Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Getting Confused. What Actually Is "gluten"?


utahlaura

Recommended Posts

utahlaura Apprentice

I was reacting to so many different things for a while..even some proteins and some dairy. I fasted for a week ( no kidding!) and began introducting gluten free ( positively) fresh veggies mainly. I did so well that after a time I though.."Huh, maybe it was all in my head, or I had salmonella poisoning or something. lol!

So I did the acid test! I actually ate a hamburger bun. Sure enough there it was. THE REACTION! It wasn't as bad as I had with products like soy sauce or packaged gravy or barbeque sauce back before we figured things out ( my doc and I and a IGA test) With the bun I didn't have the extreme bone/muscle/joint pain or foot pain. I still did get pretty dizzy and weak and ill feeling, but not so horrible as I have had.

I looked at the ingredience of the buns and it listed first " wheat flour-less that 2% wheat gluten" What?? I thought wheat flour was all gluten. 100% gluten! Of course I reacted to it still and wouldn't include it in my diet, of course...but what IS gluten, then? How is it made and why? Is it from a process or extraction? And what does hydogenated or hydrolized even mean? And "modified"...what's up with that?

I'm totally confused now about what gluten actually is. I thank anyone in advance who will take the time to respond and enlighten me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

I think this explains it nicely:

Open Original Shared Link

missy'smom Collaborator

Yes, the gluten component of the wheat can be extracted and used separately as an ingredient. It is something you don't see too often in American products but it is used by itself as a primary ingredient in some asian foods(and is listed as wheat gluten or gluten). The statement on your buns is something I haven't seen. Maybe they're tring to convince us that just a little bit won't hurt. Ha ha. Seriously, for a Celiac, a little bit can cause damage and symptoms. All wheat and ingredients made from it, contains gluten. In Europe, they extracted the starch from the wheat and claim that it is free of gluten but that is a bit controversial.

Beth in NC Contributor

I've just stopped making my own whole wheat bread after getting diagnosed last week. I still have a container of PURE POISON in my freezer that I added to every batch of bread...VITAL WHEAT GLUTEN!!! :o :o

Vital to WHO? Not me anymore!!!! :P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,346
    • Most Online (within 30 mins)
      7,748

    Thomas D Cosgrove
    Newest Member
    Thomas D Cosgrove
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • maryannlove
      Though trying to diligently eat gluten free, recent bloodwork was bad so searching for culprits.  Eat lot of (preferably mixed) nuts.  Most allergen labels say may be processed on equpment that also processes wheat, etc.  Finally found ONE kind (unsalted mixed) at BJ's.  Wessley (their store brand) that did not contain that warning.  Says in large letters "A GLUTEN FREE FOOD."  Well, all nuts are a gluten free FOOD!  Have been eating and now wonder if this is intentionally decieving.  So stopped eating until find culprit.  Nuts are so good for protein and fiber (especially if trying to not eat meat).  'Tis so frustrating.  Thanks to above, I'll look into Tierra Farms.   
    • somethinglikeolivia
      Fascinating! This was very helpful, thanks for sharing
    • maryannlove
      Despite being very diligent about eating gluten free, my recent bloodwork was bad.  So been on a mission to find the culprit(s).  During Covid my daughter found "certified gluten free" Yasso mint chocolate chip yogurt bars at Costco.  I was elated and have been eating them since.  When delving into possible culprits I discovered that the boxes with 12 bars at both Costco and BJ's no longer say "certified gluten free."  But the boxes with 4 bars at groceries and Target still say "certified gluten free."  Contacted the manufacturer and was told to go by what the box says.  So guess different machinery is used.  Was also told they were in the process of changing boxes.  Will be interesting to see what that brings.  
    • maryannlove
      Before I could call them (after all my research), Costco Pharmacy called and told me they found a generic gluten-free levothyroxine.  Was told name is Amneal brand.  Said they called and company  confirmed is gluten free.  Only one I had found was Lannett so did more research and found:  “BRIDGEWATER, N.J., Nov. 12, 2018.  Amneal Pharmaceuticals, Inc. (NYSE: AMRX) today announced that it has completed a transition agreement with Lannett Company. Under the terms of the agreement, Amneal will take over the distribution and marketing of Levothyroxine sodium tablets from Lannett beginning December 1, 2018 through March 23, 2019, ahead of when the Company's previously announced 10-year Levothyroxine distribution agreement with Jerome Stevens begins on March 23, 2019.” So looks like we’re good until at least 6/23/29.  Active ingredients are colloidal silicon dioxide, lactose, magnesium stearate, CORN STARTCH, acacia, sodium startch glycolate. Bottom line:  We can tell our pharmacists we need gluten-free, generic Amneal brand Levothyroxine.   AMEN.  
    • Scott Adams
      Given your severe symptoms it sounds like you would be much better off going 100% gluten-free!
×
×
  • Create New...