Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dangerous Grains


YankeeDB

Recommended Posts

YankeeDB Contributor

I just finished the book "Dangerous Grains" by Hoggan and Braly. I thought it was very well-written, totally fascinating and covered topics I hadn't encountered in other books including the "leaky gut" concept. (I also got a lot out of the chapter on various tests.)

I learned that a "leaky gut" caused by gluten intolerance can allow substances to pass through the intestinal wall directly into the bloodstream where they can travel anywhere in the body and cause mischief. In other words "malabsorption" can mean not only NOT getting nutrients you need but also getting various substances that might be harmful when they are at large in your bloodstream. Perhaps this explains the wide range of symptoms in celiacs--any place blood goes might be "visited" by unwelcome intruders!

The take home message for me is that healing the intestine as quickly as possible to plug up the leaks is all important. I suspect that being super, super strict in the earliest days of recovery would be especially helpful. That is, for 3-6 months restrict the diet to whole foods that are non-gluten-free with NO additives. Then, after the majority of healing has occurred you can branch out into more processed, but still gluten-free, foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lily Rookie

Hi Yankee,

I am on that type of diet per my nutritionists advice and am starting to feel better. I have been on a very strict diet to start out with, but am gradually adding a few things here and there back in to see how I feel. I highly recommend this to anyone - it helps you detox and break it down to see how it feels to feel better before you add anything back in. When you are so sick all the time it's very difficult to cope, but having a strict diet to follow has helped and I'm at the point where I can start adding things back in and it's liberating :).

Lily

  • 8 years later...
new2celiac2k12 Newbie

Yankee, Excellent info on Grains:

Several days ago I tried making spaghetti with Tinkyada brand wheat free / gluten-free brown rice pasta, but it states on the bag, From Whole-Grain, I also made 1.5 lbs of fresh turkey burger, made into 1.5 inch chunks,

but I did use some seasoning, which after a few months of cooking with it seems to have been ok, used garlic, onion, lawry's salts, and some black pepper, then mixed in 1 jar of Classico's Tomato & Basil red sauce, which the company states that all their sauces are 100 percent gluten-free, and it seems I have been reacting to this, I even tried just eating the noodles, but could not tell since I was already reacting.

I thought I've been eating good enough for the past 2 to 3 months as I have been getting better, and getting back to being " Regular " but something is causing me to react again, and I feel as per my testing done by my chiropractors holistic testing, he told me that grains and dairy were my biggest concerns, rather I had a defence to the wheat test, so how do we avoid grains without wheat?

mushroom Proficient

When you are new it usually helps to take a good quality (high in nos. of organisms) gluten free probiotic to promote healing in the gut, and often some digestive enzymes to help break down your food since it is the longer chain (not broken down) amino acids getting through the leaky gut which create the mischief.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.