Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Not Probiotics?


gaceff

Recommended Posts

gaceff Newbie

The use of probiotics was highly recommanded by all my doctors, since the friendly bacteria are always needed when our digestion is impaired.

So, full of hope, I started with Lactobacillus acidophilus and saccharomices boulardii, both which are known for helping digestion and vitamin absorbtion.

But! After several days of taking them I felt worse and worse, with severe nausea and diarheea. I paused taking them for some days. Then, again, with the same unpleasant effects.

The products I use are with moderate-low probiotic dosage, and are gluten free.

What happens?

Aren't probiotics supposed to have benefic effects ONLY?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seeking-wholeness Explorer

Andrew,

Open Original Shared Link is a page that may help explain why the probiotics you are taking are not behaving as you expected. I hope you find it informative reading, and I hope you feel better soon!

gaceff Newbie

I happen to have blood Type B, which is supposed to be the most probiotic compatible.

Yet, I do encounter negative effects when ingesting them.

A general medicine doctor told me that a possible explanation would be this: the lactobacilus creates a highly acid environment in my bowels, which is bad for inflamated bowels and especially the duodenum, a delicate part for celiacs.

What do you think of this?

seeking-wholeness Explorer

Andrew,

I don't know enough about the subject to comment on your doctor's theory, but here's something that occurred to me after I posted my previous response: might you be sensitive to yeast? Lactobacillus acidophilus is a bacterium, but Saccharomyces boulardii is a YEAST. It might be worth checking for a yeast intolerance or allergy! I hope you manage to find a probiotic product that doesn't give you such unpleasant side effects. Good luck!

gaceff Newbie

I was not aware that yeast can have negative effects on the GI tract when used in moderate quantities. I this is the case, then rice bread may also be banned from my future diet. Yikes.

seeking-wholeness Explorer

Andrew, I think it depends on the person, like so many other things do. Some people are sensitive to yeast; others aren't. Being celiacs, we have damaged and leaky intestines, which significantly elevates our risk for immune reactions to pretty much any food we eat.

  • 2 months later...
Guest LisaB

Andrew,

I know this discussion took place awhile back, but I just found this info on the Primal Defence site, it may be what you went thru I don't know. It said:

Many probiotics have included fructooligosaccharides (FOS) in their product. FOS is an indigestible sugar that may cause digestive disturbances in certain individuals. Primal Defense contains no FOS.

If you already have this resolved, great, if you want to look into the above info then here is the link: Open Original Shared Link

Hope your doing well. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SteveW Rookie

I've been reading the ingedients for primal defense and it says-

B) Organic "Superfoods" Matrix (spirulina, chlorella, dunaliella, kamut grass, barley grass, oat grass, alfalfa grass)

Is this product Celiac safe?

Kim Explorer

I take Culturelle as my probiotic and it is gluten free.

I was warned that the first week or two of taking probiotic, you can have diarrhea, but after that you normalize..

Good luck.

Kim.

taneil Apprentice

Primal Defense does not contain gluten. It says it plainly on the bottle and I trust this company. IF you notice the list, it says (spirulina, chlorella, dunaliella, kamut grass, barley grass, oat grass, alfalfa grass). When these cereal grasses are sprouted, the gluten is used up and so they do not contain gluten. I believe most, if not all, of the Garden of Life products are gluten free. This is a very reputable company.

SteveW Rookie

teneil

I'm glad PD is working for you and you trust the company. I have tried many products labeled gluten-free and have spent plenty of wasted hours in the bathroom dealing with the aftermath. Maybe I'm just a little less trusting when I see the words oat and barley on the label. Grass or no grass.

I recently tried a digestive product labeled gluten-free that had Barley Grass as an ingredient-I over looked this trusting the label and was hit very hard.

I'm not a farmer or scientist so I'm not even going to pretend to understand the life cycle of wheat barley and oats. My policy is if it starts out as a bad grain, no matter what it turns into, its off limits.

I've seen that wheat grass is a no no. Is this untrue?

You seem very defensive of this product. Maybe I'm just reading you response wrong? IF not...oh well. I think its a valid question. B)

Guest LisaB

Steve,

It is a valid question, and something I want to make sure of myself. Others that have Celiac I know are on this product, put I hadn't checked into the ingrediants myself yet, I just saw that info on the undigestable sugar and thought I should post that.

Later in the facts area is says:

Can Celiac or gluten sensitive people take Perfect Food
Guest LisaB

Oh, I forgot, they also have Fungal Defense for Candida that doesn't look like it contains the greens and might be a good first product to try. We probably all have a good case of Candida going on in our intestines since that is a common infection and we are prime candidates. This formula also has the probiotics and the right added enzymes to fight all infections, not just Candida...viruses and bacteria surround themselves with a protein layer to avoid the immune system, so the protein enzymes included in this formula would do the job of ridding them of that and the carb enzymes would help with Candida or general carb digestion. Looks good to me.

taneil Apprentice

SteveW,

I am sorry if I sounded defensive about Primal Defense. My husband tells me that I state things that I have an opinion about in defensive ways, even though I don't mean to. I guess I do the same in writing. Sorry about that. I also have to confess that I do not take Primal Defense and never have. I am nursing my baby still and am not sure if I should take it or not because of the baby. But I would take it if I was not nursing. My other confession is that I am Gluten Intolerant, but have never had bad intestinal problems like a lot of Gluten Intolerant people. So even if I do ingest gluten, I don't necessarily know it until I get fatigued and mood swings which are my symptoms of gluten intolerance.

So I am sorry for sounding defensive about primal defense. I have read "The Makers Diet" By Jordan S. Rubin who does the Garden of Life products and from everything I have read, I have been very impressed and believe that he has good products. I have taken the Perfect Food with the Cereal grasses in it, but stopped because it has chorella which I believe was upsetting my babies tummy, but it did not give me any problems personally.

Please forgive me for coming across the way I did. :unsure:

  • 2 years later...
christiane Newbie
The use of probiotics was highly recommanded by all my doctors, since the friendly bacteria are always needed when our digestion is impaired.

So, full of hope, I started with Lactobacillus acidophilus and saccharomices boulardii, both which are known for helping digestion and vitamin absorbtion.

But! After several days of taking them I felt worse and worse, with severe nausea and diarheea. I paused taking them for some days. Then, again, with the same unpleasant effects.

The products I use are with moderate-low probiotic dosage, and are gluten free.

What happens?

Aren't probiotics supposed to have benefic effects ONLY?

hi!

i m having the same problem.i m diagnosed with celiacs disease chrons disease and colitis.i tried several times to take probiotics and it made the situation much worse.was the lactic acid in your case really the reason?or is there another reason why people with an inflamed colon cant tolerate probiotics?is it possible that we are having an autoimmunreaction to the gut flora?if its just because of the lactic acid it should be possible to take small amounts of probiotics.

christiane

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.