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Celiac Disease And Allegic Reactions


Keith L

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Keith L Newbie

This is my history to date.

My name is Keith L I'm a 36 year old male.

I was diagnosed with celiac disease in Oct of 2002 just after my 1yr old daughter was diagnosed. I immediately started a strict gluten free diet and never cheat. After being of the diet for about six months I was accidently given food that had been contaminated and the stomach pain was unbearable along with the diarrhea. Other than accidental consumption the diet seemed to resolve all of my gluten issues, until now. I'm not sure of the relationship between my new symptoms and celiac disease. Eight months ago after having an infected wisdom tooth removed and a coarse of penicillin i broke out in hives. The hives quickly moved on to anaphylaxis shock for which I was treated for in hospital for three days. At first glance the doctors said it was an allergic reaction to penicillin, a drug that I have taken since childhood. Upon being discharged from hospital I noticed that my salivary glands below my tongue were very swollen and are still swollen eight months later and I have difficulty swallowing sometimes. I was seen by and Ent Doctor who said it should resolve and that and that my throat looked fine and that there was no blockage in the salivary glands. I was put on high dose prednisone and continued that coarse of treatment for five months. After being off the prednisone I still have recurring out breaks of hives and tongue swelling. I am now suffering form panic attacks and body temp control issues. I get hot flashes and my face will get very red and it feels hot to me but feels cool when felt by hand. I have swelling around my eyes constantly and they itch more often than not. My skin constantly feels itchy even when hives are not present. I also suffer from chronic abdominal pain. I have had all sorts of blood tests- CBC - Sed Rate - Arthritis - vitamin levels - Lyme disease - Lupus, and all sorts of auto immune diseases all things come back normal including liver and kidney functions. My allergist seems to think it will all pass. I wonder if anyone out there might have suggestions or similar problems.

Thank you for listening.

Keith L.


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ang1e0251 Contributor

Have your vitamin levels been checked for defiency? What about thyroid?

ravenwoodglass Mentor

Has your allergist done any testing to see what it is that you are reacting to? Has he tried guiding you through any kind of elimination diet to see if you can pinpoint what is causing the reaction? It is not unusual to have an allergic reaction show up to a drug you have taken safely all your life. I had the same thing happen with the same antibiotic years ago but the reaction was short lived, as yours should have been if you are not still on that drug. Allergic drug reactions stop after the drug is discontinued, they don't continue for 8 months. My suggestion would be to find another allergist who will help you figure out what is actually causing this reaction so you can avoid that substance. Have you tried eliminating any of the more common allergins, soy and casien would be the first I would eliminate. Also this may not apply for you but stevia has become very popular with a lot of people, and it is a great sweetener...as long as you are not allergic to ragweed. If you do use stevia you might want to discontinue it for a while and see if that helps.

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    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
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      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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