Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pms And Other Hormone Issues


skbird

Recommended Posts

skbird Contributor

I have been looking for any information about this but only found contrary results. I am curious if other women find they have hormone issues with celiac disease/because of celiac disease that include PMS, bad cramps, heavy menstrual periods and extreme crankiness around "that time". I have read much info about people *not* having periods (ahhhh, what a blessing!) and having infertility issues (I had a miscarriage once when I was only about one month pregnant 16 years ago but haven't tried to have children since) but most of the info I read doesn't address my symptoms/issues.

I was on the pill for 13 years and stopped taking it 4 years ago as my hormones were getting more and more imbalanced. I used progesterone cream for a couple of years and then added Chaste Tree Berry supplements and that weaned me off the cream. Both supplements have helped me somewhat but recently I've been suspecting the Chaste Tree Berry supplement I take might have gluten (modified cellulose gum) and I can't get the company to respond to me to help me find out so I have been trying another weaker brand and the last two cycles for me have been very uncomfortable.

It makes sense to me that being deficient in nutrients would throw off the hormonal balance but what surprises me is that I haven't seen these symptoms described as a possible result of celiac disease. So I'm wondering if they have anything to do with it at all.

Does anyone else have any kind of experiences like this?

Thanks

Stephanie

gluten-free for 4 months now... sending in my Entero Lab test today.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

A deficiency in a number of vitamins and minerals can affect the menstrual cycle - in many ways. B vitamins, and calcium, in particular, I believe, can be a factor. (I take extra of both, because of this.) As for why it's not listed as a symptom... probably because it's been too difficult for doctors to connect, since these things occur independently of celiac quite frequently as well.

skbird Contributor

Thanks for the response.

I definitely take a B complex and cal/mag/zinc to help out with these things. I'm just baffled though. I thought I'd found a miracle when I first tried progesterone cream - it helped so much. But I'd like to find a solution that allows my body to start doing its job better, not rely on a supplement for the rest of my life.

Vitex Agnus (Chast Tree Berry) is supposed to stimulate your body to make more of the apropriate hormones. I have all the symptoms of having too little progesterone production on my own or way too much estrogen and I know that is linked to liver activity, which mine seems to be fine on the charts (lab tests always look great) but I have many symptoms of liver congestion.

I know having food intolerances and digestive problems are hard on the liver and/or can be made worse because of sluggish liver function so I try also to take supplements to help my liver (milk thistle, turmeric, raddish and beet juice, dandelion) and find that when I am more diligent I feel better, have more energy, etc. I have been thrown by the question as to whether or not my Vitex Agnus supplement as well as two liver combo supplements (Stone Free and Bupleurum Liver Cleanse by Planetary Formulas) all contain modified cellulose gum, all made by the same company, and I have not been able to find out if they are gluten free. I have called and emailed and left messages and no reply. I'm frustrated by this and can't seem to find equivalent supplements yet to take instead.

Anyway, I appreciate your response.

Stephanie

anerissara Enthusiast

I had these problems *before* going gluten-free, but they cleared up after I quit eating wheat. I think there must have been a connection, because I was having heavy periods and really bad pms before, these were symptoms that showed up about the same time other problems (rashes and bad gi symptoms, etc.) started causing trouble. I'd never had PMS before, but it was an issue for the 3 years before I went gluten-free. It's only been 2 months, but both months I noticed lighter bleeding and no pms! Yea! Hopefully this will keep up.

skbird Contributor

That's actually what I'd hoped would happen for me. Maybe I'm not giving myself enough time. Or maybe I'm getting enough gluten sneaking back into my diet somehow that I'm not aware of. I'm really looking forward to getting my results from Entero Lab. I just sent in my kit today.

I can't think of where I'd still be getting gluten, though.

Stephanie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    2. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,921
    • Most Online (within 30 mins)
      7,748

    Rusty49
    Newest Member
    Rusty49
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.