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Dh On The Face?


MollyBeth

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MollyBeth Contributor

Has anyone on here ever had a DH outbreak on their face? I haven't had the problem since last spring...When it happens my eyes almost swells completely shut and when it finally clears up my skin is so dry that it peels in places like after a sunburn. I went to a doctor once and all they could tell me was that it wasn't allergies but they weren't sure what it was. I was just thinking about this and was wondering if it was in anyway related to Celiac? It doesn't look like the photos of DH I've seen... It's more like hives. Anyone have any thoughts?


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ravenwoodglass Mentor

I had DH outbreaks on my face. Most lesions were on my arms and legs in the bends of the joints, the back of my neck and scalp, the palms of my hands and when I was a child the blisters covered me basically head to toe.

They were very unpleasant and disfiguring. My DS pointed out a couple of years ago that although I have mirrors all over the house all of them were placed to high or to low to see my face. I really hadn't noticed. It took about 6 months on the diet before all the oozing blisters finally healed and stopped reappearing. I will still have a outbreak with a glutening but usually only a couple tiny blisters that heal quick.

When it happens again you should see a dermatologist if you can. Your description doesn't sound like DH it does as you said sound more like hives.

  • 3 weeks later...
Pix Newbie

I get it on the left side of my face and my left tricep. It itches like mad and I have scars that just look like acne scars. So yes, it's possible to get it on your face :(

MollyBeth Contributor

I had another facial outbreak and went to the doctor. She said it was hives. We're not really sure what's causing them. I've been taking Zyrtech and they've cleared up. When I was in High school I used to randomly break out with hives on my back and legs...We never figured out what was causing it then either... You know...We may have made a lot of advances medically but there is still sooo much we don't know!!

  • 4 weeks later...
clydeshannon5 Rookie

I get lesions on my face, they peel like i have had sunburn. pretty sure it is dh and not hives. check out the SCD diet and consider that for a good month. symptoms will usually go away when the gut has had time to really rest and heal up.

hope that helps.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
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    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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