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Pms And Other Hormone Issues


skbird

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skbird Contributor

I have been looking for any information about this but only found contrary results. I am curious if other women find they have hormone issues with celiac disease/because of celiac disease that include PMS, bad cramps, heavy menstrual periods and extreme crankiness around "that time". I have read much info about people *not* having periods (ahhhh, what a blessing!) and having infertility issues (I had a miscarriage once when I was only about one month pregnant 16 years ago but haven't tried to have children since) but most of the info I read doesn't address my symptoms/issues.

I was on the pill for 13 years and stopped taking it 4 years ago as my hormones were getting more and more imbalanced. I used progesterone cream for a couple of years and then added Chaste Tree Berry supplements and that weaned me off the cream. Both supplements have helped me somewhat but recently I've been suspecting the Chaste Tree Berry supplement I take might have gluten (modified cellulose gum) and I can't get the company to respond to me to help me find out so I have been trying another weaker brand and the last two cycles for me have been very uncomfortable.

It makes sense to me that being deficient in nutrients would throw off the hormonal balance but what surprises me is that I haven't seen these symptoms described as a possible result of celiac disease. So I'm wondering if they have anything to do with it at all.

Does anyone else have any kind of experiences like this?

Thanks

Stephanie

gluten-free for 4 months now... sending in my Entero Lab test today.


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tarnalberry Community Regular

A deficiency in a number of vitamins and minerals can affect the menstrual cycle - in many ways. B vitamins, and calcium, in particular, I believe, can be a factor. (I take extra of both, because of this.) As for why it's not listed as a symptom... probably because it's been too difficult for doctors to connect, since these things occur independently of celiac quite frequently as well.

skbird Contributor

Thanks for the response.

I definitely take a B complex and cal/mag/zinc to help out with these things. I'm just baffled though. I thought I'd found a miracle when I first tried progesterone cream - it helped so much. But I'd like to find a solution that allows my body to start doing its job better, not rely on a supplement for the rest of my life.

Vitex Agnus (Chast Tree Berry) is supposed to stimulate your body to make more of the apropriate hormones. I have all the symptoms of having too little progesterone production on my own or way too much estrogen and I know that is linked to liver activity, which mine seems to be fine on the charts (lab tests always look great) but I have many symptoms of liver congestion.

I know having food intolerances and digestive problems are hard on the liver and/or can be made worse because of sluggish liver function so I try also to take supplements to help my liver (milk thistle, turmeric, raddish and beet juice, dandelion) and find that when I am more diligent I feel better, have more energy, etc. I have been thrown by the question as to whether or not my Vitex Agnus supplement as well as two liver combo supplements (Stone Free and Bupleurum Liver Cleanse by Planetary Formulas) all contain modified cellulose gum, all made by the same company, and I have not been able to find out if they are gluten free. I have called and emailed and left messages and no reply. I'm frustrated by this and can't seem to find equivalent supplements yet to take instead.

Anyway, I appreciate your response.

Stephanie

anerissara Enthusiast

I had these problems *before* going gluten-free, but they cleared up after I quit eating wheat. I think there must have been a connection, because I was having heavy periods and really bad pms before, these were symptoms that showed up about the same time other problems (rashes and bad gi symptoms, etc.) started causing trouble. I'd never had PMS before, but it was an issue for the 3 years before I went gluten-free. It's only been 2 months, but both months I noticed lighter bleeding and no pms! Yea! Hopefully this will keep up.

skbird Contributor

That's actually what I'd hoped would happen for me. Maybe I'm not giving myself enough time. Or maybe I'm getting enough gluten sneaking back into my diet somehow that I'm not aware of. I'm really looking forward to getting my results from Entero Lab. I just sent in my kit today.

I can't think of where I'd still be getting gluten, though.

Stephanie

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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