Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptom, Weight Gain


kjlieb

Recommended Posts

kjlieb Newbie

Hello. Over the past 4 years I've put on about 20 lbs in spite of eating healthy and exercising regularly (I work in the fitness industry so I move my body constantly). I also experience constant abdominal bloat and fluid retention, fatigue and joint pain, some digestive trouble, borderline anemia and insatiable appetite. I have been tested for thyroid, lymes AND celiac which all came back negative.

I recently tried the Zone diet cutting out grains for the most part and immediately began to see an alleviation of all symptoms - I lost a few pounds and for once felt in control of my appetite.

Of course I fell off the Zone wagon over Thanksgiving and I've felt practically crippled with joint pain and my belly puffed right out again.

I'm convinced I must have a gluten sensitivity at the very least, if not a true celiac. From what I've read, it's a disease that causes malnourishment, so why the weight gain as a symptom? anyone know?

thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lbd Rookie
Hello. Over the past 4 years I've put on about 20 lbs in spite of eating healthy and exercising regularly (I work in the fitness industry so I move my body constantly). I also experience constant abdominal bloat and fluid retention, fatigue and joint pain, some digestive trouble, borderline anemia and insatiable appetite. I have been tested for thyroid, lymes AND celiac which all came back negative.

I recently tried the Zone diet cutting out grains for the most part and immediately began to see an alleviation of all symptoms - I lost a few pounds and for once felt in control of my appetite.

Of course I fell off the Zone wagon over Thanksgiving and I've felt practically crippled with joint pain and my belly puffed right out again.

I'm convinced I must have a gluten sensitivity at the very least, if not a true celiac. From what I've read, it's a disease that causes malnourishment, so why the weight gain as a symptom? anyone know?

thanks!

Because your body thinks it is malnourished, it will sometimes begin to conserve what few resources it is getting, thus weight gain. That is what happened to me - as soon as I went completely gluten-free, I lost 10 lbs without even trying.

Laurie

kjlieb Newbie
Because your body thinks it is malnourished, it will sometimes begin to conserve what few resources it is getting, thus weight gain. That is what happened to me - as soon as I went completely gluten-free, I lost 10 lbs without even trying.

Laurie

aaahh... that would explain the constant hunger, right? did you have a positive medical test?

can you recommend a good book to shop/cook gluten free? right now I'm eating basics, the only grain being rice.

katie

neesee Apprentice

I got very thin. 78 lbs. My total cholesterol was 96.

neesee

henny Explorer

I was like you....used to be really althletic, then as GI symptoms appeared I had steady weight gain, constant hunger, slow metabolism, bloating

I exercised regularly but it was a struggle due to low energy and stomach pain

went gluten free 2 months ago and everything corrected itself, including my weight.

I'm now 8 lbs from my 'goal weight' without even trying. And with my improved health, exercise is fun again! I'm guessing that I will end up well under my goal weight as time goes on, but that's fine with me as long as I feel strong :)

glad you are starting to feel better!!!!!!

thankful Newbie
Hello. Over the past 4 years I've put on about 20 lbs in spite of eating healthy and exercising regularly (I work in the fitness industry so I move my body constantly). I also experience constant abdominal bloat and fluid retention, fatigue and joint pain, some digestive trouble, borderline anemia and insatiable appetite. I have been tested for thyroid, lymes AND celiac which all came back negative.

I recently tried the Zone diet cutting out grains for the most part and immediately began to see an alleviation of all symptoms - I lost a few pounds and for once felt in control of my appetite.

Of course I fell off the Zone wagon over Thanksgiving and I've felt practically crippled with joint pain and my belly puffed right out again.

I'm convinced I must have a gluten sensitivity at the very least, if not a true celiac. From what I've read, it's a disease that causes malnourishment, so why the weight gain as a symptom? anyone know?

thanks!

thankful Newbie
Hello. Over the past 4 years I've put on about 20 lbs in spite of eating healthy and exercising regularly (I work in the fitness industry so I move my body constantly). I also experience constant abdominal bloat and fluid retention, fatigue and joint pain, some digestive trouble, borderline anemia and insatiable appetite. I have been tested for thyroid, lymes AND celiac which all came back negative.

I recently tried the Zone diet cutting out grains for the most part and immediately began to see an alleviation of all symptoms - I lost a few pounds and for once felt in control of my appetite.

Of course I fell off the Zone wagon over Thanksgiving and I've felt practically crippled with joint pain and my belly puffed right out again.

I'm convinced I must have a gluten sensitivity at the very least, if not a true celiac. From what I've read, it's a disease that causes malnourishment, so why the weight gain as a symptom? anyone know?

thanks!

hi,

I thought I would share with you about insulin resistance....I found out in may that i was insulin resistant from having a fasting glucose test done....I had no idea what that was....anyway, long story short, symptoms were what you described yours to be...I have lost 35 pounds now from eating low carb and feel great!!! Do have a fasting glucose test done by your doctor to check for insulin resistance/metabolic syndrome...I hope this helps..LoL


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

Since there is a relationship between celiac and diabetes this makes sense.

I also have weight gain as a symptom of celiac. I agree with the malnourishment comment. Another factor is inflammation response. I also lost weight very gradually and steadily on gluten-free diet even though before I could only lose weight on a very strict low carb diet. After I went on the specific carbohydrate diet this summer I lost another 10 pounds very suddenly about the second week. Due to the suddenness, I am pretty sure it was inflammation.

I recently saw a reference that said they now think that many more celiacs gain weight than lose weight before diagnosis. Sorry I can't recall the reference. There was a great article of one of the issues of Scotts celiac magazine which you can order from this site. It was about a very obese person who lost much weight after starting the gluten-free diet. She was telling her friends about it, who were also quite obese. 6 of them went to have testing for celiac and ALL of them were positive. That was an eye-opening article for me.

You might double check the posts on this site on celiac testing to make sure you had all 5 tests.

kjlieb Newbie

thanks to all of you for sharing your personal experiences and insight. I will follow up.

kt

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.