Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kinda Gross But Could Use An Opinion


cadiacat

Recommended Posts

cadiacat Newbie

I cannot currently afford to see a doctor. Lately, (the past 2 months or so) I have been dealing with very stinky gas and pretty common diarrhea. Sometimes my bowel movements are stringy/oily. I have been diagnosed with anemia in the past. I've also recently found out I have psoriasis on both knees which came out of nowhere. I am a 25 yr old female. I am slightly underweight at 105lbs and 5'4. I eat a LOT of wheat products and a friend who is gluten intolerant suggested to me that I may be the same.

I just need some help. What should I be looking for symptom-wise? Should I cut out gluten immediately to see if my stink-bottom gets better? Should I ween off of gluten? Thanks for any advice ya'll.

-Crystal


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dksart Apprentice

You sound like a classic Celiac. If so, think of it as a blessing, not a curse. The Gluten-free diet may seem difficult to stick to at first, but the benefits are wonderful!

Cut out all gluten immediately unless you want to go to a doc in the near future to be tested (if you're off of gluten, the blood test will come back negative, but many of us here think the test is a total waste of time. You'll know within a few days, up top a few months if that was it.) Stick to a simple diet at first, our system needs time to heal and things like processed foods, dairy products and sometimes even soy can be to harsh at first. Many celiacs have a sensitivity to these things at first, but can gradually start adding them back in to the diet after a few months.

Remember to find all of the hidden gluten (it's in soy sauce, root beer, ice cream, vitamins, shampoo, face wash etc.) It will be a little tough to get used to, but it becomes second nature to read every label and call manufacturers, restaurants, and even friends and relatives to find out the exact ingredients of a thing.

Look up Dermatitis Herpetiformis and see if that is what your psoriasis may be, my DD has that and was misdiagnosed for years with psoriasis, excezma, and many other things before we knew about her gluten intolerance.

This is an excellent forum you've found. Search any of the questions you have and if you can't find exactly what you need, post a new one! So many members with shared knowledge is a powerful resource. Plus, where else can you feel comfortable talking about oily stools, we've all been through that before!

Good Luck!

ShayFL Enthusiast

I agree you sound textbook and while self-diagnosis isnt always a good idea, since you are not going to go to the doctor due to financial reasons, implementing a gluten free diet will NOT hurt you. And you just might find your answer.

I have not had hardly any stinky gas or D since I went gluten-free.

Your intestines need time to heal. Many have to eliminate dairy for a few months too. And Soy aggravates a lot of Celiacs.

What to Eat:

Meats - Fresh or frozen and unmarinated (you can make your own marinade)

Eggs

Nuts & Seeds - Make sure gluten free (you may have to call the manufacturer) (almonds are high in calcium)

Veggies - Fresh and frozen with no sauce (lots of greens to get enough calcium)

Fruits - Fresh and canned

Rice

Potatoes

Sweet Potatoes

This is a good basic diet to get you HEALED. You can expand from there.

You may wish to consider a digestive enzyme (gluten free) to help you at first. And a good multi-vit-min (gluten free).

Wishing you well!

mslee Apprentice

Just wanted to say ...

I cut out gluten about a month and a half ago after a colonoscopy showed I have celiac.

Since then I feel a million times better, but am super sensitive to what I eat.

Cutting out meats that are greasy and high in fat has helped the "stringy/oily" symptom.

I have to be careful with oils, acid foods, spicy foods (nightshades), and have cut out processed meats/foods (even some just packaged chicken breasts have sodium phosphates added you have to read the lables.)

My Dr. recommended cutting out dairy for 6 months and then testing myself by eating it.

Basically just try to as much fruits and veggies as I can, and eat lean meats, nuts, corn keep foods whole and simple...even bland at first you will feel better and it looks like some foods can be re-introduced.

Your best bet is to at least try and see a Dr. to get tested, if they poo poo the idea find another Dr or try taking gluten out of your diet and see if it helps. (for a + test you have to have gluten in your system) wheat pasta, beer, pizza were huge triggers for me

good luck! hope you feel better!

home-based-mom Contributor

I agree that you sound classic and will probably feel much better not eating gluten.

When you go grocery shopping, ahop around the perimeter of the store where the fresh and frozen meats and produce are found. Stay away from the processed stuff in the interior aisles as they usually contain wheat in one processed format or another. :huh: Don't try to replace your favorites with gluten-free substitutes. They are often quite expensive and sometimes cause problems of their own. After you have healed up you can try adding them if you want.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.