Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For A Seattle Celiac


BallardWA

Recommended Posts

BallardWA Rookie

Hello to each and every one of you who gave me so much comfort during this journey. I have found out that I was misdiagnosed with celiac disease, via a genetic test and a doctor (my 6th) with a messianic complex. After being gluten-free for nearly a year, I was still getting sick, and finally sought help from my 7th, and hopefully last doctor. She sat with all of my test results from the past year, put me on a cleansing fast, ran some tests and found out that my problems were related to my adrenals. 6 weeks out and I am finally starting to feel better. In any case, in my desire to embrace this change in my life, I bought a lot of books. I would like to give them to someone in the Seattle area that will use them. Some are cookbooks, some are just about the disease. I also have some unopened flours, mixes, etc, that are all perfectly good, less than 2 months old, and we all know how expensive that stuff is.

If someone will contact me, I will be happy to drop them off, or if anyone has any suggestions for what I can do with them other than post them on Craigslist.

I live in North Seattle.

May God bless all of you with restored health and happiness, you all deserve it.

Best,

Karen Fredericks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cruelshoes Enthusiast

I just sent you a PM. :)

pinkdljj Rookie
Hello to each and every one of you who gave me so much comfort during this journey. I have found out that I was misdiagnosed with celiac disease, via a genetic test and a doctor (my 6th) with a messianic complex. After being gluten-free for nearly a year, I was still getting sick, and finally sought help from my 7th, and hopefully last doctor. She sat with all of my test results from the past year, put me on a cleansing fast, ran some tests and found out that my problems were related to my adrenals. 6 weeks out and I am finally starting to feel better. In any case, in my desire to embrace this change in my life, I bought a lot of books. I would like to give them to someone in the Seattle area that will use them. Some are cookbooks, some are just about the disease. I also have some unopened flours, mixes, etc, that are all perfectly good, less than 2 months old, and we all know how expensive that stuff is.

If someone will contact me, I will be happy to drop them off, or if anyone has any suggestions for what I can do with them other than post them on Craigslist.

I live in North Seattle.

May God bless all of you with restored health and happiness, you all deserve it.

Best,

Karen Fredericks

Hi Karen,

I'm so glad you found out what really going on with your body. It can be a confusing and long journey. I live in the area and have two celiac children, girls, and then myself. I would love to have some of your books and other things. I would even be willing to pay something for them. I was diagnosed 8 months ago and then tested my two girls, one being 22 months and the other 11 years old. It is very expensive to feed our family and so I haven't boughten any cook books yet, I just refer to this site.

I would be happy to meet you somewhere. I live in the Millcreek area so I am further North than you are. Thanks for the wonderful offer.

Blessings,

Leslie

P.S. My naturopath tested my adrenals and they are very low as well. She has me on high C, B5, B12 shots, progesterone, DHEA and B complex. May I ask what you are doing to get your adrenal function back up? Thanks!

Presto Rookie

Hi!

Has everyone else cleaned you out already? I would be happy to make a drive in the pursuit of things to help me on this journey. I will PM you too.

sickchick Community Regular

What a sweet offer, Karen.

Be well! :)

cruelshoes Enthusiast

Karen - I don't know if you are still around. It was great meeting up with you today. Thank you for your generosity in sharing your books and supplies. My intention is to set up a lending library in our support group, and your books will make a great addition! I wish you good health, and I hope you are on the road to feeling really well.

Thanks again!

BallardWA Rookie

Karen - I don't know if you are still around. It was great meeting up with you today. Thank you for your generosity in sharing your books and supplies. My intention is to set up a lending library in our support group, and your books will make a great addition! I wish you good health, and I hope you are on the road to feeling really well.

Thanks Colleen,

I'll be taking this site off my bookmarks list now, be well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

    3. - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,307
    • Most Online (within 30 mins)
      7,748

    Hcon74
    Newest Member
    Hcon74
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.