New Here...could I Finally Be On To Something?

[Evie4]

Hi there, new here

[mftnchn]

Yes you are on the right track. 20% or more of celiac have constipation, and another large group switch off between D and C.

Now that you are gluten free you won't be able to get accurate blood tests or biopsy. So if you want a gold standard diagnosis you'll need to eat gluten for several weeks.

Enterolab would still work for you up to a year gluten-free. It won't be accepted by most doctors, other than a few really sharp celiac doctors, but can help be a confirmation to your choice to go gluten-free.

I had a similar history to you. gluten-free has been only one piece of the puzzle. Initially my C got a lot better than got worse again, although overall after many months it is substantially better shown by my ability to cut way back on magnesium and Vit C which I needed before to make me go.

I now know that I have problems with carbohydrate digestion so cannot have grains, starches, etc. and am folowing SCD currently--also a gluten-free diet.

What I would suggest is do whatever testing you want, then go gluten-free for several months. If there are lingering symptoms keep posting here because many folk have that experience and have found answers that work for them.

[ShayFL]

Welcome!

Removing gluten for 3 weeks can sometimes be enough for regular Celiac bloodwork to be negative. And even your villi could have healed enough to give a negative biopsy.

If you want testing, your best bet now is Enterolab. It doesnt matter if you have been gluten free (I think up to a year). If you can afford it, get the genetic test too. This will let you know if you have Celiac genes.

If you dont want testing, stay the course, but ELIMINATE ALL GLUTEN: Wheat, Barley and Rye and all of their derivatives.

For many this means natural foods like: meats, eggs, nuts, veggies, fruits, squashes, potatoes, rice, corn, etc. Simple spices (McCormicks will list wheat and most of theirs is gluten-free).

After you have healed sufficiently, you can add in some gluten-free convenience foods.

Remember the only 100% accurate way to test is POSITIVE RESPONSE TO THE DIET. But if you are like me, you want tests to tell you something.