Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Started Gluten-free Diet... Horrible Withdrawal


nbachiri

Recommended Posts

nbachiri Newbie

I just started myself and my two small children on a gluten-free diet to see if it will help with some of their behavorial issue with ADHD. I've done quite a bit of research on the subject. I went on it too to make it easier for them to understand. It has been six days and they are doing fine but I'm having horrible withdrawal. Three-day migraine, nausea, irritability, feels like morning sickness.

Does this mean I have a problem with gluten or does withdrawal happen to everyone? Since I'm not planning on staying gluten-free should I go ahead and restart gluten to feel better?

Please help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

Hi and welcome. :)

I'm thinking that the withdrawal shouldn't last that much longer and if you can stick with it it really will help with figuring things out with your sons.

Sorry, maybe not what you wanted to hear. :lol::( I haven't had gluten for nearly three years now and don't miss it a bit so I might not be the most sympathetic ear. :ph34r:

Jestgar Rising Star
Does this mean I have a problem with gluten or does withdrawal happen to everyone? Since I'm not planning on staying gluten-free should I go ahead and restart gluten to feel better?

Please help!

It should be just food. If your having this much of a reaction to not eating it, you might want to consider what it does to your body when you are eating it.

Hummingbird4 Explorer

Maybe you have a virus and your symptoms have nothing to do with not eating gluten. Are you taking in carbohydrates in other forms? Going off all carbs suddenly can bring on headaches and irritability.

Takala Enthusiast

Tell us what you are eating so we can trouble shoot it.

I must be some sort of freak, I'm starting my 6th year of not eating it and I never had the withdrawals, but I was already supplementing with vitamins and minerals so I expect that had something to do with it.

I suspect you are not taking a B- complex vitamin and calcium/magnesium supplements, and are also using a lot of gluten free commercially prepared substitutes that has another ingredient(s) you are reacting to. Like many gluten intolerant people, if I eat too much grain carbohydrate and not enough vegetables and good fats, I don't function that well, and if I'm craving sugars I'm actually minerally out of balance.

ravenwoodglass Mentor

Some of us get withdrawl symptoms and some don't. Celiac is genetic so it certainly is not out of the realm of possibility that you also need the diet. If it is withdrawl it should be over soon. Stick it out and you will most likely wake up in a day or two feeling much better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,831
    • Most Online (within 30 mins)
      7,748

    ATownCeliac
    Newest Member
    ATownCeliac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.