkup scheduled for next week. I was wondering how do I approach the gluten testing with the P.A. (who is very understanding-and encouraging!)

I am fine with not having a diagnosis. There's too much heart disease, cancer, thyroid, lupus etc. in my family for me to wait for a diagnosis. I like feeling energized, and want the same for my children. However, since my son goes to a public school I would like to have an official diagnosis on file for his protection.

We went gluten free for a week and I noticed a dramatic improvement. He was able to listen and comprehend the first time you tell him something. he wasn't tired and he was easy to get along with. Now the problem comes in with my husband. he won't go gluten free and has pizza, doughnuts, etc. My son couldn't resist these items and we're back to poor motor skills, brain fog, lethargic. Another improvement on the Gluten-free diet- he wasn't hungry all the time.

Will they be unlikely to do the blood test on him because I don't have an official diagnosis? Or would I be better off with the allergist?

Thanks!

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gdobson Explorer
gdobson
Posted

I got my son's doctor to really listen when I kept a food diary complete with how he acted every day. It showed the difference between being gluten free and what happened when he had a small amount or accidental gluten. He gave me a "clinical" diagnosis that day for the sake of school, and then referred us to a specialist.

Not sure what to say as to how to avoid gluten-licious treats at home. Our house is gluten free, and my son knows how bad he feels when he eats something he shouldn't, so he never cheats.

Good luck!

Gina

slmprofesseur Apprentice
slmprofesseur
Posted
  • Author
I got my son's doctor to really listen when I kept a food diary complete with how he acted every day. It showed the difference between being gluten free and what happened when he had a small amount or accidental gluten. He gave me a "clinical" diagnosis that day for the sake of school, and then referred us to a specialist.

Not sure what to say as to how to avoid gluten-licious treats at home. Our house is gluten free, and my son knows how bad he feels when he eats something he shouldn't, so he never cheats.

Good luck!

Gina

Thanks! I will try the food diary.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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