Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Don't Want To Eat Anymore


dfish

Recommended Posts

dfish Apprentice

Hello all! I'm just hoping for some suggestions because, well, I'm totally frustrated. I've been in the process of a gluten challenge for more testing because my other test results were inconclusive, but I decided to stop the challenge and just go for some Enterolab testing. I haven't felt any better or any worse, honestly, while eating gluten. I have decided that I want to try eliminating some foods to see if I start feeling better, but honestly, I don't know what to eat anymore and kind of feel like just not eating anything. From my personal "stomach" experience, I can't eat any grains, including rice, etc, dairy, soy, eggs, or chicken. I also cannot eat salads because they basically don't even digest, so that leaves out living on salads. Tomatoes hurt my stomach, as do citrus fruits, etc. What do people eat when they can't eat wheat, grains, dairy, eggs, chicken, or soy? I can't cope with not knowing what to put into my stomach and being totally terrified to eat. There's no rhyme or reason to what makes me sick. These least few weeks I have been eating gluten and felt the same as I did before when I was gluten free, I can eat rice with soy sauce and be sicker than a dog, but then I can eat cheese one day and I'm fine and the next day I'm a wreck; hence, that's why I've decided to eliminate most of the "main culprits" of food allergies/sensitivies, but what does that leave when even a lot of veggies hurt my tummy?

Any suggestions on how to cope with such a limited diet would help. I should also add I live in a small town with very few options for specialty foods; basically, if I can't find it at Safeway, I can't buy it :(

Thanks again!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Before I was diagnosed everything I would eat would upset my stomach. I didn't feel like eating anymore because I was sick of feeling so bad. I was also lactose intolerant on and off my whole life as well. After a few months gluten free I was no longer lactose intolerant and nothing irritated my stomach except for gluten. Some people are sensitive to alot of things though and when going gluten free it may or may not clear it up.

Have you found out what you are sensitive too? It also depends how sensitive you are to these foods because some foods you could have in moderation. As your body gets better and heals your body will most likely start accepting some of these foods again.

Also if you are not on enzymes and probiotics I would highly recommend getting on them. They should help you with digesting food and give you less problems when eating. Liquid vitamins are good for you too.

Hope you start feeling better and get some answers if I can be of any help let me know :D

mopsie Newbie

Your story sounds very familiar! Before I was diagnosed so many things made me sick. I felt the best eating small amounts of the following: buckwheat, apples, bananas, carrots, potatoes, poached eggs or broiled fish - that was what I lived on for quite a while till my bowel healed, then I slowly started adding other foods. Caffiene, and citrus , tomatoes, were a big no-no. Even now if I accidentally get some gluten, I have to go back to eating completely bland for several weeks. Hope this makes you feel not so alone.

angel-jd1 Community Regular

I have been feeling similar the last couple of weeks. I have not been hungry, nothing sounds good to eat. If I SMELL food, I get hungry, but otherwise not hungry. Living alone, you don't SMELL much food!! ha I try to make myself eat one meal a day. I know I have to eat. Just not sure why I haven't been in the mood for food lately.

-Jessica :rolleyes:

CateK Newbie

I may be off base here even suggesting this... but years ago I went through a period of depression. I lost my appetite completely. I lost 65 pounds before I finally went for help.

You might want to make sure you are not experiencing depression. Certainly, the upheavals of this illness could contribute to depression. ;)

Guest nini

before my diagnosis everything made me sick, I was also lactose intolerant until I had been gluten-free for several weeks, then I was able to eat dairy again. I also am allergic to penicillin and other antibiotics and also hormone sensitive, I found if I eat "clean" meats (no hormones or antibiotics ever) than I could eat chicken, pork and beef without getting ill.

I'm still afraid to try new things or even things that I ate pre-dx, like shrimp and lobster, because I thought I was reacting to shellfish even though the allergy screening didn't show any of the major food allergens. After a while you get so sick of feeling sick everytime you eat that eating becomes terrifying. I will go hungry if I am in doubt about whether or not something is gonna make me sick.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.