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Worst Gluten Reaction Ever And Scared

bremac

By bremac
in Coping with Celiac Disease

Recommended Posts

bremac Apprentice
bremac
Posted

Hi,

I only post on here about once a year so I apologize for barging in again. :P I have been gluten free due to diagnosed celiac for 7 and a half years now and I made a MAJOR booboo last night. I thought I was buying the Amy's Rice Crust Spinach Pizza but I got the WHOLE WHEAT one instead and somehow never noticed while I was preparing it and eating it. I only had one piece, thank God. And I just want to say that I already feel really stupid and I am always so so careful. I still cant' believe I did this!

Anyways, 3-4 hours after eating it (I felt fine up till then) I got really dizzy and nauseated. I had the dry heaves (I'm assuming that means my stomach was empty) for about 40 minutes (not fun!) Then I drank some water (at this point I didn't know I had been glutenated so I thought it was something else) and took a Pepcid AC. And THEN I projectile vomited and it was all the pizza. I vomited continuously for about 10 minutes and then I had 3 more episodes of pizza puking (so throwing up from 11pm to 2am) and horrible horrible nausea and belly pain (right below my ribs in the middle) that I couldn't move.

Anyways, I know that the one time I threw up from gluten before was when I had gluten free bread contaminated with wheat flour so I think I get that type of reaction if it's wheat, not so much with barley. Usually I only get glutened from cross contamination and I just have some diarrhea and bloating.

The weird thing is that I haven't had any diarrhea which is different for me; I always have either just the D or D+V never just V. Do you think that is because I vomited it all up from my intestines? It felt like it got stuck (the pizza) as soon as it got out of my stomach and my poor duodenum recognized it. And my stomach was definitely empty to begin with (4 hours after I ate and having the dry heaves). Maybe all the gluten got thrown up and that's why I don't have diarrhea?

The other upsetting thing is that I cannot eat, but I am drinking Gatorade and staying hydrated. It feels (24 hours later) like someone is punching me in my solar plexus and like I have this ball of burning pain high up in my belly (it's in the middle and kind of between the ribs, so pretty high). I've never had this before and it's scaring me if I can't eat. Could my intestines be so inflamed that they're swollen and that's why I have the pain and can't eat. I am not even hungry and when I tried to eat some mushed up gluten-free pretzels (what I always eat after a gluten reaction since I get really lactose intolerant and can't have my usual comfort food) the pain got a lot worse and I felt nauseated.

I took some Levsyn, which is an anti-spasmodic that I take under my tongue and that seemed to help a bit but wears off as soon as the next dose is due. That was prescribed not for my celiac but because I have biliary tract issues but it did help.

I am sorry this was so rambling. I just don't have anyone to ask about this and I am scared. I think I will call my GI doctor tomorrow and try to talk to him and ask what to do. If anyone has had this happen or knows what medicines would help or any advice I would appreciate it!

Thank you!

Bre

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rumbles Newbie
rumbles
Posted

Bre,

I'm sorry to hear that you're getting hit so hard by this! Keep the

Gatorade flowing, as you don't want an electrolyte imbalance! ~ And

definitely call/see your doctor! 24 hours is too long, - if you're still

vomiting tonight, call your doctor now, - the doctor should have an

answering service or have a way to page them.

Dry heaves come from a spasm of the stomach while the glottis

section (vocal cords and folds) of the throat are closed. Vomiting

("normal" or projectile) often includes contents from the duodenum.

The duodenum is where partially digested food is mixed with bile

and pancreatic enzymes for digestion in the next sections of the

small intestines; the duodenum is where iron and calcium are

absorbed. I wouldn't be as concerned about the duodenum being

a part of this, since that's not unusual, but would be concerned

that this has been going on for 24 hours. It sounds like you may

need a stronger antiemetic, prescribed by your doctor, to stop the

cycle that you're system seems to be stuck in. Please, call your

doctor as soon as possible.

YoloGx Rookie
YoloGx
Posted

Rumbles is probably right--see a Doc.

