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Lactose Intolerance Tes

Lesliean

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Lesliean Apprentice
Lesliean
Posted

I had the lactose breath test today and it was strongly positive with methane production. I feel like I did on gluten. Out of it, sick, sore side, hypoglycemic. Do you think this an indication of the intestinal damage? I am waiting for Enterolab testing and blood genetic testing with total A (he couldn't do more because I am gluten-free and don't want to go back to that gluten feeling again). Great doctor. Didn't want me to go back on gluten either and will accept positive genetic profile as a positive test. Boy am I glad I found you all. Thanks!

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tarnalberry Community Regular
tarnalberry
Posted

It's hard to say that it could be a sign of intestinal damage - plenty of people naturally can't digest lactose as an adult. (Actually, in the world as a whole, it's more common to be lactose intolerant as an adult than be able to tolerate it.) You can always try again in a few months (maybe four or five?) and see how it goes then.

Lesliean Apprentice
Lesliean
Posted
  • Author

Here is a question for you. The gp did reticulin, anti-glaindin, and tissue transglutaminase, but on day 21 gluten-free. My asthma specalist thinks with the lactose test positive and the blood work negative (day 21 not long enough to change tests) I must be negative for gluten intolerance. But would you think it could just be lactose if you stopped having: constipation, bleeding, pain, hypoglycemia, circles under your eyes, burping, congestion deep in chest, voice loss, circular bruising...? I wait anxiously for the gene testing. What do you think about it only being lactose? Thank you!!

tarnalberry Community Regular
tarnalberry
Posted

I don't know about all that coming from just lactose intolerance, but - depending on how fast you heal and how long you had been gluten-free and how much antibodies you produce and how the labs read the tests - 21 days gluten-free might have been long enough for you to end up testing negative. You might try to find out what your actual values were.

KaitiUSA Enthusiast
KaitiUSA
Posted

It's said that for a test to come back positive you need to be on gluten. That could very well be enough time that went by without gluten to make it come back negative. Lactose intolerance can come with celiac due to damage to the villi so I would not rule out celiac quite yet if I were you.

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      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
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      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
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