Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Should I Test?


byebyegluten

Recommended Posts

byebyegluten Newbie

i went gluten free over a year ago, and am fairly certain that i have celiac. my mother also has a wheat intolerance. i of course cut out everything from my diet and THEN tried to have the blood test done, which was negative because i had stopped eating it. there is NO way that i can go back on gluten to have the testing done- i get so sick i can't move.

i've also been 'lactose intolerant' since i was a child, but i think that is also a casein intolerance, not just lactose. since eliminating gluten, i have found out that i'm also intolerant to soy. however, i still feel like other things are bothering me, and i'm suspecting rice and corn and possibly something else.

anyways, i'm interested in getting intolerance testing done as well as the celiac genetic testing. i know people have mentioned enterolabs. is there anywhere else i can get testing (in the U.S.) that will test for multiple intolerances? i have had the food allergy blood panel done (i think it was igG) and those were all negative. any help would be appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,918
    • Most Online (within 30 mins)
      7,748

    Lkayladybug
    Newest Member
    Lkayladybug
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hummer01
      Hi trents, thanks for the response. I started the challenge the 2nd week of April with 2 slices of sandwich bread per day (tried to get a larger loaf size, each slice weighed 50g) and continued that through April/May/June up until my scope this past week. On weekends I had extra gluten foods like noodles, cookies, etc. But couldn't tolerate much more than the 2 slices during the workweek. I had hoped that doing this for ~9 weeks would be enough, since I only did 2 weeks for the first scope earlier this year.  Yes, the doctor who did the actual scope and told me about what she saw immediately after is the same doctor who reviewed the pathology report. 
    • Alibu
      I can't remember if I tried taking thiamine at one point and it didn't agree with me, or if I tried it but didn't take it very long.  I may have to try that out again.  I have taken magnesium threonate in the past and unfortunately it did not help with my migraines.  I do take a monthly injectable migraine preventative and I know not to eat after 8pm or I will wake up with a monster migraine (not sure why the time is a trigger, but it's there, LOL). I definitely have a histamine issue.  I think I actually may have MCAS but never been diagnosed with that.  That's good to know about Vitamin C and B12.  Thanks!!
    • Alibu
      From what I understand, my high antibody level and EMA positivity rule out NCGS because those are not typically elevated in NCGS.  That's what I've read anyway?   My doctor is calling it "potential" or "latent" celiac disease, which honestly is just frustrating.  I don't have celiac but I also don't not have celiac.  I'm just in limbo and I can either choose to continue eating gluten and see if it progresses, or I can go gluten free and see how I feel.   I hate this gray area - I just wanted something concrete and definitive and now I kind of wish I never started this whole process.
    • trents
      Tell us about your "longer gluten challenge". Current guidelines for the gluten challenge are the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least 2 weeks leading up to the blood draw day or the scoping/biopsy.  "I just received the pathology report with the doctor's comments, and it shows "findings not consistent with celiac disease" and that she believes I may have NCGS." Is this the same doctor who "stated that my duodenum was "drastically different" than the first scope and that "gluten is clearly doing something to me."? There are other medical conditions that can cause elevated tTG-IGA:  My suspicion, however, is that your gluten challenge wasn't rigorous enough and resulted in borderline test results.
    • sheba
      I have had good luck with eating deep fat fried foods and only mild symptoms of my fatigue and headaches.  Can anyone else relate to this? 
×
×
  • Create New...