However if it was me (and it has happened) and you like a more home grown variety of health care, I would try taking some baking soda in water (1/2 to 1 teaspoon in a glass of water chased by more water). I would also take or make up some slippery elm (gruel or caps). Marshmallow root caps or powder mixed in cold water will also help. Both herbs are soothing and healing being anti inflammatory. Peppermint and chamomile tea are very soothing. Ditto with anise tea...

I would also take enterically coated acidophilus just to calm the system down.

I have found even just breathing in gluten dust my body gets inflammed all over. Probably the same thing happens even if it doesn't reach your gut directly--a huge reaction against food in this case...The baking soda should really help... It has done so for me whether I have had projectile vomiting or projectile D.

Meanwhile, continuing my down home approach, I would then take dandelion root and yellow dock when I could manage it....say a day later to get rid of residual inflammation and general liver toxicity. At that point too for me I take a tablespoon or two of Bragg's Apple Cider Vinegar to help balance out the system...Raw Celery then is good too for balancing the system... Though for you you might need cooked veggies at first?? My ex uses a juice extractor.

Bea

JNBunnie1 Community Regular
JNBunnie1
Posted
Hi,

I only post on here about once a year so I apologize for barging in again. :P I have been gluten free due to diagnosed celiac for 7 and a half years now and I made a MAJOR booboo last night. I thought I was buying the Amy's Rice Crust Spinach Pizza but I got the WHOLE WHEAT one instead and somehow never noticed while I was preparing it and eating it. I only had one piece, thank God. And I just want to say that I already feel really stupid and I am always so so careful. I still cant' believe I did this!

Anyways, 3-4 hours after eating it (I felt fine up till then) I got really dizzy and nauseated. I had the dry heaves (I'm assuming that means my stomach was empty) for about 40 minutes (not fun!) Then I drank some water (at this point I didn't know I had been glutenated so I thought it was something else) and took a Pepcid AC. And THEN I projectile vomited and it was all the pizza. I vomited continuously for about 10 minutes and then I had 3 more episodes of pizza puking (so throwing up from 11pm to 2am) and horrible horrible nausea and belly pain (right below my ribs in the middle) that I couldn't move.

Anyways, I know that the one time I threw up from gluten before was when I had gluten free bread contaminated with wheat flour so I think I get that type of reaction if it's wheat, not so much with barley. Usually I only get glutened from cross contamination and I just have some diarrhea and bloating.

The weird thing is that I haven't had any diarrhea which is different for me; I always have either just the D or D+V never just V. Do you think that is because I vomited it all up from my intestines? It felt like it got stuck (the pizza) as soon as it got out of my stomach and my poor duodenum recognized it. And my stomach was definitely empty to begin with (4 hours after I ate and having the dry heaves). Maybe all the gluten got thrown up and that's why I don't have diarrhea?

The other upsetting thing is that I cannot eat, but I am drinking Gatorade and staying hydrated. It feels (24 hours later) like someone is punching me in my solar plexus and like I have this ball of burning pain high up in my belly (it's in the middle and kind of between the ribs, so pretty high). I've never had this before and it's scaring me if I can't eat. Could my intestines be so inflamed that they're swollen and that's why I have the pain and can't eat. I am not even hungry and when I tried to eat some mushed up gluten-free pretzels (what I always eat after a gluten reaction since I get really lactose intolerant and can't have my usual comfort food) the pain got a lot worse and I felt nauseated.

I took some Levsyn, which is an anti-spasmodic that I take under my tongue and that seemed to help a bit but wears off as soon as the next dose is due. That was prescribed not for my celiac but because I have biliary tract issues but it did help.

I am sorry this was so rambling. I just don't have anyone to ask about this and I am scared. I think I will call my GI doctor tomorrow and try to talk to him and ask what to do. If anyone has had this happen or knows what medicines would help or any advice I would appreciate it!

Thank you!

Bre

I'm guessing the water helped you throw up, is what happened. Pizza can be a very dry food, and was probably just kind of stuck. If you're no longer throwing up, you don't have to worry so much about dehydration, especially if you're keeping down the gatorade. I would switch to broths at this point, start with veggie, then chicken. You'll get a lot more nutrients into your system, and all the sugar in Gatorade can't be doing you any favors.

