Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Autoimmune Polyglandular Syndrome

HAK1031

By HAK1031
in Related Issues & Disorders

Recommended Posts

HAK1031 Enthusiast
HAK1031
Posted

Hey all,

I stumbled across this on discovery health's mystery diagnosis ;) But is sounded like something a lot of us here should be interested in. Here is link that explains it well:

Open Original Shared Link

I think this is something I might want to ask the doctor about, but I wanted to know anyone's opinions, especially those who are familiar with it. From what I've read candidiasis is one of the main symptoms, and I don't know if I had it as a child but I suspect I have it in my nailbeds now. I also don't menstruate (well, ovulate...I have very light infrequent menstruation) on my own and have been on birth control. I also have low blood pressure, CFS, numbness/poor circulation in extremities, and a history of low calcium (I broke 7 bones as a child). And, of course, all of the intestinal/celiac stuff.

But I feel a bit like I may be overreacting. I also have had my thyroid tested numerous times and it was normal...does anyone know if they test for PTH as well? Heh, I would hate coming into the doctor with an unfounded TV/internet self-diagnosis :) any thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

Yes... I've done a fair amount of reading about this. There are basically three kinds of PAS.

Type 1 is rare and usually develops in childhood; the main features are Addison's disease and hypoparathyroidism, both caused by autoimmune organ damage

Open Original Shared Link

Type 2 is also called "Schmidt's syndrome" and involves Addison's plus type 1 diabetes and/or an autoimmune thyroid condition

Open Original Shared Link

Type 3 involves an autoimmune thyroid condition plus at least one other autoimmune disorder (celiac, vitiligo, Sjogren's, RA, etc...) but not type I diabetes or Addison's; this is most common among adults and is probably the most common type of PAS overall

Open Original Shared Link

I'm pretty sure I have Type III PAS... I bet a lot of people on this forum do :(

redwolfgirl Newbie
redwolfgirl
Posted

My husband has alopecia and hypothyroidism and I did some research to see if it is linked to Celiac's because he was having some digestive issues. In doing so, I stumbled upon Polyglandular Autoimmune Syndrome, Type III. He is being tested for Celiacs and then we will know for sure. I have read that some with alopecia have "silent celiac" in that they do not have any symptoms. He has never had gastro symptoms until the last 6 months.

georgie Enthusiast
georgie
Posted

This is me - right to the possible Myasthenia Gravis dx of Type 2. I have Addisons but Drs cannot prove if its Primary or Secondary .. <_< So cannot get the PAS dx yet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,265
    • Most Online (within 30 mins)
      7,748
    V Arnold
    Newest Member
    V Arnold
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Kan-101

      By RMJ · Posted

      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Celiac symptoms

      By Dana0207 · Posted

      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...