Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Attacked By Hidden Gluten?


cdews

Recommended Posts

cdews Newbie

I am a new celiac, just found out not even two weeks ago. I was already feeling better but suddenly today I am in pain again! I am wondering if I got something contaminated but didn't know it. The only thing I had today that was different from the past two weeks is a Coke from Wendy's. I thought Coke was okay! Does anybody know if it could be the culprit! I am really miserable again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

:D Coke is ok...that is the Coke brand is ok. I'm not sure about off brands but alot of sodas are gluten-free. In fact under the product section celiac3270 put out a whole bunch of drinks from some companies that are gluten-free. That may be of help to you. When you first start on the diet there are many things gluten is hidden under that you may not realize at first. I had many mistakes when I first started out..I would think something was gluten-free but it turned out it wasn't. On this site there is a safe list and a forbidden list for celiacs and it might help you out quite a bit when you first are starting off.

Here is the safe list link:

https://www.celiac.com/st_prod.html?p_prodi...-27105585002.d6

Here is the forbidden list link

https://www.celiac.com/st_prod.html?p_prodi...-14105595402.45

Here are additional things to look out for to make sure you keep a 100% gluten-free diet:

https://www.celiac.com/st_prod.html?p_prodi...-45105595402.c4

Hope this helps out a bit and if I can help you out anymore just let me know :D

Carriefaith Enthusiast

What have you been eating? We may be able to help if we knew...

Also, if you have any questions regarding the gluten free status of a product don't hesitate to ask. If I don't know, I'm sure someone here will know.

B)

cdews Newbie

Thanks! I don't know what it was, but I didn't think about my toaster! Thanks for pointing me to the lists. There is a lot of stuff here, which is good but it takes a while to find it all! Feeling a little overwhelmed... Tonight I also was dishing up some strawberry shortcake for the kids (gluten-free angel food cake) and since the Cool Whip is suspect, I wasn't going to have any on mine. Then, I just wiped off the spoon with my finger when I was done and stuck it in my mouth! Not even thinking! I spit it out and gargled with water. I was freaking out. I have three kids who are being tested this week. I couldn't stop feeding them gluten because of that, but once we get the tests done I'm throwing almost everything out! Keeping it around seems about as good an idea as keeping nuclear waste in the basement!

So thankful for this website and all the help and information!

cdews Newbie

Medaka, thanks for asking. Mostly I've been eating Barbara's Rice Crisps or Honey Rice Puffins for breakfast with Silk Soymilk. Lunch is leftovers from dinner the night before. Dinners are usually family favorites I've converted by carefully checking the labels. Chicken Enchiladas made with corn tortillas, chicken baked by me, Hatch Green Chile Enchilada sauce and cheese. Rice spaghetti with homemade spaghetti sauce from canned tomatoes and spices from my kitchen. I was told all McCormick spices are gluten-free? I've tried to be really careful...

One thing that I've found conflicting info on is my favorite Chai from Starbucks. Tazo Teas wrote me back an email saying they are gluten-free except for a few other products that I never use. But somewhere I saw that Tazo Chai wasn't gluten-free.... I can't remember where. So I'm a little worried there, I really love my Chai fix.

So how's that sound? Any red flags in that stuff? Thanks so much!

Carriefaith Enthusiast

I hope you're kids don't have celiac disease. Good luck!

As of June 2004, Cool Whip topping, topping light, ultra fat topping, aerosol, light aerosol, and dream whip are all gluten free.

(I live in Canada so products may be different if you live in a different county).

Carriefaith Enthusiast

I think we keep missing each others posts by a few seconds LOL :lol:

McCormick will clearly list any gluten on their products.

For corn tortillas, go with Old El Paso since they will always list gluten or traces of gluten in their ingredients.

For canned tomatoes or tomato sauce - Hunt's-Wesson will also clearly label gluten

I am unsure about Barbara's Rice Crisps, Honey Rice Puffins, Silk Soymilk, Hatch Green Chile Enchilada sauce or Chai from Starbucks. Anyone else know?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cdews Newbie

I'm in the US, I read the Cool Whip label and it had "modified food starch" on it so I opted out. I guess it could be corn starch, but not taking any chances.

I have Clan Thompson's list of safe foods, but Cool Whip says Unknown, manufacturer says check ingredient lists everything is disclosed, they won't give this info over the phone. But then they use a vague term like modified food starch... frustrating!

celiac3270 Collaborator

Cool Whip is made by Kraft, though, so any gluten must be clearly listed on the label. Of course, once the spoon goes from the strawberry shortcake back into the container, it's contaminatd. You should keep separate jars/containers of everything: peanut butter, jelly, butter, etc. unless you can be 100% sure that you don't double dip with gluten containing foods.

Every softdrink made by Pepsi, Co. is gluten-free--that includes Pepsi (all versions: diet, caffeine-free, etc.), Pepsi Twist, Pepsi Wild Cherry, Mountain Dew, Slice, and everything else I forgot :D. Coca-Cola will send you a product list if you e-mail them. I don't happen to have that list on hand, but all varieties of Coke are on it (Classic, diet, caffeine-free, etc.), Coke with lemon, Sunkist, and many, many others. Always be careful with fountain drinks, as sometimes those "supermarket colas" are used instead of actual Coke or Pepsi, so you could get glutened that way. Also, they sometimes use a syrup, then add a ton of a white powdery stuff (that looks like sugar, but you have to be really careful if it doesn't come in a can or bottle.

Welcome--do print those lists Kaiti provided--:D

-celiac3270

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,911
    • Most Online (within 30 mins)
      7,748

    Cici123
    Newest Member
    Cici123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.