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- Scott Adams replied to petitojou's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease4How long does it take to gain weight?
First, it's fantastic news that your diarrhea has resolved after a month—that is a huge and critical sign of healing, confirming that the gluten-free diet is starting to work. While it feels slow, this stabilization of your digestive system is the essential foundation upon which weight gain is built. Given the severity of your weight loss, dropping from 5... -
- knitty kitty replied to petitojou's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease4How long does it take to gain weight?
Yes, I agree, most doctors miss the subtleties of Celiac disease. The AIP diet was designed by a doctor who has Celiac herself, Dr. Sarah Ballantyne. Her book The Paleo Approach is most helpful. The AIP diet eliminates all grains and other pseudo grains like rice,corn and quinoa because they can be irritating to the digestive track. It eliminates... -
- trents replied to petitojou's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3Frequent nausea after gluten-free diet
Let me suggest some possibilities for your nausea/heart burn besides gluten cross contamination that are common in the celiac community: 1. You may have other food intolerances. This is exceedingly common in the celiac community. The two most common food offenders are oats and dairy products. Eggs, corn and soy are also on that list. But it can be almost... -
- petitojou replied to petitojou's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease4How long does it take to gain weight?
Hi! Thank you so much! This was truly helpful. Most doctors I went to were absolutely uninformed and unprepared to treat a celiac patient. I will check for all the things you shared and focus on healing first! Really really thank you! Have a blessed day.- 1
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- petitojou replied to petitojou's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
Frequent nausea after gluten-free diet
Hi! Thank you Of course! I still live with my family; there used to be six of us, and now there are four. I rarely leave the house or eat out. Although my mother has also been diagnosed with celiac disease, she does not follow the same precautions as I do. I use separate kitchen utensils (different spatulas, pans, dish towels, plates, toaster - almost...- 1
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By Scott Adams · Posted
First, it's fantastic news that your diarrhea has resolved after a month—that is a huge and critical sign of healing, confirming that the gluten-free diet is starting to work. While it feels slow, this stabilization of your digestive system is the essential foundation upon which weight gain is built. Given the severity of your weight loss, dropping from 50kg to 35kg, it is very normal for the body to need a significant amount of time to recover. The fact that your vitamin levels are stable is a positive sign that your body is now absorbing nutrients, which is the first step. Many people in the Celiac community report that noticeable, consistent weight gain often doesn't begin until several months after their digestive symptoms have fully settled, as the intestines need that time to repair the villi responsible for absorption. It sounds like you are doing everything right by working with your specialists and ruling out other issues like thyroid complications, which, despite the fluctuating TSH, your doctors have confirmed are not a primary concern. Please be gentle with yourself; your body has been through a major trauma. The lack of strength you feel is a direct result of such a low body weight, and as you slowly and consistently nourish yourself with safe, calorie-dense gluten-free foods, that strength will return. Stay the course with your optimism and consistency—you are on the right path, and a healthier figure is absolutely ahead. Are you taking vitamin and mineral supplements? The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. -
By knitty kitty · Posted
Yes, I agree, most doctors miss the subtleties of Celiac disease. The AIP diet was designed by a doctor who has Celiac herself, Dr. Sarah Ballantyne. Her book The Paleo Approach is most helpful. The AIP diet eliminates all grains and other pseudo grains like rice,corn and quinoa because they can be irritating to the digestive track. It eliminates processed gluten-free foods. These processed foods are not enriched with vitamins and minerals like their gluten containing counterparts are. They are usually full of saturated fats and excess fiber, not something healthy one would choose to eat anyway. Stick with meat and veggies and some low histamine fruits. Supplement with Benfotiamine and a B Complex to ensure your body has an opportunity to absorb these essential nutrients. You have a blessed day, too, sweetie. -
Let me suggest some possibilities for your nausea/heart burn besides gluten cross contamination that are common in the celiac community: 1. You may have other food intolerances. This is exceedingly common in the celiac community. The two most common food offenders are oats and dairy products. Eggs, corn and soy are also on that list. But it can be almost anything. You might start with eliminating oats and dairy for a few weeks and see if there is improvemen.t 2. You may have MCAS (Mast Cell Activation Syndrome)-histamine intolerance: you should research this. 3. You may have SIBO (Small Intestine Bacterial Overgrowth) 4. You may have an H. Pylori infection or a Candida yeast infection Unfortunately, celiac disease often brings along its friends. Often it generates other health issues by the time we ever get it diagnosed such that going gluten-free is not the only answer to the problem. We can be over simplistic and naive about it in this since.
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Hi! Thank you so much! This was truly helpful. Most doctors I went to were absolutely uninformed and unprepared to treat a celiac patient. I will check for all the things you shared and focus on healing first! Really really thank you! Have a blessed day.
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Hi! Thank you Of course! I still live with my family; there used to be six of us, and now there are four. I rarely leave the house or eat out. Although my mother has also been diagnosed with celiac disease, she does not follow the same precautions as I do. I use separate kitchen utensils (different spatulas, pans, dish towels, plates, toaster - almost everything since I’m highly sensitive), and my food is kept separate in the kitchen. The other two people who live with us consume gluten daily, but unfortunately they are not careful. Although we frequently clean the kitchen surfaces and other utensils (such as the microwave, towels, and tables), because they consume gluten constantly, there are always gluten crumbs everywhere! And more complicated contaminations have happened before. I try to eat separately in my room to avoid it as much as possible, but even on days when I am sure there has been no contamination, I feel nauseous (sometimes I feel like just the smell is enough for it). Does the food inside the fridge should also be separated and in its own shelf? I think that might be the problem too. I really wanted to leave my home to live a more peaceful and less stressful life in terms of cross-contamination, since the people around me are not careful, but given my current circumstances, it is impossible… so I’ve been trying to deal with it calmly?
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