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Help! I Screwed Up My Life.


jsbs11

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jsbs11 Newbie

Sorry for the dramatic title but I really feel like I screwed up. The irritability, laziness, depression, anxiety and ofcourse pain that this disease causes (stealth like) is indescribable. Marriage, business, friends...I've almost lost everything.

I thought my problem was candida and that did help, but I cheated on the candida diet with one type of food group---certain grains, cereal, and yeast free bread. Little did I know that I was injecting the gluten poison in my body as I tried so hard to live up to the other restriction of a candida free diet.

Well atleast I know now. I have a couple of questions right now and I am sure more to come. Is Psyllium whole husk allowed?

Is brown rice okay or should I switch back to white rice?

I really enjoy millet, can I keep eating it ?(I cook it in a skillet before boiling)

I checked my suppliments (multi, enzyme, fish oil) and they are gluten free. Is there any supplements you recommend to heal the sm intestines?

Thank all of you so much.

Joe


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sweetie101282 Apprentice

Wow! That was a dramatic title, but it got my attention so hey, it worked! The strain celiac disease can put on you and your family can be so overwhelming, even before you are diagnosed. I don't know your situation, but I do know that many of us have had to overcome huge relationship struggles because of the celiac disease. Believe me, you are not alone. Feel free to vent when you need to and ask as many questions as you want.

To answer a couple of the ones you posted:

Brown and white rice are both safe for celiacs as long as you are buying pure rice. None of those rice mixes like Zatarains or Side Dish packets are allowed.

Some online research I have done has said that taking glutamine-L as a supplement can help restore intestinal damage. Despite sounding like the word gluten, I checked a bottle at the health store and it is gluten free. Please talk to your gastro doc. before starting this because, as many have said, I'm not a doctor but I play one online! :D

Good luck getting answers to the rest of your questions!

Amy

KaitiUSA Enthusiast

I also have candida of the small intestine and I am on Nystatin for it.

Brown rice and white rice are fine for celiacs. Millet and Psyllium are ok as well.

Probiotics are very important and would highly recommend them if you are not on them. Probiotic bacteria favorably alter the intestinal microflora balance, inhibit the growth of harmful bacteria, promote good digestion, boost immune function, and increase resistance to infection.

I take enzymes,probiotics,multi vitamin(liquid), b complex, sublingual b12, cod liver oil, etc.

The most important thing is to build your body up and give it the proper nutrients and it will heal itself. I can't tell you that something will work because every body is different and something that may have worked for me might not work for everyone. By taking these supplements that really helped me get back to where I need to be.

Open Original Shared Link

This link is to this sites safe list for celiacs that may help you out a bit

Open Original Shared Link

This link is to this sites forbidden list for celiacs which is also a good guideline that would be useful

Good luck with everything and hang in there. :D

It gets easier

ianm Apprentice

We've all been there. The medical establishment in my experience is basically clueless about this disease but the members of this group are not. This disease really messed up my life too. I could go on and on about how it wasted the first 36 years of my life but that would be pointless. I have been gluten-free for a year and it has been a great year. It takes time but it is worth it. Yes you do have to make some sacrifices but consider the alternative.

Ianm

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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