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Gluten Free[dom]


Live2BWell

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Live2BWell Enthusiast

So, I have been so hesitantabout going gluten free. I joined this forum a while ago, and have a plethora of diagnoses which include Diabetes II,Hashimotos,IBS,GERD,Dysphagia,Restless Leg Syndrome, ADD/ADHD, and the list goes on; I have tested positive for food sensitivity to Whole Milk, Egg, Wheat (non-glutenated), Soy, Yeast, Cocoa Bean, Mixed Nuts, & Shellfish.

I had a colonoscopy over a week ago, and and my biopsies came back okay (which it's my understanding that doesn't mean much in ways of gluten intolerance.)

Up until recently, I have been feeling so sick - not only GI wise, but many symptoms from which I am told stem from the autoimmune disorder(s) I have been diagnosed with. I am also told they will "even-out" once I get my thyroid under control, and if they don't, then they have to explore the other conditions such as Fibromyalgia, CFIDS, or Dysautonomia - medical mumbo jumbo if you ask me ~ I don't care what I have, I do care how I feel though!

It goes without saying that feeling poorly physically, has certainly contributed to my feeling poorly emotionally, and I have been depressed. Now that I feel a bit better, I also feel a bit more about taking care of myself better (it could have to do with the fact that I have some energy back and I do not hurt so bad I'm confined to the couch.)

So this morning I woke up, and decided today I was going to go Gluten Free, to see if I feel any better. I have heard so many positive things, and if anything it can't hurt me ... So why am I being so stubborn? I have been fighting it for a while now, but literally woke up this morning and said "why not?," and... so far, I have been successfully gluten free (and it's almost 5pm) - okay, so maybe that's not all that much to be gung ho about, but it makes me proud nonetheless. Ask me again in a few days, and I may feel differently :P

I am also almost done with the book "Living Gluten Free For Dummies" by Danna Korn, and I have to say that it has been my personal cheerleader, and an excellent read on "gluten freedom," as Ms. Korn calls it (I highly suggest it!)

So, here's to DAY #1 of being gluten-free .....


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ohsotired Enthusiast

Jess!

YAY FOR YOU!!!!

I really, really hope that this helps you! Just be strong, and remember to take baby steps - one day at a time.

(((HUGS))) You can do it! ;)

curlyfries Contributor

Jessica,

I am so glad you have decided to take the leap! You won't regret it! Just remember........some symptoms may show an immediate response, others will take longer. If you have any problems or questions, let me know. It takes time to get it right, but it's worth it! :D

Hummingbird4 Explorer

Hi there Jessica! I officially started gluten-free today too. Although I have eaten gluten-free the past few days, but today is my OFFICIAL start-date.

Best of luck to you - and I hope this is the answer you have been looking for! I have the Gluten-free for Dummies book too; also, the Gluten-Free Bible (which I just started reading). I have learned a ton from the books, and this site as well as others. I met with a dietician earlier this week, and it seemed I knew more about celiac disease and the gluten-free diet than she did. :rolleyes:

Live2BWell Enthusiast

ohsotired ~ Hey Chick! It was great talking to you tonight, thanks for the support! I am so excited to hear how you enjoy the book, and for you to get all this figured out too! Have a great night, hon :)

curlyfries ~ Thanks so much! I've already posted a few questions here and there around the forum, feel free to answer any of them (or all of them, LoL !!!) Thanks again for your encouragement B)

hummingbird4~ Yay for you on DAY #1 ! How'd it go?

sickchick Community Regular

Congratulations Sweetheart! Keep positive and optomistic! B)

ohsotired Enthusiast

It was great talking to you too! You need to get really good at this gluten free thing so you can give ME pointers once I start it up again! LOL I'm gonna go pick up the book tomorrow so I can psych myself up for starting the diet again once I'm done with all my stupid tests. Hope tomorrow is another successful day for you!


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gfpaperdoll Rookie

Keep us posted on your progress!!!! Yea for gluten-free!!

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
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