Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab


Lesliean

Recommended Posts

Lesliean Apprentice

Blood work neg on gluten-free diet but still need to know for relatives and peace of mind. Is Enterolab accurate? Do you trust them? Did your insurance pay?

Thank you!!!

Leslie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

I haven't used them, but others have and loved them. Also, you might get a positive result using them, even if bloodwork gave you negative results. Again, people who have received positive results and tried the diet have felt so much better--others will likely say the same, but--yes, Enterolab is good--no insurance coverage, though.

bmorrow Rookie

Leslie,

I will tell you my experience with testing and maybe it will help you decide about EnteroLab. I had negative blood tests and an inconclusive biopsy. I did the EnteroLab tests a couple of weeks before I had the other tests done. My stool tests were positive for gluten sensitivity, moderate damage from malabsorption, and casein intolerant. I went on the gluten-free diet and dairy free diet by the insistence of my GI doctor. I have been on the diet for one year now. I continued to have severe diarrhea so my GI sent me to see Doctor Shiller at Baylor Medical Center in Dallas. He considered him one of the best in the world in treating this problem. I saw him three weeks ago and he officialy diagnosed me with Celiac and Microsopic colitis.

I asked him his opinion of the test results from Dr. Fine, and he told me that he had no doubt in his mind that the test results were reliable, and will be in the near future accepted by the medical community. He said that Dr. Fine had been a researcher, instructor and doctor at Baylor, and that he knows him personally. I had been very skeptical, and I guess I wanted him to tell me that I didn't have Celiac, but that didn't happen. I know now that I have to be very strict with the diet.

I no longer have diarrhea, anemia, and I have gained weight since I have been on the diet. One year ago, I could not get out of bed somedays, because of the severe joint pain. So anyway, I have two good doctors that do believe in Dr. Fine. Yes, my insurance did pay, but not for the genetic testing. Good Luck!

Beverly

Guest barbara3675

OHMYGOSH, Beverly----what you have just said is SO important for those of us that have been only tested by Enterolab and are going on those results. I am one of those. Thank you so much for replying with what your doctors have said about the reliability of Dr. Fine. I have read about him and he seems to be very dedicated to what he is doing in the this field of medicine. Enterolab was very professional handling things with me. The test kit arrived quickly, my questions were answered swiftly, and the test results came on email inside of two weeks. I think it was money well spent and I didn't try to collect from my insurance. I did the complete test with gene testing. Although I don't have damage, I have an intolerance and eat gluten-free/cf as they said I have an intolerance to casein. Sure explains a lot of things and I feel so much better now. I just got back from a trip in which I flew on an airplane. I used to get so sick when I flew and this time I felt great. I KNOW it was because I don't eat gluten now. I have had many episodes on land when I have gotten so sick after eating major gluten foods and then traveled........had to go right to bed because I was so sick. I just know it was the gluten. Just never put it all together......this has gone on for YEARS, I am 59!!!!!! Good to have answers at last.

Barbara

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,083
    • Most Online (within 30 mins)
      7,748

    Juane
    Newest Member
    Juane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.