Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee


trekker

Recommended Posts

trekker Newbie

Just wondering if anybody else has had a problem with coffee. (I drink it black). I've been reacting to something over the last 2 weeks and the only thing I come up with is the (organic french roast) coffee I got (and ground) at Winco. Still not absolutely sure about this since I just quit drinking it. I haven't had a problem with organic coffees elsewhere.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor
Just wondering if anybody else has had a problem with coffee. (I drink it black). I've been reacting to something over the last 2 weeks and the only thing I come up with is the (organic french roast) coffee I got (and ground) at Winco. Still not absolutely sure about this since I just quit drinking it. I haven't had a problem with organic coffees elsewhere.

I would suspect the grinding machine. Who knows what else has been put through it and someone may have ground some gluten-containing flavored beans. :o

angel-jd1 Community Regular

Coffee can sometimes have a laxative effect (even if it is gluten-free). Just something to keep in mind :)

-Jessica :rolleyes:

trekker Newbie
I would suspect the grinding machine. Who knows what else has been put through it and someone may have ground some gluten-containing flavored beans. :o

I thought about that and that may be what happened, but I also did some checking and found the following information I'd like to share. Some companies dust their manufacturing lines with flour to keep the beans rolling along. The gluten from the flour can soak into the oil of the beans. The only hope of knowing for sure is to contact the company, hope they don't subcontract and that they are honest.

Guess I won't be buying coffee from the warehouse-type stores anymore! Never had a problem until this month, and I've been gluten-free for nearly 2 years -drinking coffee for 38 years.

trekker Newbie
Coffee can sometimes have a laxative effect (even if it is gluten-free). Just something to keep in mind :)

-Jessica :rolleyes:

Thanks, but that wasn't the problem.

I did some checking and found the following information I'd like to share. Some companies dust their manufacturing lines with flour to keep the beans rolling along. :( The gluten from the flour can soak into the oil of the beans. The only hope of knowing for sure is to contact the company, hope they don't subcontract and that they are honest.

Guess I won't be buying coffee from the warehouse-type stores anymore! Never had a problem until this month, and I've been gluten-free for nearly 2 years -drinking coffee for 38 years.

Laurad- Apprentice
I did some checking and found the following information I'd like to share. Some companies dust their manufacturing lines with flour to keep the beans rolling along. :( The gluten from the flour can soak into the oil of the beans. The only hope of knowing for sure is to contact the company, hope they don't subcontract and that they are honest.

Wow, I haven't heard that before but it worries me because I LOVE coffee...

Do you know which companies use flour?

darlindeb25 Collaborator

I just bought a can of Columbian Decaf at Walmart, and it states gluten free on the can! I use Folgers, 8 O'Clock, Maxwell House, Mr Coffee, Duncan Donuts, and I buy 7-11 Decaf all the time...never been glutened by regular coffee. Be aware...many flavored coffees do contain gluten, as do many flavored teas.

I too, have been drinking coffee for well over 40 yrs, and it has never been a problem for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MNBeth Explorer
I thought about that and that may be what happened, but I also did some checking and found the following information I'd like to share. Some companies dust their manufacturing lines with flour to keep the beans rolling along. The gluten from the flour can soak into the oil of the beans. The only hope of knowing for sure is to contact the company, hope they don't subcontract and that they are honest.

Guess I won't be buying coffee from the warehouse-type stores anymore! Never had a problem until this month, and I've been gluten-free for nearly 2 years -drinking coffee for 38 years.

I would really appreciate it if you could tell me where you found the information about flour on the manufacturing lines. Do you remember where you found the information?

Thanks!

trekker Newbie
Wow, I haven't heard that before but it worries me because I LOVE coffee...

Do you know which companies use flour?

I don't know what companies use flour. I also can't remember the brand of coffee I bought at Winco (Vancouver, WA), only that it was bulk coffee & organic. Oh yeah, and there's still the possibility that since I ground it there, it was cross contaminated with one of the other coffees. Anyway, next time I go I will try to find out - and then maybe if a bunch of folks request that if they intend to keep on using flour, that they list the coffee as possibly containing gluten!

Needless to say, I try to be very careful what I consume, and read labels Very Carefully. And I will never again buy bulk coffee, unless it's at a gluten-free store. Same goes for store grinding. I'm digging out my dusty old coffee grinder.

Anyway, you are now forewarned <_<

trekker Newbie
I would really appreciate it if you could tell me where you found the information about flour on the manufacturing lines. Do you remember where you found the information?

Thanks!

I googled "gluten in coffee beans", and found that piece of info at WikiAnswers - Is Green Mountain Coffee Roasters gluten free. So while it is not an "official" answer, it is probably true. I intend to do some checking, and ask at a gluten free store, too.

That coffee is the only thing in my life that changed, and I began drinking it about the same time my symptoms started & my symptoms got worse each day while drinking it. (I don't drink that much & only first thing in the morning).

It's only been two days since I totally cleaned out my coffee maker and switched coffee, so I'm symptom free yet, but feeling a little better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.