Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Attacked By Hidden Gluten?

cdews

Recommended Posts

cdews Newbie
cdews
Posted

I am a new celiac, just found out not even two weeks ago. I was already feeling better but suddenly today I am in pain again! I am wondering if I got something contaminated but didn't know it. The only thing I had today that was different from the past two weeks is a Coke from Wendy's. I thought Coke was okay! Does anybody know if it could be the culprit! I am really miserable again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

:D Coke is ok...that is the Coke brand is ok. I'm not sure about off brands but alot of sodas are gluten-free. In fact under the product section celiac3270 put out a whole bunch of drinks from some companies that are gluten-free. That may be of help to you. When you first start on the diet there are many things gluten is hidden under that you may not realize at first. I had many mistakes when I first started out..I would think something was gluten-free but it turned out it wasn't. On this site there is a safe list and a forbidden list for celiacs and it might help you out quite a bit when you first are starting off.

Here is the safe list link:

https://www.celiac.com/st_prod.html?p_prodi...-27105585002.d6

Here is the forbidden list link

https://www.celiac.com/st_prod.html?p_prodi...-14105595402.45

Here are additional things to look out for to make sure you keep a 100% gluten-free diet:

https://www.celiac.com/st_prod.html?p_prodi...-45105595402.c4

Hope this helps out a bit and if I can help you out anymore just let me know :D

Carriefaith Enthusiast
Carriefaith
Posted

What have you been eating? We may be able to help if we knew...

Also, if you have any questions regarding the gluten free status of a product don't hesitate to ask. If I don't know, I'm sure someone here will know.

B)

cdews Newbie
cdews
Posted
  • Author

Thanks! I don't know what it was, but I didn't think about my toaster! Thanks for pointing me to the lists. There is a lot of stuff here, which is good but it takes a while to find it all! Feeling a little overwhelmed... Tonight I also was dishing up some strawberry shortcake for the kids (gluten-free angel food cake) and since the Cool Whip is suspect, I wasn't going to have any on mine. Then, I just wiped off the spoon with my finger when I was done and stuck it in my mouth! Not even thinking! I spit it out and gargled with water. I was freaking out. I have three kids who are being tested this week. I couldn't stop feeding them gluten because of that, but once we get the tests done I'm throwing almost everything out! Keeping it around seems about as good an idea as keeping nuclear waste in the basement!

So thankful for this website and all the help and information!

cdews Newbie
cdews
Posted
  • Author

Medaka, thanks for asking. Mostly I've been eating Barbara's Rice Crisps or Honey Rice Puffins for breakfast with Silk Soymilk. Lunch is leftovers from dinner the night before. Dinners are usually family favorites I've converted by carefully checking the labels. Chicken Enchiladas made with corn tortillas, chicken baked by me, Hatch Green Chile Enchilada sauce and cheese. Rice spaghetti with homemade spaghetti sauce from canned tomatoes and spices from my kitchen. I was told all McCormick spices are gluten-free? I've tried to be really careful...

One thing that I've found conflicting info on is my favorite Chai from Starbucks. Tazo Teas wrote me back an email saying they are gluten-free except for a few other products that I never use. But somewhere I saw that Tazo Chai wasn't gluten-free.... I can't remember where. So I'm a little worried there, I really love my Chai fix.

So how's that sound? Any red flags in that stuff? Thanks so much!

Carriefaith Enthusiast
Carriefaith
Posted

I hope you're kids don't have celiac disease. Good luck!

As of June 2004, Cool Whip topping, topping light, ultra fat topping, aerosol, light aerosol, and dream whip are all gluten free.

(I live in Canada so products may be different if you live in a different county).

Carriefaith Enthusiast
Carriefaith
Posted

I think we keep missing each others posts by a few seconds LOL :lol:

McCormick will clearly list any gluten on their products.

For corn tortillas, go with Old El Paso since they will always list gluten or traces of gluten in their ingredients.

For canned tomatoes or tomato sauce - Hunt's-Wesson will also clearly label gluten

I am unsure about Barbara's Rice Crisps, Honey Rice Puffins, Silk Soymilk, Hatch Green Chile Enchilada sauce or Chai from Starbucks. Anyone else know?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cdews Newbie
cdews
Posted
  • Author

I'm in the US, I read the Cool Whip label and it had "modified food starch" on it so I opted out. I guess it could be corn starch, but not taking any chances.

I have Clan Thompson's list of safe foods, but Cool Whip says Unknown, manufacturer says check ingredient lists everything is disclosed, they won't give this info over the phone. But then they use a vague term like modified food starch... frustrating!

celiac3270 Collaborator
celiac3270
Posted

Cool Whip is made by Kraft, though, so any gluten must be clearly listed on the label. Of course, once the spoon goes from the strawberry shortcake back into the container, it's contaminatd. You should keep separate jars/containers of everything: peanut butter, jelly, butter, etc. unless you can be 100% sure that you don't double dip with gluten containing foods.

Every softdrink made by Pepsi, Co. is gluten-free--that includes Pepsi (all versions: diet, caffeine-free, etc.), Pepsi Twist, Pepsi Wild Cherry, Mountain Dew, Slice, and everything else I forgot :D. Coca-Cola will send you a product list if you e-mail them. I don't happen to have that list on hand, but all varieties of Coke are on it (Classic, diet, caffeine-free, etc.), Coke with lemon, Sunkist, and many, many others. Always be careful with fountain drinks, as sometimes those "supermarket colas" are used instead of actual Coke or Pepsi, so you could get glutened that way. Also, they sometimes use a syrup, then add a ton of a white powdery stuff (that looks like sugar, but you have to be really careful if it doesn't come in a can or bottle.

Welcome--do print those lists Kaiti provided--:D

-celiac3270

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.