Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dietician In Nyc?


givenupgluten

Recommended Posts

givenupgluten Explorer

Can anyone recommend a great dietician in the nyc area? I see Dr. Green at the Columbian Celiac Center, however Anne Lee has left, and the nutritionist currently on board does not accept insurance. I would really prefer seeing someone who does accept insurance, seeing as times are tight! I had seen another dietician who was great, but probably isn't quite as thorough re; celiac as I would like. Any help is appreciated. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ENF Enthusiast
Can anyone recommend a great dietician in the nyc area? I see Dr. Green at the Columbian Celiac Center, however Anne Lee has left, and the nutritionist currently on board does not accept insurance. I would really prefer seeing someone who does accept insurance, seeing as times are tight! I had seen another dietician who was great, but probably isn't quite as thorough re; celiac as I would like. Any help is appreciated. Thanks!

I had a lot of tests done at Columbia's Celiac Center, paid for by my insurance. When I saw Anne Lee, she did not accept my insurance, and I'm not sure whether she was taking any others, either. A friend of mine, who also has Celiac, has recently gone to a dietician in NYC that did not accept his insurance, so he also paid cash. He said that the only way his insurance will pay for a dietician is in the case of diabetes. It's probabaly because most dieticians are not doctors.

AndrewNYC Explorer

Just pony up and see Green's nutritionist. She is as good as you'll find in the city, and the cost could be worse. I give her mucho credit for identifying a major secondary food allergy that I could not pin down.

Vamonos Rookie
I had a lot of tests done at Columbia's Celiac Center, paid for by my insurance. When I saw Anne Lee, she did not accept my insurance, and I'm not sure whether she was taking any others, either. A friend of mine, who also has Celiac, has recently gone to a dietician in NYC that did not accept his insurance, so he also paid cash. He said that the only way his insurance will pay for a dietician is in the case of diabetes. It's probabaly because most dieticians are not doctors.

Just curious to know if you appealed the decision by your insurance company who did not cover the cost of a nutrition consult in Celiac Disease. My own insurance denied it, but was covered when it went through the medical review process. As we all know, the only treament for Celiac disease is dietary modification.

For the record, I am insured by Blue Cross and Blue Shield. I am also a former nurse case manager who knows if you present a logical case to a review board they aree likely to see it your way.

Do you have insurance through an employer? The Human resources liason with the insurance company can also try to work this into the policy the next time negotiations come up. Just a thought.

ENF Enthusiast
Just curious to know if you appealed the decision by your insurance company who did not cover the cost of a nutrition consult in Celiac Disease. My own insurance denied it, but was covered when it went through the medical review process. As we all know, the only treament for Celiac disease is dietary modification.

For the record, I am insured by Blue Cross and Blue Shield. I am also a former nurse case manager who knows if you present a logical case to a review board they aree likely to see it your way.

Do you have insurance through an employer? The Human resources liason with the insurance company can also try to work this into the policy the next time negotiations come up. Just a thought.

I now have Blue Cross and Blue Shield, but was insured by United Health Care when I had medical tests done at Columbia Celiac Center

We did not petition the insurance company for payment of the dietician servics at Columbia, but your's is a good suggestion for anybody else that goes to a dietician that is not covered.

givenupgluten Explorer

In my case, my insurance DOES cover the cost of seeing a registered dietician/nutritionist, however the Columbia Celiac center's nutritionist does not accept ANY insurance. The nutritionist that I saw most recently did accept my insurance, and I only had to pay a copay. So it's frustrating to think that I could see someone where my cost is covered or shell out 100-200 dollars to see someone else. Plus, I really just don't have that kind of money right now. Can anyone recommend someone who does accept insurance and also has some specialty in celiac? I'm also vegetarian (mostly vegan really) with some other food allergies...and I need to lose weight if you can believe that! haha...I've never been so restricted in my diet in my life, and yet I'm still slightly overweight :(

  • 1 month later...
NYCCeliacMom Apprentice

I have an appointment at Columbia for my teenage daughter. I was told by the dietician that I could see her and have the appt covered by insurance if I brought my daughter to see one of the doctors there first. I have to bring all her diagnositic results with me. We have Oxford insurance, and they have a list of dieticians you can see, as well. The appointments are scheduled with 15 minutes of each other.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 5 weeks later...
NYCCeliacMom Apprentice

I wanted to post a correction. Oxford will pay for the nutritionist to see my daughter at the pediatric Celiac Center, but will not pay for me to see a nutritionist while a patient of a doctor at the adult Celiac Center. The fee is $200.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,937
    • Most Online (within 30 mins)
      7,748

    VNelson
    Newest Member
    VNelson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal.  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) the small intestin in Celiac Disease and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  Why is poorly understood.  In fact, it wasn't even know that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So as part of your symptoms you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were sypmptos. Our western diet has many deficiencies build into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks for symptoms can come on quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, and indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog, deficient choline, iodine, thiamine. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study    
    • Rogol72
      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.