Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Blood Test Results For My Daughter

kreale

Recommended Posts

kreale Newbie
kreale
Posted

My 10-year old daughter recently received blood test results back that indicated positive for Celiac. The results are:

The results are as follows:

t-Transglutaminase IgA AB - 134.6

Endomysial Abs, S Positive, Titer 1:640

Gliadian Ab IgA - 46.3

Gliadian IgG 67.5

Reticulin Abs Negative

These numbers really don't mean much to me - does anyone else understand them?

My daughter was diagnosed a year and a half ago with Type 1 diabetes. We've already made many adjustments to her diet due to that, and we were on track to migrate to an insulin pump, but these test results made our endocrynologist want to take pause until we knew more. Thats why we had the blood tests in the first place. We have an appt. with the pediatric gastro-enteurologist (sp?) in early December. Our daughter is not showing any big symptoms; rather, it is a matter of her insulin absorption that seems to be her biggest symptom. Her tummy hurts when her glucose numbers are high, but doesn't seem to bother her much aside from them.

Any assistance you can offer is greatly appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

The bloodwork results are highly indicative of Celiac, especially considering that they were almost all pretty positive.

Celiac is linked to Type 1 Diabetes.

More info on testing: Open Original Shared Link

Open Original Shared Link

Its great that you have an appointment w/a GI soon. They will probably discuss taking some biopsies of the small intestine.

Celiac can present without 'major' symptoms. She'll need to keep eating gluten free until at least after the consult with the GI....and until all Celiac diagnostic testing is completed. Don't go gluten free yet.

Good luck. You've come to a great place for support and information.

kreale Newbie
kreale
Posted
  • Author

Wow - thanks so much for the quick response. Our endo. told us not to change her diet, so we haven't done so yet. We have to wait nearly 8 weeks for an appt. with the specialist; seems like a long time, when I keep thinking we're slowly eating away at her digestive system.

I did know there was a link between Type 1 Diabetes and Celiac, but really had hoped it would not be the case.

Anyway, thanks for doing a better job interpreting her blood results than I did!

When I know more after our December appt., I'll likely have many more questions!

Thanks again!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,057
    • Most Online (within 30 mins)
      7,748
    Cherry Trafton
    Newest Member
    Cherry Trafton
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Blood results

      By trents · Posted

      Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
    • knitty kitty
      Oral thrush question

      By knitty kitty · Posted

      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Nutrient deficiencies despite normal MARSH and strict gluten-free diet

      By Scott Adams · Posted

      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Blood results

      By knitty kitty · Posted

      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
×
×
  • Create New...