Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fibercon


LuvMoosic4life

Recommended Posts

LuvMoosic4life Collaborator

My doc recommended t for me for my constipation until I get to the G.I doc. The first time I took it I got horrible cramps about 8 hours later..almost like the type I would get with "D" accept i didnt have D. He wanted me to take one in the morning after a meal and one in the evening and of course drink plenty of water. I tried it for about a few days and it didnt seem to bother me again, but then I started getting sharp pains and cramps to follow... and when it happened at work I thought I was going to die trying to keep a striaght face dealing with the public and having pain!

So I went off of it and the cramps dissapearred, tried it again and they came back...I can't take the pills anymore...not worth it, I'd rather be "C"....but I'm not always C, it just seems to happen whenever it wants. If I eat nothing but cooked veggies, fruit and fish, I am fine, but I would like to be able to have more variety, I cant go on like this forever....

I've tried stool softeners and other fiber products, same reaction.

I was just seeing if anyone else else a problem tolerating pills like these, or if there is an underlying reason I can't take them.... it will be interesting to see what the g.i doc says, I've had so many problems up until now that his head will probably be spinning :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

I haven't tried Fibercon. I do take pissyllium husks powder, and it works fine for me. It is nice to have the loose powder since you can just mix a little into your foods instead of popping a pill. I generally add some to my big pile of rice fixins I make on weekends. It has no strong taste so it is not a problem that way. I got my psiyllium husks powder at Vitaminn Shoppe, Yerba Prima is the brand name. I like psyillium but it very hard to spell for some reason! I think they should just change it to sillyium. :D I also take a calcium, magneisium and zinc supplement daily since I don't do dairy. It tends to thicken foods, kind of like adding okra.

Some info from the Wiki page on psyillium.

Open Original Shared Link

Description

Psyllium seed husks come from the seed stalk of the common plantago. They are soluble in water, expanding and becoming mucilaginous when wet.

Psyllium is indigestible in human beings and is often used as a source of dietary fiber: dissolved in water, they expand and scrape the walls of the intestine. They can be used as a bowel regulator, counteracting diarrhea and reducing constipation[citation needed]. The husks are used whole or placed into caplets after drying and chopping or powdering. They can also be combined with other ingredients (e.g., Blackstrap molasses is sometimes used with psyllium seed husks for its high mineral and vitamin content, as well as being an excellent carrier). A typical dose is 1 - 3 teaspoons per glass of water. Psyllium seeds are very similar to the seed husks and can be used for many of the same purposes, although their use is less common.

LuvMoosic4life Collaborator

thanks! I havent heard of that. I'm definitly going to look into it! I'll wait till after the G.I doc and see whats going on before I use anything else though.

ravenwoodglass Mentor
If I eat nothing but cooked veggies, fruit and fish, I am fine, but I would like to be able to have more variety, I cant go on like this forever....

This part of your query is very significant. It sounds like you may have another intolerance going on. The prime suspects would be casien and soy. Soy in particular can crop up as an issue for many since so much gluten-free stuff has soy. I would go with the cooked veggies, fruit and fish only for a couple of weeks then add in soy for a week and see if the C returns. If it doesn't keep the soy in your diet and add casien back in. I can't know for sure but these two items cause issues for a lot of us.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.