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Families In Jacksonville Nc

bear6954

By bear6954
in Introduce Yourself / Share Stuff

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bear6954 Apprentice
bear6954
Posted

Just looking for some families in jacksonville nc area. My son was diagnosed in May and I have yet to meet another person with celiacs. It would just be nice to have some local support and discuss things!

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MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Here are some North Carolina groups:

Open Original Shared Link

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dreamindarlin Rookie
dreamindarlin
Posted

Hi,

I'm in Asheville NC.

Guest elysealec
Guest elysealec
Posted

Hi.

How old is your son? Our family is in Kure Beach. That's not too far from Jacksonville. The kids go to school in Wilmington. I have celiac disease as well as my 11 year old daughter. I also believe me my 10 year old son has it as well. He went gluten free over the summer and feels so much better. He doesn't want to have to eat gluten again in order to be tested, so I am leaving the choice to him.

Vicki

  • 2 weeks later...
SAHM2one Contributor
SAHM2one
Posted

my son and I are both gluten free, we are in Havelock

  • 1 year later...
MinRalph Rookie
MinRalph
Posted

Hi! I live in Jacksonville, NC and also haven't met anyone else with Celiac here. I was diagnosed in 2003 (age 17) and have been living (or at least trying to live) gluten-free since then. My sister also has it. Thanks for posting, I never would have known there was anyone here with it too!

Shess0816 Apprentice
Shess0816
Posted
Just looking for some families in jacksonville nc area. My son was diagnosed in May and I have yet to meet another person with celiacs. It would just be nice to have some local support and discuss things!

Hello! My mom and my little sister are just getting ready to start the gluten free diet. They live in Wilmington, which if I remember is around an hour away. I live in Nebraska, so I'm not much help, but I have given them a lot of information, meal plans, etc... to help them out. It's so hard when you're first starting off and you feel kind of isolated!! I totally understand!

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  • 10 months later...
seeleeak Newbie
seeleeak
Posted

Hi!

I am so happy to find someone else in Jacksonville with Celiac disease.(Not that I'm glad you have it. lol) I thought I was the only one. I was just diagnosed in February. Any ideas you may have for gluten-free shopping or restaurant suggestions will be greatly appreciated. Our supply here seems to be pretty limited. I usually just cook everything I eat other than fresh veggies and fruit.:(

Heidi S. Rookie
Heidi S.
Posted

Hi!

I am so happy to find someone else in Jacksonville with Celiac disease.(Not that I'm glad you have it. lol) I thought I was the only one. I was just diagnosed in February. Any ideas you may have for gluten-free shopping or restaurant suggestions will be greatly appreciated. Our supply here seems to be pretty limited. I usually just cook everything I eat other than fresh veggies and fruit.:(

My sister and her daughter live in Sneads Ferry, right near Jacksonville both are gluten-free. Her daughter is going into first grade! Let me know if you want to meet, she is excellent at gluten free cooking!

quincy Contributor
quincy
Posted

My sister and her daughter live in Sneads Ferry, right near Jacksonville both are gluten-free. Her daughter is going into first grade! Let me know if you want to meet, she is excellent at gluten free cooking!

I am staying in Wilmington visiting my sister for a few weeks and returning home soon.I found several places that catered to Celiacs. One was a food co op called Tidal Creek. They are located on Oleander. They label all their shelves to indicate the item is gluten-free. Their salad bar dishes are all indicated if gluten-free and warnings not to mix utensils. Another place is Lovey's Market in Landfall shopping center. Their salad bar also lists ingredients as gluten-free free or not.

Harris Teeter has a good selection of gluten-free foods as well. THey even carry the gluten-free beer which is very good.

hope that helps...!

seeleeak Newbie
seeleeak
Posted

My sister and her daughter live in Sneads Ferry, right near Jacksonville both are gluten-free. Her daughter is going into first grade! Let me know if you want to meet, she is excellent at gluten free cooking!

Thanks! I could really use some tips for baking and frying. The recipes and commercial mixes I have tried so far taste fair, but are VERY dry. The flour seems to fall right off and end up burned in the bottom of the pan.

seeleeak Newbie
seeleeak
Posted

I am staying in Wilmington visiting my sister for a few weeks and returning home soon.I found several places that catered to Celiacs. One was a food co op called Tidal Creek. They are located on Oleander. They label all their shelves to indicate the item is gluten-free. Their salad bar dishes are all indicated if gluten-free and warnings not to mix utensils. Another place is Lovey's Market in Landfall shopping center. Their salad bar also lists ingredients as gluten-free free or not.

Harris Teeter has a good selection of gluten-free foods as well. THey even carry the gluten-free beer which is very good.

hope that helps...!

Thank you!! I will have to make a trip to Wilmington soon. I appreciate your help. I can't wait to try these places.
  • 2 months later...
semperwife Newbie
semperwife
Posted

I am in Jacksonville, NC

My son was 7 when he was diagnosed and is now 14.

Would love to meet other families~

  • 1 month later...
rmhodgdon Newbie
rmhodgdon
Posted

Hi!

I am so happy to find someone else in Jacksonville with Celiac disease.(Not that I'm glad you have it. lol) I thought I was the only one. I was just diagnosed in February. Any ideas you may have for gluten-free shopping or restaurant suggestions will be greatly appreciated. Our supply here seems to be pretty limited. I usually just cook everything I eat other than fresh veggies and fruit.:(

There aren't too many places in Jacksonville itself. There is a small health store in the New River Shopping Center that offers a few gluten-free items. Food Lion on Piney Green Rd offers a good selection, Walmart also now offers gluten free items. If you are willing to travel Harris Teeters, Loveys and Tidal Creek in Wilmington offer gluten-free items.

As for restaurants, the best in town I have found so far is Outback Steakhouse, they have a dedicated gluten-free menu. Also Olive Gardens now offers a gluten-free pasta meal. Longhorn steakhouse also claims to offer gluten-free dining but I have not tried them yet. Just be sure to remind them that you do not want bread. Sometimes the waitresses that pack the food in take out bags forget and include the bread.

  • 2 years later...
JennCo Newbie
JennCo
Posted

We are in Jacksonville and have a 9 yr old daughter with Celiac.

  • 3 years later...
mynxr Rookie
mynxr
Posted

Hi,

I know this thread is old but I'm in Swansboro.  My husband and I moved here almost 6 years ago and I was diagnosed with Celiac 3 years ago.  I can't find a support group, meetup group or anyone else that has Celiac even close to me.  I would happily drive to Jacksonville or host a group if people are willing to come to Swansboro.  I've learned a lot during the past three years but still have trouble with groups, dining, out etc.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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