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Newly Diagnosed

erinecox

By erinecox
in Coping with Celiac Disease

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erinecox Contributor
erinecox
Posted

Hey! I've only posted one other time with my q's about my labwork but I wanted to say HI and let everyone know how valuable this forum is to newbies. You guys rock!

I just got the results from my daughters' today and they were both NEGATIVE!!! Thank God! I'm so relieved!

I've been gluten-free since Friday when I got my results back. I'm doing OK except for the whole MSG thing. I'm still not sure on whether to eat it or not. It's in so much stuff and I think while I'm revamping my diet, I might as well cut it back too. Then I think, WOW, that's THAT much more I can't eat. I'm not too sure what to do on it yet. I never had really obvious signs of gluten sensitvity. My signs were long-term like anemia, arthritis, miscarriages/PTL, teeth spotting, osteopenia and emotional stuff like anxiety. I only have slight tummy issues with bloating and gas, no diarrhea.

I'm wondering how I'll know if I'm getting gluten when I don't expect too. Like today for lunch, I had ham with cream cheese and a bowl of that minute yellow rice. I didn't see any gluten but the rice has MSG. After I ate, I felt horrible and my face got really tingly and I got this huge "fog"over my brain. Is that related in any way? I know I've felt that way before but never paid too much attention.

Anyway, wanted to share my excitement about my kiddos (now my sister is getting tested) and see if my lunchtime fog and tingly face are symptoms of getting glutened or MSG. Also, how long before I start to feel better. I have super low energy and anxiety so I'd love to feel better soon!

Erin

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ksymonds84 Enthusiast
ksymonds84
Posted

Hi Erin,

MSG does not contain gluten but I am one of those that reacts to it like it is gluten. Not sure if you could have had gluten with your lunch, it is possible cc issues? Face tingling is a neurological symptom that I used to always get before going gluten free. Always on the left side of my face. Haven't seen it since gluten free though.

I am glad that your daughter's tested negative but always be on the lookout because 30% of people will get a false negative and even higher for children. My 20 year old daughter has been in denial for months and is now starting to eat gluten light. I am waiting patiently (if I push her she will rebel totally against the diet, she's one of those personalities :rolleyes: ) for her to give it up totally. She's a typical college girl that likes beer pong and found out she cannot do beer anymore. The gas is always too embarassing with her peers and of course the morning after diarrhea.

dhd2000 Newbie
dhd2000
Posted

Hi Erin,

I think that while you are healing (which can take awhile depending on the damage) things like MSG are just too hard on your delicate system. I know MSG is gluten free, but I can't tolerate it and neither can my sister, who also has celiac disease. I've been on the diet since May 07 and feel soooo much better now, but it did take awhile. The first couple of months were very tough and I had to eat very basic, safe foods to feel good. Rice, chicken, fruit, etc. Some people have to give up dairy for awhile. I also had awful anxiety problems and brain fog/extreme tiredness from gluten and I am happy to tell you that those are gone. I still feel twinges, but only when I get trace amounts of gluten, and I notice it quickly and can stop eating that particular thing. It is great to have energy and clear skin and no anxiety or brain fog! So hang in there, it may take a few weeks to notice the difference and then up to a year or more to really feel great.

I am even taking a dance class now and looking forward to walking the dog!

My kids tested negative as well, but my sister and her daughter tested positive. So now my kids have some gluten in their diets, like snacks or the occasional school lunch, but our meals together are gluten-free.

Hope you feel better soon!

Dee

Hey! I've only posted one other time with my q's about my labwork but I wanted to say HI and let everyone know how valuable this forum is to newbies. You guys rock!

I just got the results from my daughters' today and they were both NEGATIVE!!! Thank God! I'm so relieved!

I've been gluten-free since Friday when I got my results back. I'm doing OK except for the whole MSG thing. I'm still not sure on whether to eat it or not. It's in so much stuff and I think while I'm revamping my diet, I might as well cut it back too. Then I think, WOW, that's THAT much more I can't eat. I'm not too sure what to do on it yet. I never had really obvious signs of gluten sensitvity. My signs were long-term like anemia, arthritis, miscarriages/PTL, teeth spotting, osteopenia and emotional stuff like anxiety. I only have slight tummy issues with bloating and gas, no diarrhea.

I'm wondering how I'll know if I'm getting gluten when I don't expect too. Like today for lunch, I had ham with cream cheese and a bowl of that minute yellow rice. I didn't see any gluten but the rice has MSG. After I ate, I felt horrible and my face got really tingly and I got this huge "fog"over my brain. Is that related in any way? I know I've felt that way before but never paid too much attention.

Anyway, wanted to share my excitement about my kiddos (now my sister is getting tested) and see if my lunchtime fog and tingly face are symptoms of getting glutened or MSG. Also, how long before I start to feel better. I have super low energy and anxiety so I'd love to feel better soon!

Erin

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