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Am I In The Right Place?

lbones1

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lbones1 Newbie
lbones1
Posted

I don't know where I need to be so if someone can help me I will greatly apreciate it. I have for as long as I can rember go out to eat dinner run, run, home to the bathroom (outback, O'charlies, Tripps) I have been on a carb diet this year to loose some weight last 15lbs I did not try to loose as today I have lost 40lbs since easter look great fell terible. My GI doctor put me on Cypro and Flagyl because of large volume of blood in stool. It has cleared and I have a colenoscopy in two weeks my third at 42 (faimly colon cancer history). I have also had very bad dental problems runs in my fathers side of the family. I have come here looking for infomation i have a rash on my hands, back of neck @ buttocks. Biopsy came back negative for DH they are running blood work now. I have started to go gluten free this past weekend and have felt better no bloating or bathroom issues until tonight very bad smelling flatulance small amount of blood in stool and all of my stools are floating???? Am I in the right place??

How long do I need to be on the diet to start to fell better?

Thanks,

LBones

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Lisa Mentor
Lisa
Posted

Welcome Bones,

That's how I was when I started here, just bones.

Your recovery will depend on the extent of damage you have had. And, that will depend on whether you have an intolerance, allergy or Celiac.

The diet can be very complex, especially in the beginning. Keep things simple as meats, seafood, rice, potatoes, fresh veggies and fruit. Check your meds, shampoo and lotions.

It is recommended not to begin the diet until all testing is complete. It will increase inaccuracy in testing.

GFinDC Veteran
GFinDC
Posted

Hi Bones,

The healing time varies. You may begin to feel better in a few days or it might take weeks or months. It depends also on how well you eliminate the cause of the problems. Gluten can hide in many foods where it isn't obvious. A very restricted diet to start out is a good way to go. All home cooked foods vs. bought in a box or jar or can is a simple way to eliminate gluten. Limit spices to salt to start also. Or fresh garlic.

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      Celiac support is hard to find

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      Help understand results

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      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
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