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Stomach Burning

Fonda

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Fonda Newbie
Fonda
Posted

My stomach has been burning for over a year. My family Dr. said it was IBS or GERD. I finally saw a gastro Dr. recently and had a colonoscopy, stomach scope, CT scan, and bloodwork done. I do know that I have IBS for sure. I have not had the celiac blood test done yet, but the Dr. said it looked like I might have celiac from the scope. But he didn't really know. I have tried carafate, protonix, nexium, levbid, zantac and nothing stops the burning in my stomach. I have read and looked on the internet but all I can find about stomach burning is GERD. My burning is in the pit of my stomach like it is on fire and I can't get it put out. It is not up high like GERD. I have been on the gluten free diet for a few days so I can't really tell if that is it yet or not. Although, it seems like things with caramel coloring make my stomach bunr worse. so celaic may be what I have. Does anyone else's stomach burn like mine does?

Thanks

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Carriefaith Enthusiast
Carriefaith
Posted

I get mild to severe pain in my upper abdominal region (just about where the stomach is). I have been gluten free for a year and this symtom just started about 3 months ago. My GI doc says I have IBS (in addition to celiac) which causes pain in that area. However, I am also being tested for diabetes and pancreatic insufficiency (pancreatitis) which can also cause pain in that aera.

I am currently having other symptoms in addition to that pain though.

debmidge Rising Star
debmidge
Posted

Is a stomach scope the same as an endoscopy? Have they checked you for an ulcer in the small intestine, where villi are also inspected?

Fonda Newbie
Fonda
Posted
  • Author

Yes, an endoscopy. And, yes the Dr. said it looked to be a little irritated or whatever. He wasn't sure this was what it was though. But on the celiac diet, my stomach doesn't seem to burn as bad. Can you tell if some things bother you almost immediately after you eat them? What are your sypmtoms when you know you've eaten gluten?

lambchop Newbie
lambchop
Posted

I'm new to this list and have never posted - just lerking and learning what I can. Been dealing with Celiac for 3 years now and only diagnosed in November 04. I know exactly how you feel, this is what I feel when exposed, but what does help me with the burning stomach is to take L-Glutamine powder, one scoop in the morning and one scoop at night - mixed in any liquid drink. This helps to coat and heal the stomach and helps to seal up the fissures that might be present to allow gastric content to leak out. Then I also take Quercitin (buy at health food store) and take one pill 3 times a day. This is herbal and helps your body deal with the reaction to gluten that is going on. Takes a few days, but has always calmed my stomach down to either a more tolerable level or makes the pain go away completely.

I had a recent flare up this week where the pain was unbelievable, worst outbreak I've had in a month or so. Started the L-Glutamine and Quercitin on Tuesday and the pain is gone today. Although L-Glutamine sounds like gluten, it isn't, my doctor prescribed it - but you can buy it at health food stores, the pharmacy OTC or on line. A little pricey, but well worth it for me to keep on hand.

Hope this works for you like it does me.

Leslie

KaitiUSA Enthusiast
KaitiUSA
Posted

Celiac can cause the burning that you are having. Once you get off gluten your symptoms will get less and less if it is a celiac problem. Considering it is getting better when you are off gluten I would suspect that the more you are off of gluten the better it will get. If I accidentally have gluten I get pain in my stomach on and off for like 2 weeks. I would try taking enzymes with your food. This may help to minimize your pain after eating. Also probiotics are good too. I take these supplements and more and they have definately helped. If I can help you let me know :D

Fonda Newbie
Fonda
Posted
  • Author

Thanks for all the input. Since I am new to this diet, I am learning a lot from this forum.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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