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Getting Glutened


knitaddict

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knitaddict Apprentice

I swear that I got glutened yesterday. Now, I've only been gluten free for about a week...but I was getting SOOOOOO much BETTER already! My stools were NEARLY normal. Not to get graphic...but I actually had to PUSH to get them OUT. I'd almost FORGOTTEN how to do that!!! :lol: Anyway, so I ate my lunch yesterday...a bowl of chili...and I couldn't even get through the bowl before I had to SPRINT to the potty. I had what I guess would be considered a pretty mild reaction....I just went a couple of times and then I was back to normal. But is it that fast for some of you? Cause in the past, when I've been eating something particularly "glutiny", I would have to jump up in the middle of the meal and goooooo! I've read about some people going DAYS before knowing that they'd been "glutened." So I was wondering if it's that fast for other people??? <_<


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dksart Apprentice

It all depends on the person, the offending item and the situation.

Every one has a different reaction, mine takes about 10 minutes from the first bite, usually. I have had immediate reactions and some that did not start until the next morning. Most times I get the headache/brain fog first, then gut issues, then pain and inflammation, but sometimes the D is almost instantaneous. Other times I may be C for a week!

Celiac is a fickle disease.

purple Community Regular

Some brands of chili beans have wheat in it and I recently saw it in the ingredients list of McCormick chili seasoning I had in the cupboard but I don't know how long I had it. I buy S&W chili beans and make my own seasoning. Also S&W pinquitos are seasoned. I use seasoned canned tomatoes too. I called S&W and they are a trusting company, they will list wheat. I want chili and tortilla chips now...

So sorry it caused you problems...I hope you are feeling better today!

p.s. You love to knit and I love to crochet and I am not a grandma either!(I read your other post somewhere)

LDJofDenver Apprentice

For me, it happens (feeling bad!) fairly soon after ingesting gluten. Usually within the hour, but a couple times has been a few hours later, but has always been that same day/evening. I try to be so careful since I, too, started feeling better within the first week (and especially after the first month) - I just don't want to ruin it (my progress).

We ate out at a restaurant praised for its gluten-free menu, and by the time I got home my belly was rumbling and growling and bloated, followed by - well, you know. Obviously something in my gluten-free meal that evening somehow got glutened (had a friend who was served gluten free pasta at an Italian restaurant, but they boiled it in the same water as the other pasta).

I've noticed that now that my system is healing, I seem to be even more sensitive than ever to gluten.

dksart Apprentice
(had a friend who was served gluten free pasta at an Italian restaurant, but they boiled it in the same water as the other pasta).

Same thing happened to me. My Gluten-free rice pasta came with a 'regular' shell pasta noodle in it. I found it after my fifth bite. The shock of seeing that on my plate helped me to have one of the most immediate reactions ever!

I've noticed that now that my system is healing, I seem to be even more sensitive than ever to gluten.

Amen to that!

terreemc Newbie

I have been gluten-free for a short time also and was doing very well. But about ten days ago I started to feel a cloud of fatigue descend then two days ago I started with the gas and bloating and.....guess what, the loose stools where not far behind.

I have looked for the cause and discovered that I had been making my husband toast is the same skillet that I was heating up my breakfast rice dish in. It had not bothered me until now. I have read on this forum that we get increasingly sensitive to gluten as we heal. I would not have thought that the minute amount of bread on my skillet would produce this cumulative effect. But there you have it! How could I have overlooked this?

This diet is certainly a learning process.

I hope you recover soon.

raen Apprentice

personally, i know i am being glutened near instantly, because my first symptom is always slight "gagging, full, don't want this food" EXACTLY halfway through any given item. . while i am not positive at the time, in retrospect i can pinpoint what food upset my stomach based on when i felt full or gaggy over a tiny bit of a meal. i am never positive until an hour, 3 hours, maybe even a day or two later, depending on the severity of the case, when i start getting stomach and intestinal pains. - i get sick fast but stay sick for days. very sick for 3 days and it fades off around 5.

i was eating 100% beef burgers for MONTHS that had CC-potential with no problem, then suddenly, the past month, they made me sick each time. its getting easier and easier to tell what has gluten based on my increasingly strong reaction, but now im scared of buying anything but fruit/veggies outside of a health store.


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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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