You probably haven't had diarrhea YET. I know, positive thought. I don't think there's any way you got it all out, to be honest. Your stomach did kind of shut down for a while though, and it may also be that after all this time your system has changed and will react in different ways.

Yolo's suggestions are good, though it may be hard for you to find those herbs. The baking soda bit is very helpful and that's pretty easy access. Add some lime or lemon juice to your baking soda water and you basically have homemade Gatorade. And it tastes better!

bremac Apprentice
bremac
Posted
  • Author
Rumbles is probably right--see a Doc.

However if it was me (and it has happened) and you like a more home grown variety of health care, I would try taking some baking soda in water (1/2 to 1 teaspoon in a glass of water chased by more water). I would also take or make up some slippery elm (gruel or caps). Marshmallow root caps or powder mixed in cold water will also help. Both herbs are soothing and healing being anti inflammatory. Peppermint and chamomile tea are very soothing. Ditto with anise tea...

I would also take enterically coated acidophilus just to calm the system down.

I have found even just breathing in gluten dust my body gets inflammed all over. Probably the same thing happens even if it doesn't reach your gut directly--a huge reaction against food in this case...The baking soda should really help... It has done so for me whether I have had projectile vomiting or projectile D.

Meanwhile, continuing my down home approach, I would then take dandelion root and yellow dock when I could manage it....say a day later to get rid of residual inflammation and general liver toxicity. At that point too for me I take a tablespoon or two of Bragg's Apple Cider Vinegar to help balance out the system...Raw Celery then is good too for balancing the system... Though for you you might need cooked veggies at first?? My ex uses a juice extractor.

Bea

Thank you for all the suggestions. I am not able to get out and find all these things and in all honesty probably wouldn't be able to prepare them all. But I DO have peppermint tea and I've drank that before and noticed it has tummy calming properties. I'll go make some now! Thanks again :)

Bre

JNBunnie1 Community Regular
JNBunnie1
Posted
Thank you for all the suggestions. I am not able to get out and find all these things and in all honesty probably wouldn't be able to prepare them all. But I DO have peppermint tea and I've drank that before and noticed it has tummy calming properties. I'll go make some now! Thanks again :)

Bre

Got any baking soda? That ones easy.

LuvMoosic4life Collaborator
LuvMoosic4life
Posted

I was glutened this x-mas by CC...it was just a turkey my brother had made and he placed on top of a baking sheet for carving (which of couse I didnt realize till after the fact) But I woke up really naucious in the middle of the night...I had a sinus infection, so I thought maybe it was from that... The next day I seemed ok...(I still didnt know that the turkey was CC) and I had the leftovers, which happened to be more of the meat from the bottom of the turkey...I woke up again, this time at like 5am with horrible nausea. I went the bathroom and started dry heaving....then I felt a big wad move from my stomach and down to my intestines. I was still dry heaving, but everytime I felt more and more like it was going to be D. I was so confused I was sitting on the toilet feeling like I was about to V and D at the same time. I ended up vomiting, but it was a bunch of green mucous, sry for the visual....then I started getting a horrible burning feeling just below my stomach...I sware it felt like a swallowed a turkey bone and it had torn my insides, making my intestines inflamed....that was my only thought...I was freakin out b/c I was home alone in the middle of no where. I continued to V mucous and was cold and sweating uncontrollable. I passed out on my bed wrapped in nothing but a blanket and then woke up nacious again. I just sipped water until it went away...then it was an entire day full of disgusting D....I didnt get over the nausea feeling for about 3 days after, but the D was only for one day (thank god)...But that was my worse glutening yet....I'm sure part of the reason it was so bad is a had an infection to begin with, but still. NO FUN!!! I was suprised b/c it was just a small amount, but I can only imagine eating whole wheat pizza :blink:

didnt mean to ramble, just thought I'd share....

