Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Attacked By Hidden Gluten?


cdews

Recommended Posts

cdews Newbie

I am a new celiac, just found out not even two weeks ago. I was already feeling better but suddenly today I am in pain again! I am wondering if I got something contaminated but didn't know it. The only thing I had today that was different from the past two weeks is a Coke from Wendy's. I thought Coke was okay! Does anybody know if it could be the culprit! I am really miserable again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

:D Coke is ok...that is the Coke brand is ok. I'm not sure about off brands but alot of sodas are gluten-free. In fact under the product section celiac3270 put out a whole bunch of drinks from some companies that are gluten-free. That may be of help to you. When you first start on the diet there are many things gluten is hidden under that you may not realize at first. I had many mistakes when I first started out..I would think something was gluten-free but it turned out it wasn't. On this site there is a safe list and a forbidden list for celiacs and it might help you out quite a bit when you first are starting off.

Here is the safe list link:

https://www.celiac.com/st_prod.html?p_prodi...-27105585002.d6

Here is the forbidden list link

https://www.celiac.com/st_prod.html?p_prodi...-14105595402.45

Here are additional things to look out for to make sure you keep a 100% gluten-free diet:

https://www.celiac.com/st_prod.html?p_prodi...-45105595402.c4

Hope this helps out a bit and if I can help you out anymore just let me know :D

Carriefaith Enthusiast

What have you been eating? We may be able to help if we knew...

Also, if you have any questions regarding the gluten free status of a product don't hesitate to ask. If I don't know, I'm sure someone here will know.

B)

cdews Newbie

Thanks! I don't know what it was, but I didn't think about my toaster! Thanks for pointing me to the lists. There is a lot of stuff here, which is good but it takes a while to find it all! Feeling a little overwhelmed... Tonight I also was dishing up some strawberry shortcake for the kids (gluten-free angel food cake) and since the Cool Whip is suspect, I wasn't going to have any on mine. Then, I just wiped off the spoon with my finger when I was done and stuck it in my mouth! Not even thinking! I spit it out and gargled with water. I was freaking out. I have three kids who are being tested this week. I couldn't stop feeding them gluten because of that, but once we get the tests done I'm throwing almost everything out! Keeping it around seems about as good an idea as keeping nuclear waste in the basement!

So thankful for this website and all the help and information!

cdews Newbie

Medaka, thanks for asking. Mostly I've been eating Barbara's Rice Crisps or Honey Rice Puffins for breakfast with Silk Soymilk. Lunch is leftovers from dinner the night before. Dinners are usually family favorites I've converted by carefully checking the labels. Chicken Enchiladas made with corn tortillas, chicken baked by me, Hatch Green Chile Enchilada sauce and cheese. Rice spaghetti with homemade spaghetti sauce from canned tomatoes and spices from my kitchen. I was told all McCormick spices are gluten-free? I've tried to be really careful...

One thing that I've found conflicting info on is my favorite Chai from Starbucks. Tazo Teas wrote me back an email saying they are gluten-free except for a few other products that I never use. But somewhere I saw that Tazo Chai wasn't gluten-free.... I can't remember where. So I'm a little worried there, I really love my Chai fix.

So how's that sound? Any red flags in that stuff? Thanks so much!

Carriefaith Enthusiast

I hope you're kids don't have celiac disease. Good luck!

As of June 2004, Cool Whip topping, topping light, ultra fat topping, aerosol, light aerosol, and dream whip are all gluten free.

(I live in Canada so products may be different if you live in a different county).

Carriefaith Enthusiast

I think we keep missing each others posts by a few seconds LOL :lol:

McCormick will clearly list any gluten on their products.

For corn tortillas, go with Old El Paso since they will always list gluten or traces of gluten in their ingredients.

For canned tomatoes or tomato sauce - Hunt's-Wesson will also clearly label gluten

I am unsure about Barbara's Rice Crisps, Honey Rice Puffins, Silk Soymilk, Hatch Green Chile Enchilada sauce or Chai from Starbucks. Anyone else know?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cdews Newbie

I'm in the US, I read the Cool Whip label and it had "modified food starch" on it so I opted out. I guess it could be corn starch, but not taking any chances.

I have Clan Thompson's list of safe foods, but Cool Whip says Unknown, manufacturer says check ingredient lists everything is disclosed, they won't give this info over the phone. But then they use a vague term like modified food starch... frustrating!

celiac3270 Collaborator

Cool Whip is made by Kraft, though, so any gluten must be clearly listed on the label. Of course, once the spoon goes from the strawberry shortcake back into the container, it's contaminatd. You should keep separate jars/containers of everything: peanut butter, jelly, butter, etc. unless you can be 100% sure that you don't double dip with gluten containing foods.

Every softdrink made by Pepsi, Co. is gluten-free--that includes Pepsi (all versions: diet, caffeine-free, etc.), Pepsi Twist, Pepsi Wild Cherry, Mountain Dew, Slice, and everything else I forgot :D. Coca-Cola will send you a product list if you e-mail them. I don't happen to have that list on hand, but all varieties of Coke are on it (Classic, diet, caffeine-free, etc.), Coke with lemon, Sunkist, and many, many others. Always be careful with fountain drinks, as sometimes those "supermarket colas" are used instead of actual Coke or Pepsi, so you could get glutened that way. Also, they sometimes use a syrup, then add a ton of a white powdery stuff (that looks like sugar, but you have to be really careful if it doesn't come in a can or bottle.

Welcome--do print those lists Kaiti provided--:D

-celiac3270

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,363
    • Most Online (within 30 mins)
      7,748

    NAC
    Newest Member
    NAC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...