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I Need Help


Nora1219

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Nora1219 Newbie

I have had a really rough year I had my gallbladder out April 7, stayed sick after that was diagnosed with Celiac by positive blood test and biopsy June 3, 2008 even after being on a gluten free diet i have still been very sick so GI did a follow up endoscopy on Mon and found that i have several severe ulcers and erosive gastritis so now i really need help. Has anyone else had this happens to them? anyone have any suggestions on how to help all of this stomach pain and the best things to eat and drink that won't make it worse, or my diarrhea worse. any help is appreciated


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ShayFL Enthusiast

Sorry you are not feeling well.

Did you get tested for H. Pylori? If you have it, it will need to be treated. I personally would use Mastic Gum and Deglycyrrhizinated Licorice plus lots of fresh/clean water to get rid of it. But ask your doctor about this.

I would also take Digestive enzymes with my meals. Like "Digest More". No HCL (Hydrochloric Acid for now). Plus a good probiotic. And "Pepzin GI" to heal my stomach lining.

Avoid the foods that aggravate ulcers:

Open Original Shared Link

Eat everything else not on that list.

This is what "I" would do, but check with your doctor before trying anything you read online.

Nora1219 Newbie

they did a biopsy of the ulcers so i think he is testing for the H. Pylori from what i understand and they started me on acid reducing medicine that is supposed to help heal, but takes time. Thanks for the advice!

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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