Negative Blood Tests, Negative Colo/endo Scopy But Symptoms!

[pariseliac]

hello, i was really tired for a few years and especially last winter and early spring i had chronic diarrhea for about 3 months accompanied by great fatigue and prickly feelings in extremities.

after having had lots of things checked: spine, brain, blood, vitamins, minerals, someone suggested i try stopping gluten as i had said i had been sensitive to gluten. in a couple of weeks: miracle: went progressively and rather quickly from not being sure to be able to go out more than once a day and not working to working a full schedule and getting regular, sometimes intense exercise.

when i go back on gluten, i get the same symptoms again.

blood tests are negative and got a colonoscopy and upper endoscopy and the results came back negative. the guy who had me do those tests said i DIDN'T need to eat gluten again for the test to be accurate, but that is opposite to what i've read.

i haven't eaten much gluten for about 8 months or so and only ate a bit in the few days before the test.

i have little question about my symptoms and, quite frankly, couldn't bear to go back on a gluten diet for a month. i need a lot of energy for my work and life.

thanks for any input.

[ravenwoodglass]

If you have been gluten free that will cause a false negative. You would need to be back on a full gluten diet for at least 3 months for the tests to have any chance of coming back postive. You don't need a doctors permission to eat gluten free and being on the diet will not effect testing for other disorders. You have found a great place for info and support, welcome.