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Celiac Or Not

jimmyjazz

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jimmyjazz Newbie
jimmyjazz
Posted

So..

I am a student at the US merchant marine academy. The medical staff here, since finding that I had really low iron last year has determined that I might have celiac. They did a gene test, and I guess that I have the gene, but they say that still leads to no definite diagnosis. Also, Ive had a few endoscopies, and apparently, when looked at from far away, it looks like I have celiac, but then when biopsies are taken, they cant determine if I truly do have it.

In addition, Before when comsuming gluten I didnt seems to have any side effects.

I am soo confused. Is there a definite test for celiac. And, does anyone know about military wiavers for celiac, because thats another issue im having....

Any help would be awesome....Im soooo confused with this stuff. You would think after a year plust theu could come up with a definite yes or no answer.

Thanks a bunch!!!

;)

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RiceGuy Collaborator
RiceGuy
Posted

There is, unfortunately, no test which is 100% accurate. However, the gluten-free diet can be most telling, when various health problems go away. This can include things which you didn't even notice, or shrugged off as insignificant.

There are probably hundreds of symptoms, many if not all might be attributed to other things besides Celiac. But to date, it seems that intestinal damage is considered the "gold standard", even though many get false negatives. Not every Celiac is skinny and suffers from constant D. Some gain weight, some have C, some have neurological issues, some just get brain fog, or poor coordination, or any number of seemingly unrelated things.

Here's some information you may find useful (and astonishing)

https://www.celiac.com/categories/Celiac-Di...-and-Disorders/

ShayFL Enthusiast
ShayFL
Posted

They should run antibody tests as well. If those come up positive, then it is another piece to the puzzle for you. If you have the gene(s) and positive bloodwork, many docs would dx you. Cant speak for the govt.

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    • trents
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      By trents · Posted

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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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      Small Bowel Resection 12 inches

      By trents · Posted

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      By Ello · Posted

      I have always eaten gluten and never stopped until my recent episode. I started more wheat products as my Dr. requested for the Tissue Transglutaminase Iga Antibody. mye result Value <1.0 Value interpretation: <15.0 Antibody not detected > or =15.0 Antibody detected I do not understand any of it. After eating all that wheat product my body exploded with all sorts of symptoms. I stop gluten ASAP. I am still in the healing process. I started having issues after my surgery. 
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      Welcome to the celic.com community @Ello! You say you had a blood test for celiac disease after eating gluten for 2 weeks. Were you gluten free before that? Had you ever been officially diagnosed with celiac disease previously? You say the result of the blood test was 1.5. Can you provide the name of the test and the reference range for negative vs. positive for the test? I ask because different labs used different reference ranges so scores without a reference range aren't very helpful.
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