Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diary And Soy Questions


gdub16

Recommended Posts

gdub16 Newbie

When I was tested for Celiac I also did a lactose intorrlent blow test. That came back negative. I have seen posts statiing once you go on gluten free diet you might intially have reaction to diary, is that correct? Stupid quesiton how do you avoid diary? and when people referr to Soy are we just talking about soy sauce or are there a lot of products that include Soy?

Going on about 4 days on gluten-free diet. I noticed a little more irratiability, seem to have more problems sleeping and I am always hungry. I have notice that my head seems to be a little more clearer, although after eating at Chipotle's I feel a little foggy than I have the last couple day's.

Another Random questions, do people typically gain or loose wait on gluten-free diet. My stomach is feeling a little larger and bloated the last couple of days.

I didn't have severe symptoms to glueton so my diagnoses was pretty surprising. I used to eat everything, it feels really strange having to watch everything I eat now. I find myself obsessing over what to eat now, I went to wegmans and got frustrated and came out with only a box of gluten free breakfeast bars, which I might add taste like sh@#.

Another Random questioned. If Celiac's is supposedly hereditary I don't recall my parents having any symptons or issues. Although my mother did die at an early age from Alzheimer's so hard to say on her side of the family

Sorry for rambling but being gluten-free sucks had to start drinking Wine. Plus side is I get drunk a lot quicker on on wine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cruelshoes Enthusiast

Lactose (milk sugar) is initially a problem for many people because the enzyme that breaks it down (lactase) is produced on the tips of the villi. When the villi get blunted from celiac, you are not producing lactase. Many GI doctors recommend that people avoid lactose for the first 6 months or so after diagnosis. I never seemed to have a problem with dairy products, and neither did my son. You can avoid dairy the same way you avoid gluten - by reading labels. The good thing about dairy is that it is considered a top allergen, so it has to be declared on ingredient labels. This is not necessarily true about gluten. Wheat has to be declared, but barley, rye and oats do not.

Soy sensitivity is highly individual. Many people with soy intolerance can tolerate small amounts of things like soy lecithin, but not other soy products. You will have to see if it is a problem for you. You can do this by eliminating all soy products (soy sauce, TVP, soy lecithin, everything) from your diet for a period of time, and then eating something with soy in it to see if you react. Soy is one of the top 8 allergens, so it has to be declared. Some people have problems with soy, but I would not say it is the majority. Soy has never been an issue for me.

Celiac has a genetic basis. General population risks of having it are believed to be around 1:133. First degree relatives (parents, children, siblings) of a celiac have about a 1:22 chance. It would be wise for all your first degree relatives to be tested. Either of your parents could have it, or not have it. The genes for celiac are present in something like 30% of the population. For some people like you and me, the genes get triggered and start the autoimmune response. For many, they never do. Since you say your symptoms are not severe, it may be that your parents had it as well, but were asymptomatic.

PS - there are a bunch of gluten-free beers out there. I don't drink, so I can't vouch for the taste, but I'm sure someone will chime in on that score. :)

Hang in there.

Mango04 Enthusiast

Most processed foods contain soy. If you're worried about being intolerant to soy and dairy, you can make your diet very simple for a while. This will help ease the frustration of grocery shopping as well (you don't have to read labels on fruit, veggies, meats, rice, beans etc.). You'll get the hang of it eventually and you'll figure out what works for you. It just takes some trial and error and involves a bit of a learning curve.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    2. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    3. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

    5. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Annette Hill
    Newest Member
    Annette Hill
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.