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For Girls Only...


Kylie

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Kylie Explorer

OK so this is for the girls only. I was diagnosed with celiac when I was 16 years old but was very sick for about a year leading up to it. Before I was diagnosed I stopped going through puberty. My period became very irregular after being regular since I was 12. I stopped growing breast tissue, stopped gaining weight, the whole nine yards. Once I was diagnosed, the doctors told me that puberty should return. I am now almost 20 and the years of normal puberty are pretty much over, and nothing has changed in the last 4 years. I did grow a few more inches, my hips got slightly wider but nothing else. I still have the bone in the middle of my chest that was supposed to go away, the baby face, and I'm not too sure how regular my period is because I take birth control now after being so irregular and getting annoyed. Did this happen to anyone else? Am I doomed to look like a 12 year old forever?


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minton Contributor

you may want to talk to your doctor about switching birth control. maybe a higher level of hormone too. i had to do that at first because my body was so screwed up it didn't absorb the low hormone pill. it helped after only a few months and i was able to switch to low dose afterwards.

  • 2 weeks later...
Anna and Marie Newbie

I've been there too. I'm half out and half in, sort of. I don't have muenstral periods(I skipped 39 consecutive months, had one day of spotting, skipped two more months and had one tiny little spot, and now I'm going on three months without one). The odd thing is that while my horomones aren't exactly right, my chest is growing. It is so weird. I'm used to like half an A cup, and half is pushing it!, now I'm up to a B. I dunno. It doesn't make sense and doctors don't always know either. Good luck,

~Anna B)

mommida Enthusiast

I have noticed taking Biotin has been helping with the girls. I started taking it for hair and nail growth and noticed a firming up. I've never had much to work with. :ph34r: I've had two kids and I BF. The girls thought it was time to retire down south after that. :blink: Now they're at least two or three states up from Florida. :P

MySuicidalTurtle Enthusiast

I did finish puberty and all but stopped growing height-wise at age 12. The advice about a different hormone level in your birth control sounds like a good idea. Good luck!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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