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8 Months Pregnant---need Advice


mandigirl1

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mandigirl1 Enthusiast

Hello,

A few moths ago I posted a question regarding when and how to test your newborn baby for Celiac....I didnt get a lot of responses though. Im hoping that more people will read this post and have some advice/suggestions....

Does anyone have experience testing their baby for Celiac? Im 8 months pregnant and wont be breastfeeding, so Im wondering what kind of formula does the baby need? Which one is safe? When do you test? How? Im wondering if I should contact Colombia Univ. Celiac Center (I once saw Dr Green for a visit when I was diagnosed 10 years ago) and see if they could help.....Any opinions on this?

Also, does anyone know of a NY pediatrician who has experience or specialty in Celiac? Or, in general, does anyone have a good pediatrican they can recommend in the NYC area? Im trying to find a doctor now before the baby comes, but I find it difficult to chose one? Obviously Id like to get a recommendation and am asking friends/family members too. I figured Id try here to since this is a helpful website with other caring Celiacs, who can and do, really help one another.

Thank you for any help at all!!!

  • 3 weeks later...

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myammer Newbie

I had the same concerns and questions for my pediatrician when i was pregnant, and spoke to him early on. He said that there was nothing to be worried about, and that any formula ( I didn't breastfeed either) was fine. We used enfamil. I now have a 2 year old who eats gluten with no problem. My doctor suggested that I don't do anything different with him, except for push off gluten until about 6 months, which was fine since we weren't going to give him solids until than anyway.

Good luck and congratulations!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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