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bremac Apprentice
bremac
Posted
  • Author
I was glutened this x-mas by CC...it was just a turkey my brother had made and he placed on top of a baking sheet for carving (which of couse I didnt realize till after the fact) But I woke up really naucious in the middle of the night...I had a sinus infection, so I thought maybe it was from that... The next day I seemed ok...(I still didnt know that the turkey was CC) and I had the leftovers, which happened to be more of the meat from the bottom of the turkey...I woke up again, this time at like 5am with horrible nausea. I went the bathroom and started dry heaving....then I felt a big wad move from my stomach and down to my intestines. I was still dry heaving, but everytime I felt more and more like it was going to be D. I was so confused I was sitting on the toilet feeling like I was about to V and D at the same time. I ended up vomiting, but it was a bunch of green mucous, sry for the visual....then I started getting a horrible burning feeling just below my stomach...I sware it felt like a swallowed a turkey bone and it had torn my insides, making my intestines inflamed....that was my only thought...I was freakin out b/c I was home alone in the middle of no where. I continued to V mucous and was cold and sweating uncontrollable. I passed out on my bed wrapped in nothing but a blanket and then woke up nacious again. I just sipped water until it went away...then it was an entire day full of disgusting D....I didnt get over the nausea feeling for about 3 days after, but the D was only for one day (thank god)...But that was my worse glutening yet....I'm sure part of the reason it was so bad is a had an infection to begin with, but still. NO FUN!!! I was suprised b/c it was just a small amount, but I can only imagine eating whole wheat pizza :blink:

didnt mean to ramble, just thought I'd share....

Not rambling! I actually feel kind of encouraged knowing other people have similar reactions, weird as that may sound! My D started today, oh joy...

bremac Apprentice
bremac
Posted
  • Author

The D started today as someone predicted it would :P Not too bad though and I've been eating a bit, mostly jello and broth and applesauce and peppermint tea. My GI doc told me to take some Pepto Bismol and that actually helped my tummy pain a lot. And hopefully help with the D too! He said something about how the ingredient in it can actually help bind up some of the gluten left over in the intestines and help get it out faster. ANyone ever heard that before? Anyways, thanks for your replies everyone!

Bre

YoloGx Rookie
YoloGx
Posted
The D started today as someone predicted it would :P Not too bad though and I've been eating a bit, mostly jello and broth and applesauce and peppermint tea. My GI doc told me to take some Pepto Bismol and that actually helped my tummy pain a lot. And hopefully help with the D too! He said something about how the ingredient in it can actually help bind up some of the gluten left over in the intestines and help get it out faster. ANyone ever heard that before? Anyways, thanks for your replies everyone!

Bre

Pepto Bismol has helped me in a pinch, however it seems I am allergic to the salycic acid (sp?) (asperin) so my stool turns black--my chiro says that indicates internal bleeding.... So there are alternatives--kaopectate though I haven't used it as of yet. The alternative remedies do work for me. Glad the peppermint tea is helping by the way!

Bea

PS--I may have gotten glutened from kissing my boyfriend yesterday or drinking bottled water he poured for me after cleaning off the coffee shop table today... I need to train him to be a little less polite (lol!!). Am feeling a bit off tonight, headache with achy eyes and backache starting plus tired--which isn't how I normally feel these days unless glutened. Just am crossing my fingers it doesn't get worse than this. Am going to try my own remedies. Already did the baking soda, enzymes, yogurt and acidophilus. Vinegar next... and then the herbs.

PPS--happy new year anyway! Am going to watch a star trek movie with my family... Life for me anyway is getting overall better all the time despite these occasional glitches. Hope it is for you all too!

bremac Apprentice
bremac
Posted
  • Author
Pepto Bismol has helped me in a pinch, however it seems I am allergic to the salycic acid (sp?) (asperin) so my stool turns black--my chiro says that indicates internal bleeding.... So there are alternatives--kaopectate though I haven't used it as of yet. The alternative remedies do work for me. Glad the peppermint tea is helping by the way!

Bea

Hmm, are you allergic to Aspirin? IF you are I would think you would be allergic to the Pepto as well, but otherwise, it is SUPPOSED to make your stools dark. It even says so on the bottle and that is a temporary and expected thing. If you're not on a med that has this side effect and your stools are black/really dark that IS a sign of GI bleeding high up in the tract (it's called melena.) I was freaked out when mine became black and then I read the bottle and noticed that, hehe. I wouldn't want you to miss out on the joys of Pepto Bismol if you don't have to. ;) Happy New Year!

Bre

YoloGx Rookie
YoloGx
Posted

I am allergic to asperin. Thanks for reminding me about what it says on the side of the bottle however. I think if I had to have it I would take it in an emergency if that's all there was, just not taken very often...but kaopectate would probably be better.

Meanwhile I use marshmallow root to soothe and heal the villi...though it doesn't stop the D. But blackberry leaves and bark do (which I have outside).

Other herbs stop the D too...American Cranesbill--a type of geranium you might want to grow; Bayberry; Meadowsweet; Oakbark. I think its probably good to order some of these things online or get them from your local herbstore for those times just in case like for "the worst gluten reaction ever" etc. etc. Ditto with the liver cleansing herbs.

Bea

PS--am recovering fairly quickly. Still a slight headache with sensitive eyes. Digestive disturbance and slight D seems to have died down. My back and neck feel better. the continued use of apple cider vinegar seems to really help a lot. Am taking it easy today. I plan to go for a walk and do some yoga after a bit but am eating a little and want to take a hot bath before going out. Ironic, with all those who have hangovers, I too have one with no alcohol...like many of you too no doubt. Its these social times that are the most difficult for us to control...

bremac Apprentice
bremac
Posted
  • Author
I am allergic to asperin. Thanks for reminding me about what it says on the side of the bottle however. I think if I had to have it I would take it in an emergency if that's all there was, just not taken very often...but kaopectate would probably be better.

Meanwhile I use marshmallow root to soothe and heal the villi...though it doesn't stop the D. But blackberry leaves and bark do (which I have outside).

Other herbs stop the D too...American Cranesbill--a type of geranium you might want to grow; Bayberry; Meadowsweet; Oakbark. I think its probably good to order some of these things online or get them from your local herbstore for those times just in case like for "the worst gluten reaction ever" etc. etc. Ditto with the liver cleansing herbs.

Bea

PS--am recovering fairly quickly. Still a slight headache with sensitive eyes. Digestive disturbance and slight D seems to have died down. My back and neck feel better. the continued use of apple cider vinegar seems to really help a lot. Am taking it easy today. I plan to go for a walk and do some yoga after a bit but am eating a little and want to take a hot bath before going out. Ironic, with all those who have hangovers, I too have one with no alcohol...like many of you too no doubt. Its these social times that are the most difficult for us to control...

I am glad you are recovering. I felt pretty good yesterday apart from the D but this morning I had horrible "heavy" nausea, almost feels like I have a lead ball in my belly (still higher up abover my umbilicus and in the middle) and such a horrible feeling. It comes in waves and takes my breath away. Do you think baking soda would help at all in this situation, since I'm not throwing up anymore? It seems like an hour or two after I eat this feeling comes, like the food is stuck where my poor intestines got poisoned :(

Bre

YoloGx Rookie
YoloGx
Posted

I doubt the baking soda would hurt; it will probably help. The apple cider vinegar may help too.--esp. if its live like Bragg's or Trader Joe's. Don't try to eat anything solid yet. gluten-free Broth may be OK.

Sorry this is lasting so long for you. When I got glutened from breathing in flour dust it took me three weeks to get over it. I ended up having to use the sauna at the Y and do lots of exercise as well as detox herbs since it went into my lungs and the effect settled in my joints. I hope it doesn't last that long for you. Take care of yourself and you should be OK.

I'm not over mine yet either actually. It also goes in waves. Am cleaning up my house, listening to music, resting, reading. I'll go for that walk tomorrow...

This year I vow to always take either a thermos of some of my tea or bottled water as well as some emergency food wherever I go especially if I am out in a social situation, no matter how casual...

Bea

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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